Todd

I had my scans yesterday, and everything looked good. I finished the EVEREST drug therapy period and am off the drug. My doctor said I don't need scans now for 6 months. I asked about having them earlier like at 4 months, and he said no. He said they've reduced recommended scan frequencies even for stage 3 disease like mine to every 6 months. Frankly, I don't understand his answer. I have a couple of friends with other doctors that are less expert in RCC, and they are T3 and in their second/third year and doing scans every 4 months. But my doctor really knows RCC, and says no reason to do them more frequently, so I'm going to do what he says in this case. (I also asked my uncle, a retired medical oncologist but not an RCC specialist, and he agreed that more often isn't necessary).

Well, the good news is that I think I should start thinking about the idea that my RCC very well may not come back.

I've been having some strange health issues the past 2-3 months, and it's hard to really settle that it's nothing to do with my RCC. I guess I'll always have that uneasy feeling when something isn't right with my body now. It was such a shock when I got RCC. I had never even heard of it.

Thanks for asking. I hope your husband's scans turn out well.

Todd

GSRon said:

Todd, glad you are doing

Todd, glad you are doing well.   I wonder if the scan issue is insurance related..?  Seems that is a method to reduce cost, but I could be wrong..

Ron

Just do like me and Ron. Regardless of what tests say, just move on and think positive. It seems to be working for you already. survivors network, right? We never look at a check out date. you are doing well. Life is good. Keep it up.

todd121 said:

I had my scans yesterday, and everything looked good. I finished the EVEREST drug therapy period and am off the drug. My doctor said I don't need scans now for 6 months. I asked about having them earlier like at 4 months, and he said no. He said they've reduced recommended scan frequencies even for stage 3 disease like mine to every 6 months. Frankly, I don't understand his answer. I have a couple of friends with other doctors that are less expert in RCC, and they are T3 and in their second/third year and doing scans every 4 months. But my doctor really knows RCC, and says no reason to do them more frequently, so I'm going to do what he says in this case. (I also asked my uncle, a retired medical oncologist but not an RCC specialist, and he agreed that more often isn't necessary).

Well, the good news is that I think I should start thinking about the idea that my RCC very well may not come back.

I've been having some strange health issues the past 2-3 months, and it's hard to really settle that it's nothing to do with my RCC. I guess I'll always have that uneasy feeling when something isn't right with my body now. It was such a shock when I got RCC. I had never even heard of it.

Thanks for asking. I hope your husband's scans turn out well.

Todd

Glad everything looks good. I'm so happy for you. 

As for the issue about reduced scans, maybe that's why in October our urologist told us 3 months, then one year, then last month our onc told us 6 months. It seems logical to me they should make individualized decisions for each patient based on Grade as well as stage and sub-type. But hey, I never went to med school just watched a lot of E.R, lol. 

todd121 said:

I had my scans yesterday, and everything looked good. I finished the EVEREST drug therapy period and am off the drug. My doctor said I don't need scans now for 6 months. I asked about having them earlier like at 4 months, and he said no. He said they've reduced recommended scan frequencies even for stage 3 disease like mine to every 6 months. Frankly, I don't understand his answer. I have a couple of friends with other doctors that are less expert in RCC, and they are T3 and in their second/third year and doing scans every 4 months. But my doctor really knows RCC, and says no reason to do them more frequently, so I'm going to do what he says in this case. (I also asked my uncle, a retired medical oncologist but not an RCC specialist, and he agreed that more often isn't necessary).

Well, the good news is that I think I should start thinking about the idea that my RCC very well may not come back.

I've been having some strange health issues the past 2-3 months, and it's hard to really settle that it's nothing to do with my RCC. I guess I'll always have that uneasy feeling when something isn't right with my body now. It was such a shock when I got RCC. I had never even heard of it.

Thanks for asking. I hope your husband's scans turn out well.

Todd

Great news Todd!

danbren2 said:

Awesome News Todd!

Todd,

     So happy for you! Everytime I hear news like this I feel it is a great step for all of us! Enjoy your life, and make everyday special! May you hear the sounds of tiny feet soon!

                                                   Love and prayers for good health,

                                                    Brenda

Todd,

So glad to hear your good news.  I hope all goes well with the move, but be careful and don't overdo.  That will probably take things off your mind for a while.  I hope you get to have little ones around to spoil before long.

Take care

Kathy