I'm back with a broken heart and spirit
To all of my old friends on CSN I am back in need of support again. My wife found out today that she has a reoccurance of her BC from last year. It appears to be a regional reoccurance (lymph node at teh clavical where her original BC was found) now we have the whirlwind of scans and test to go through again.. Then treatment.. I always gained so much hope and encouragement for you all and it breaks my heart to have to be reporting her reoccurance. Anyone with a regional BC reoccurance please feel freet to comment on your treatment. My wifes original treatment was Chemo(AC/T) double mast with 12 lymph nodes removed (1 positive) then 35 rad treatments to the area. I'm sure they will do chemo again but can she have rads again in the same area? I felt like we fought so hard during the first round and she was doing so well, looked great, felt great and was getting back to normal.... then wham, the train hit us today.. I feel broken and like there is no hope.. Thank you all so much !! God bless
Dennis
Comments
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Dennis
So sorry Dennis for you and your poor wife. I have had no recurrence YET but have an open mind especially as came off meds after three years. Also double masectomy. Well, I hope you both can gather strength to battle on a second time. It just isn't fare. ee all know what is to come, please either or both of you keep in touch ANY time.
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I am sorry about your wife. I don't have the same situation but I want to let you know that we are here for you and your wife. Prayers are always there.
I have faith your wife will be well. Please remember to take care of yourself while you care for her. I can't imagine the fear you must feel after having to face this once, and now again, but your wife will recover.
Please keep us posted.
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My younger sister had a local
My younger sister had a local recurrence about 10 years ago. She was treated with more surgery, radiation and hormone therapy. She was estrogen receptor positive.
I had metastases to my right lung and ribs 9 years ago. I then was treated with radiation, hormone therapy and bisphosphonates (like boniva but stronger; harden your bone and keep cancer from progressing and causing fractures).
In March 2013, I was diagnosed with liver metastases. I was treated with taxotere, herceptin and perjeta. I am currently still on herceptin and perjeta for as long as they work (finished my course of taxotere). Feeling better and appreciating every day.
Please know that none of us come with an expiration date. Plan for the worst, but hope for the best and enjoy every day. Gentle (((hugs))) aand prayers. Please let us know how she is doing.
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Dennis,
So sorry toDennis,
So sorry to hear...warm thoughts heading your way.
Denise
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Yes Me!
Hi Dennis, my second recurrance was in the sentinel node on chest wall and clavical. It occurred 6 months after I finished treatment. I was treated agressively with 18 more chemo treatments adn 10 more weeks rads. This all happened in 1998, I remained cancer free for 9 years had a recurrance in 2007, mastectomy on the "good" side, four more chemos and I have been cancer free since. My message to you is please have HOPE, until we are gone there is always HOPE! Lace up those battle boots and believe she will survive even thrive once this is all said and done! You do not mention what stage she is, I was a 4 but am still here and have been for a long time since that diagnosis. It may be a rough road but she can survive it! For me my husband was my rock I'm betting you are hers! Sending my prayers and a hug for your lovley wife!
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Hi!
I had bc in 1999 withHi!
I had bc in 1999 with chemo and mast. It recurred in 2001. My "breast cancer specialist" told me to get my things in order. I got a new dr. I had radiation treatments and a hyst to get rid of hormones. I was NED until last year. Drs were treating me for adult asthema which was actually lung cancer. They also found a lesion on my spine and spot on my hip. I was devastated. I took Xyloda and my tumor markers went up (55, 62, 78) so after a few months of that my Onc put me on Arimidex and my numbers went down and now for about 6 months or so my numbers are stable (25) each month and i also take Xgeva for my bone cancer (which is stable now) and i think it is a great drug! My last scans were stable and my Onc said I was once again in remission.
Never give up hope. I hope and pray your wife will get treated and be able to enjoy remission. There are so many people on here who have battled many many years, and that means people are living longer!!!!
God bless!
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I hd a local recurrence rightMrsBob said:Hi!
I had bc in 1999 withHi!
I had bc in 1999 with chemo and mast. It recurred in 2001. My "breast cancer specialist" told me to get my things in order. I got a new dr. I had radiation treatments and a hyst to get rid of hormones. I was NED until last year. Drs were treating me for adult asthema which was actually lung cancer. They also found a lesion on my spine and spot on my hip. I was devastated. I took Xyloda and my tumor markers went up (55, 62, 78) so after a few months of that my Onc put me on Arimidex and my numbers went down and now for about 6 months or so my numbers are stable (25) each month and i also take Xgeva for my bone cancer (which is stable now) and i think it is a great drug! My last scans were stable and my Onc said I was once again in remission.
Never give up hope. I hope and pray your wife will get treated and be able to enjoy remission. There are so many people on here who have battled many many years, and that means people are living longer!!!!
God bless!
I hd a local recurrence right above the scar line in 1995. I had another Bc in the remaining breast. keep hope alive!
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Hi Re thanks for the reply.RE said:Yes Me!
Hi Dennis, my second recurrance was in the sentinel node on chest wall and clavical. It occurred 6 months after I finished treatment. I was treated agressively with 18 more chemo treatments adn 10 more weeks rads. This all happened in 1998, I remained cancer free for 9 years had a recurrance in 2007, mastectomy on the "good" side, four more chemos and I have been cancer free since. My message to you is please have HOPE, until we are gone there is always HOPE! Lace up those battle boots and believe she will survive even thrive once this is all said and done! You do not mention what stage she is, I was a 4 but am still here and have been for a long time since that diagnosis. It may be a rough road but she can survive it! For me my husband was my rock I'm betting you are hers! Sending my prayers and a hug for your lovley wife!
Hi Re thanks for the reply. We got the PET results today and she has a small spread to the colon and left femur but the Dr says it is very early. No spread to any vital organs, all are clear. She was stage 2 when initally diagnosed but now is stage 4 we just hope to be able to mange this and get her into remission. I know we can't cure this but hopefully we can mange it as it is early. God bless
Dennis
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Thank you so much, we got theMrsBob said:Hi!
I had bc in 1999 withHi!
I had bc in 1999 with chemo and mast. It recurred in 2001. My "breast cancer specialist" told me to get my things in order. I got a new dr. I had radiation treatments and a hyst to get rid of hormones. I was NED until last year. Drs were treating me for adult asthema which was actually lung cancer. They also found a lesion on my spine and spot on my hip. I was devastated. I took Xyloda and my tumor markers went up (55, 62, 78) so after a few months of that my Onc put me on Arimidex and my numbers went down and now for about 6 months or so my numbers are stable (25) each month and i also take Xgeva for my bone cancer (which is stable now) and i think it is a great drug! My last scans were stable and my Onc said I was once again in remission.
Never give up hope. I hope and pray your wife will get treated and be able to enjoy remission. There are so many people on here who have battled many many years, and that means people are living longer!!!!
God bless!
Thank you so much, we got the PET results today and a small spread to the femur and colon but nothing bad, Onc says it is very early and manageable. We find out what treatment she gets next week. It was very hard hearing stage 4 . I know we can't cure it but hopefully we can manage it. God bless.
Dennis
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Hi Dennisdthompson said:Thank you so much, we got the
Thank you so much, we got the PET results today and a small spread to the femur and colon but nothing bad, Onc says it is very early and manageable. We find out what treatment she gets next week. It was very hard hearing stage 4 . I know we can't cure it but hopefully we can manage it. God bless.
Dennis
Hi Dennis,
I am very sorry. Yes it is very hard to learn about stage IV. I got similar news in June of 2012, while initially was diagnosed in 2008. My doctor has been optimistic and very encouraging and it did help me to overcome stage IV diagnosis. She also suggested continue working to keep a normal lifestyle. While the cancer is estrogen positive it is behaive as TN. I had Chemo Xeloda for 8 months, which helped my bones and then experimental treatment, I am currentely on anti-estrogen shots and Xgeva . Please keep hope, especially as your doctor is a very positive about outcome. Rena always inspire me keep going.
Good luck and let us know
New Flower
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Thank you so much for theNew Flower said:Hi Dennis
Hi Dennis,
I am very sorry. Yes it is very hard to learn about stage IV. I got similar news in June of 2012, while initially was diagnosed in 2008. My doctor has been optimistic and very encouraging and it did help me to overcome stage IV diagnosis. She also suggested continue working to keep a normal lifestyle. While the cancer is estrogen positive it is behaive as TN. I had Chemo Xeloda for 8 months, which helped my bones and then experimental treatment, I am currentely on anti-estrogen shots and Xgeva . Please keep hope, especially as your doctor is a very positive about outcome. Rena always inspire me keep going.
Good luck and let us know
New Flower
Thank you so much for the words of encouragement. We will find out next week what her treatment will be. She is not handleing it well. She seems very depressed which is understandable. She also thinks she is going to die. I am trying to be encouraging and convince her that we all are going to die and no on e knows when so lets enjoy everyday and treat ti like it is our last. She just wants to stay in bed and do nothing. This is very hard on me. I know that if I felt like I was going to die I would want to go out with my tail on fire not curled up in a ball of depression. I don't know if I should leave her alone or continually try to encourage her to get up and lets start living
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Hi Mrs Bob, I am going to PMMrsBob said:Hi!
I had bc in 1999 withHi!
I had bc in 1999 with chemo and mast. It recurred in 2001. My "breast cancer specialist" told me to get my things in order. I got a new dr. I had radiation treatments and a hyst to get rid of hormones. I was NED until last year. Drs were treating me for adult asthema which was actually lung cancer. They also found a lesion on my spine and spot on my hip. I was devastated. I took Xyloda and my tumor markers went up (55, 62, 78) so after a few months of that my Onc put me on Arimidex and my numbers went down and now for about 6 months or so my numbers are stable (25) each month and i also take Xgeva for my bone cancer (which is stable now) and i think it is a great drug! My last scans were stable and my Onc said I was once again in remission.
Never give up hope. I hope and pray your wife will get treated and be able to enjoy remission. There are so many people on here who have battled many many years, and that means people are living longer!!!!
God bless!
Hi Mrs Bob, I am going to PM you with my wifes e-mail and phone number. If possible could you please contact her. I think she would really get encouragement from someone like you and any other ladies who are stage4 and can attest that this isn't a death sentence. Thank you so all so much.
Dennis
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Hugsdthompson said:Hi Re thanks for the reply.
Hi Re thanks for the reply. We got the PET results today and she has a small spread to the colon and left femur but the Dr says it is very early. No spread to any vital organs, all are clear. She was stage 2 when initally diagnosed but now is stage 4 we just hope to be able to mange this and get her into remission. I know we can't cure this but hopefully we can mange it as it is early. God bless
Dennis
Very glad to hear it has not spread to any major organs, there is hope that she will respond well to treatment and that the both of you will have many years ahead of you to enjoy life. I know how devastating having to battle again can be, I will continue to lift you both in prayers!
RE
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Please try to cheer her updthompson said:Thank you so much for the
Thank you so much for the words of encouragement. We will find out next week what her treatment will be. She is not handleing it well. She seems very depressed which is understandable. She also thinks she is going to die. I am trying to be encouraging and convince her that we all are going to die and no on e knows when so lets enjoy everyday and treat ti like it is our last. She just wants to stay in bed and do nothing. This is very hard on me. I know that if I felt like I was going to die I would want to go out with my tail on fire not curled up in a ball of depression. I don't know if I should leave her alone or continually try to encourage her to get up and lets start living
If can PM me if you like. I got a lot of encouragement from members of this board. Very inspiring stories. usually the mind is spiining out when you heard stage IV. The worse thing for me was to be alone, it was very devastating anf hard getting over wothout help. Both My husband and son cheered me up pretenting that it was another bump on the road nothing more. There are things she love to do. try use it to intertain her. It took me several weeks to get over the news, then life came back with all of its beuty and challenges.
Hugs
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Hi Dennis, I'm glad to see
Hi Dennis, I'm glad to see you are seeking support for your wife and yourself. You will both need it. Luckly or unluckily for you, you've kinda been down this road before, so you are a bit familiar with what is to come. I ask that you stay strong for one another and stay prayed up. Remember to take deep breaths and relax if possible when you can. ASK QUESTION OF THE DRS.!!!
I will keep you both in my daily prayers.
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Hi Dennis,Just a quickdthompson said:Hi Re thanks for the reply.
Hi Re thanks for the reply. We got the PET results today and she has a small spread to the colon and left femur but the Dr says it is very early. No spread to any vital organs, all are clear. She was stage 2 when initally diagnosed but now is stage 4 we just hope to be able to mange this and get her into remission. I know we can't cure this but hopefully we can mange it as it is early. God bless
Dennis
Hi Dennis,
Just a quick note---by definition, all metastized cancer is a stage 4, so don't let the numbers throw you. It's just that, a number.
I'm 6 years out and am on chemo again for mets---but this is where all the research and amazing new treatments are used. They have a zillion tricks up their sleeves that they can use, with more every day. I've been on both ends of care, as the patient, and the main care giver, and I can tell you, by far, it's MUCH harder to be in your shoes than your wife's. Sounds funny, but every one I've spoken with (including my husband, aka, my rock)agrees.
Ask lots of questions, and keep asking until you have an answer that fits your question, and write down the answers because even though you'll both be in the same room with the Dr., you'll both hear things differently.
Good luck, you've done it once before, and there's nothing like experience as a great teacher. That means, you'll be an awesome support this time around.
Keep us posted.
Jan
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Hi Dennis
It's been a very long time since you and I spoke. The subject at that time had to do with Traumatic Stress Disorder. I was being treated for this and thought there was no way my "condition" was comparable to those who serve in the armed forces. (not sure how I came to say that) YOU messaged me and told me feel that my struggles were just a hard if not harder than on a military person. I don't believe that but I do thank you so much for your kind words.
SO ... after reading about your heart wrenching situation, I have to let you know I am here for you. OMG ... this is really not fair. Just keep that positive energy flowing to your wife. She needs that even if she doesn't want it. Don't let her give up. Most of the ladies said that there are miracle drugs out there and your wife will have access to those drugs and therapies. I don't have the answers about this recurrence but I do have willpower and am a very fiesty old lady. I would never let someone I love just throw in the towel. I would encourage and empower him/her to just DO IT.
I hope and pray she comes around. NO ... I know she will! Tell her I said she will! She is a fighter. She is a survivor. She must always remember that.
xoxox
Mary
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Hi Mary,MsGebby said:Hi Dennis
It's been a very long time since you and I spoke. The subject at that time had to do with Traumatic Stress Disorder. I was being treated for this and thought there was no way my "condition" was comparable to those who serve in the armed forces. (not sure how I came to say that) YOU messaged me and told me feel that my struggles were just a hard if not harder than on a military person. I don't believe that but I do thank you so much for your kind words.
SO ... after reading about your heart wrenching situation, I have to let you know I am here for you. OMG ... this is really not fair. Just keep that positive energy flowing to your wife. She needs that even if she doesn't want it. Don't let her give up. Most of the ladies said that there are miracle drugs out there and your wife will have access to those drugs and therapies. I don't have the answers about this recurrence but I do have willpower and am a very fiesty old lady. I would never let someone I love just throw in the towel. I would encourage and empower him/her to just DO IT.
I hope and pray she comes around. NO ... I know she will! Tell her I said she will! She is a fighter. She is a survivor. She must always remember that.
xoxox
Mary
Thank you so muchHi Mary,
Thank you so much for your kind words. We will be starting chemo again next week. I also saw your post today, my heart is breacking because of this, but like we always say.. stay positive, keep your faith and depend on family and friends. I will be praying that you get good news soon. The waiting is the hardest. Hugs and prayers are coming your way.
Dennis
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