New Problems

So sorry to hear but I hope using oxygen will help.  We have had oxygen in the house since my husband went on hospice but so far he hasn't needed it.   Although I have noticed that his breathing is worse when he tries to walk around the yard or does something in the house but once he sits down he is okay.   Joe is the same way about feelings and what is going on, he generally won't tell me and is never honest with the hospice nurse.

My only question is why does anyone have to suffer with this horrible disease. 

I know for me, keeping things bottled up would be extremely hard.

I was thinking about my mom, and hard she fought using oxygen.....her words "ya start using it, and you get hooked on it"....that made me smile and say "but mom, every living creature is hooked on it".  Once she was using it, her strength came back, tho....and she felt SO much better!!  She started doing the things she liked again.....

Keeping Jim and you in my prayers.

p

Debbie, i'm sorry to hear about Jim's low oxygen level.  I'm praying the added oxygen will restore some of Jim's strength and energy.  I hope he will be up to fishing when the weather allows.  Sorry you have to hide your feelings.  I wish life didn't have to be so hard.  Come here any time you need to express your feelings as we truly understand and we're here to pick you up.  I pray the progression slows down and Jim has many, many good fishing days!!  Hang in there, Debbie.

God bless you and your family, Debbie.

dj

donfoo said:

check in

Debbie,

I'm sorry to hear about Jim's worsening condition. Please encourge him to accept anything that helps ease the various issues. The O2 will help but keeping the lungs clear helps a lot too. Wishing comfort for you all. Don

So sorry to hear this latest news. I hope you are able to also get the small portable tank, so he is able to continue his passion for fishing with no interruption.

Take care.

Luv,

Wolfen

Greg53 said:

For Jim

Debbie,

Sending you and Jim some big-time Mojo!  Found my original pic that I used here.  Let Jim know one of his on-line fishin' buds is pulling for him.

Best to you both!

Greg

Sorry to hear about Jim's need for oxygen. Hopefully, it is temporary. My Mom was recently put on oxygen and improved enough to discontinue. One issue was the worry of a fall and tripping over the long clear cord while she was using it at home. My brother took black electrical tape and circled the clear tubing about evey 4 inches. Made a huge diff in the visibility of tubing. 

Some 10 years ago, we were in Vegas and when I got my husband to the hospital his oxygen level was in the 50's. Spent 8 days in ICU there and came home on oxygen. He had to have FAA approved to get home so he rented an Oxygenator. If he had to remain on oxygen, we would have invested in one. Compact and makes oxygen out of room air. Something you may want to look into.

Sending prayers 

Debbie:

Hope the oxygen does the trick and believe me I know what you're feeling.  Although Charlie was pretty open about his feelings and did talk to me about things, I look back now and can see where he may have held back some probably more than he would have otherwise because I was such a basketcase.  You will get thru this and never give up and keep praying for miracles; but you and the children are doing the right thing and recognizing that things have progressed quicker than y'all had hoped.  It's a very painful emotional journey, I know, watching someone you love so very much, and especially when it's your spouse, go downhill; but just remember to savor all the good moments you can right now.  My prayers are so with y'all and wish you the best.  God Bless!

Jan (Basketcase)

jim and i said:

Thanks everyone for your

Thanks everyone for your prayers and encouragement. They really help.

Debbie

 

Jim, and all my CSN friends everyday. How is Jim responding to the oxygen?