The war with canker sores -SOLVED- UPDATE!

Cris & Kreg,

Strike two, Matt has nothing. Trauma I believe. I picked up a few quirks I did not have before treatments.  I would do just as you have done and keep searching for help or cause.  I suppose you have eliminated the obvious culprits in his diet (peanuts, bananas, whatever)?  Other than making sure his nutrition is well balanced I guess you are stuck with the trauma.

I hope Kreg is sore free soon.

Matt

sabriene said:

Sores

Cris,

Yes I had teatment in 06 and had those sores.  They do hurt.  I was surprised to get one on the lip and finally had the oral surgeon remove that one.  I tried it all but nothing seemed to help much.  The oncologist indicated like you mentioned some just seem to get those sores. If haven't tried might get a prescription for Lidocaine Viscous 2%. I felt it may helped a little but again regret to say there is no fast fix.  I recall with it I would use like one tablespoonful every three hours.  Then just kind of gargle & swish, then I would spit it out.   It is kind of like an anesthetic to product numbness in the mouth & throat area. However, it is just like any other drugs need to watch for any side effects. I am sure if the doctor feels not a good idea then will not authorize.  By the way my ENT was the one that prescribed it for me at the time.  Tell him he sure has my sympathy for those are very annoying.  Some reason they just seem to come and go but over time gradually heals. Roger

I had the horrific lip sores during tx but they healed quickly when tx stopped. While I haven't had any open sores since, my lower lip has remained extemely sensative. I do the magic mouthwash and suck in my lower lip to see that it gets coated. That gives some temporary relief. Suggest using straws to bypass the lip whenever possible. Beyond that, not much to offer.

Candi

Hi Cris,

You can give the Watermelon frost a try.  It is good for cankersore and sore throat.  It comes in dark brown greenish powder form.  You can put the powder over the cankersores and they will burn at first but get better afterward.  If you have all over inside your mouth, you can use it as a rinse.  But remember, it will burns at first so don't be discouraged.

Here is the link from amazon.com

http://www.amazon.com/Sanjin-Watermelon-Frost-Breath-Freshener/dp/B0009JQ3FI/ref=sr_1_3?ie=UTF8&qid=1386636585&sr=8-3&keywords=watermelon+frost

PM

I had them terribly.  And 4 1/2 years out sometimes still get them.  Now lately, its blood blisters.  From either an irritating food, or a sharp scratchy food or

after a dental xray. anything that scratches the oral cavity, roof of mouth, or tongue will develop a blood bllister. This is a new symptom related to the damage

from radiation.  Was at dentist today and his xray's (sharp plastic inserts they use)  gave me a blood blister.   I found the best products for canker sores and they can make you almost

debilitated in pain and not able to eat.   Were  Gly-oxide ®, Amosan ®, and Cankaid   Gly-oxide became my best friend.  It has a bubbling fizzing action that

would also unlodge food particles that would get stuck under the side of my tongue where the radiation hit me.  I had stage 1.5 tonsil cancer.  I would constantly

get an irritation in the left side under tongue. It is much better now. But if you can find it. Get Gly-oxide.  Walgreens carried it.  Also the canker products

that have this film you apply to the muscous membrane.  They seal the sore.  They are great.  And there is even a mouth rinse, that you use, and don't eat

or drink for 30 mintues that seals the area with a coating.  They were life savers.   I am almost to my fifth year still NED and I believe my life will never

be the same.  This year for the first time all my blood work was normal.  At first my WBC and RBC were a bit below normal. Finally those reached normal

readings.  But my Neuts were still a bit high.  (showing fighting infection)  This past Novermber all blood work normal.  Radiation. I like to call it, the gift

that keeps on giving.  At first I would panic every time I got any irritation in mouth, or sore throat, or saw an odd spot. One time I was sure this white spot at back of roof of mouth

was cancer.  My ENT took a Q Tip and plucked a tiny piece of bread off.  lol.  So, the rule is. Wait two weeks. If it  does not clear up, then start to worry.  I would have

such panick attacks about my cancer coming back. That now I have xananx but rarely take it, unless I have a melt down.  I never alllowed them to give me a G tube.

I am glad I didn't.  It was a battle with all my doctors.  My weight dropped to 104 before I slowly started gaining.  After the mucous (most horrible part of the healing) abated.

I started with soft boiled eggs, very soft.  almost runny.  Luke warm soup.  Jello.  Yogurt became my friend  Plain no flavor yogurt.  And after the mucous was gone. Ice

cream milk shakes.  Finally it was Carnation 560 calorie supplement drinks that got my weight up to 114.  I talked to a professional and he said.  My body had a  new

set point.  It was fighitng to stay at 104. I was 5 ' 6"  tall so at 104 I looked like a skeleton when naked.  but slowly I gained to 110. then to 114.  Now I stay at 120. 

Never gain much as I hardly ever snack.  I eat very plain foods, fresh veggies, love yogurt, cucumbers.  I do sometimes have spicy foods but pay for it, and have

to gargle with baking soda  to rinse.  I not only don't have much taste still. But it constantly changes. One day I can taste something, the next day it tastes either

horrible or no taste at all.  I was getting difficient in Vit C but can't drink citrus.  I found Emergen-C  a powder supplement I take each day in water.  I think it has

helped my bruising I was always getting.  One thing I can say.  It gets better.  Each month, year, etc it gets better.  I actually like that I can't enjoy sweets anymore

as they are not healthy anyway.  Cancer loves sugar.

cureitall66 said:

Thank you for sharing...

tinysmom,

Thank you for time and sharing about this. Could you tell me what the name of the rinse is that you wait 30 min and coats the sores?

I'm off to Walgreens!

~C

Very quickly.  I cannot tell you how fast my mouth sores healed and I could eat solid foods again.  It is a new treatment that will be valuable for head and neck cancer patients in the years to come.

PJ

his dentist....tell them what you've discovered, and ask if they'll prescribe a different brand?  It can't hurt anything.

p