Scans were bad... so scared...,.

I know this is bad news but don't give up hope! One of my ovarian cancer support group buddies just had a third recurrence while using doxil and was switched to Topetecan. She has had good results. Ca125 down, and some fatigue, that's all. Hopefully itwill be thatcwAy for you too. Hang in there and come back often to let us know how you are. We are cheering you on from the board!!

all the best 

Susan

Alexandra said:

Dear Carla

With all my heart I hope that Topotecan works for you. I haven't had it myself but I read that it's generally causes mild fatigue and hair thinning and may or may not affect blood counts.

I hope this set back does not interfere with you enjoying Christmas and New Year's. Any special plans? Are your kids coming to visit?

Love,

Alexandra

I'm praying that the Topotecan kicks your cancer's butt!  I'm rooting for you and cheering you on from the sidelines.

Big hugs,

Kelly

So sorry that you have to deal with this. Doxil didn't work for me either and Topotecan is next on the list for me when my current drug of a cisplatin/gemzar stops keeping me stable. The right chemo can work wonders and it's often a try and see approach till the right one kicks butt. Hang in there, girl. My current combo has kept me stable for the last four years. We're here for you.

                                                             ((((((HUGS))))))))   Maria

mom2greatkids said:

Doxil kept me stable for

Doxil kept me stable for about ten months.  Obviously, it stopped working.  Gemzar is next for me if this doesn't work.  My medical oncologist does not believe in repeating any drugs.  He said Avastin, Taxol, etc. all are off the table since they didn't work.  They did work for a while.  I"ll see how this goes, then perhaps seek a second opinion.  On a positive note, it's all still confined to lymph nodes.  Vital organs are still okay for now.  My dr. said I am plantin resistant, but aren't cistplatin and carbo the only plantin drugs used for OVCA?  He said taxtore won't help because it's a cousin to taxol.

 

I am amazed at how well you have done.  But boy this disease is a beast.

 

Thanks for everyone for your support and encouragement.

 

Carla

I just got my pet/ct scan results and they are similar to yours in the nodes but not on any organs. I was expecting much worse so I figure I won't be dying in the next six months. Sorry I can't help but think in terms of time.

i have been on chemo almost constantly since June of 2010, the last three didn't work as my numbers kept rising.But now I believe they worked some otherwise the cancer would be bigger my biggest spot was 3.6 cm . My doctor has put me back on a chemo that worked for me in the past and said there were many more things to try. I'm hoping this works Carbo / Gemzar and maybe I'll just have to stay on it. Don't give up, how do you feel?  I feel good except being tired from the chemo but slow and steady is good

if you feel like your doctor is giving up a second opinion would not be a bad idea,something could come out tomorrow to help us  we just have to be here to benefit from it.

Good Luck !

Colleen

for what you are going through.  I hope that this drug does what it needs to do and is not too hard on you in the process.  As always we are here for you.  This has become a close band of friends.  If only we could all be closer so we could give each other the support we really need.  But I am grateful to have you all in my life which would be unbearable if you weren't.

Karen