Diffuse large B cell lymphoma

JayeD613 said:

I regret to inform everyone

I regret to inform everyone that my mom passed away Wednesday afternoon. December, 18th 2013. Thank you of or all your advice. I'm am just so heartbroken and devastated. 

Dear JayeD...I'm so very sorry to hear your dear mother passed away. I was so hoping she would get stronger and move forward to SCT or other trials. My heart goes out to you and your family. God bless you and family during this very sad time. Much love and prayers to you all...Sue

JayeD613 said:

I regret to inform everyone

I regret to inform everyone that my mom passed away Wednesday afternoon. December, 18th 2013. Thank you of or all your advice. I'm am just so heartbroken and devastated. 

I am sorry for your loss.  May God hold you in his hands and grant you peace.  May the memory of your mother always bring a smile to your face and joy in your heart.

Well, we got good news yesterday. No signs of lymphoma in the bone marrow, so just waitng for her first three treatments to be completed for a repeat PET Scan. If the small area of concern is better, then we are looking at stage 3, otherwise if no change, it will remain staged as a stage 2 DLBC lymphoma. She had her first chemo treatment on Thursday Dec 19th. Everything went well so far and she had no reactions or problems with the treatment.

Ed

JayeD613 said:

Thank u also much. We had

Thank u also much. We had just gotten her transferred from mt sinai to hackensack the day before she passed. When the phase one doctors came in they said the only two clinical trials she may be eligible for we're both chemo drugs that have never been used on humans before but the both involved swallowing four pills twice a week which she probably could've done and she was strong enough to still get out of bed and get to the bathroom. She would get up like every five minutes but they still wanted to do repeat blood work and ct scan to make sure that the lymphoma hasn't spread anywhere else. wednesday she became combative and incontanant with her bladder and i immediately knew something was wrong. They had to pit mittens on her cause she kept scratching at her tumor and ripping it open. We went there specifically to see dr.goy but he was out of town that day so Wednesday he made a stop to her room specifically to see her and he took one look at her and said he'd be back, after reviewing her labs and ct scan he said that he was pretty sure it had spread to her bone marrow and possibly her brain Which is why she was acting the way she was and there I was blaming the mess but he said she was barely on anything except for the pain. About a half hour later hospice called and wanted to make arrangements and I said I wanted to still talk to the doctor some more with hopes of finding something else to try but exactly an hour later, I had just gotten into her room to visit her and she slipped away right in front of my brother aI'd I. That was the hardest thing in my life that I ever watched but I know she waited for us to be by her side. The doctors thought she still had 3 weeks to a month to love, nobody suspected her to pass that day. It was just so unexpected. 

There's not much more to say that the others haven't already said.  What a very sad and heartbreaking thing for you and your family to go through.  Your mother was still young and had many years ahead of her.  I know that that is probably one of the hardest things to deal with. Our hearts go out to you.

Bill and Becky

JayeD613 said:

Thank you. What hurts so much

Thank you. What hurts so much too is that the doctors were so sure it was curable and especially since it stayed stage two the whole time. They were just about to do a clinical trial when everything snowballed out of control. 

I am so sorry for you loss.  I have been following this post and hadn't gotten around to responding.  We're here if you need to talk or vent.

Jim