Bone pain and blood types

lynnyb323
lynnyb323 Member Posts: 11
in Leukemia #1

Has anyone experienced any Long-Term issues as far as arthritis or brittle bones since treatment? I was diagnosed in 2001 with AML and did the 3 rounds of chemo as well as a stem cell transplant. I have been cancer free since October of 2001 but noticed some ongoing issues especially in the past year or two. I have been experiencing ongoing headaches, toothaches and bone pain. My family doctor says it could be a long term effect of all the chemo but it just doesn't make much sense to me. I haven't had any issues up until recently so I'm wondering if this has happened to anyone else. 

Also has anyone heard of blood types changing after a transplant? I was born with Bpositive blood and after the stem cell donation from my brother my blood type changed to his and is now Onegative. Again, my family doctor seems to think this is something "un natural" so I'm wondering if anyone else had this experence. Thanks in advance!

Comments

  • louzac
    louzac Member Posts: 6
    #2
    Bone pain and blood type

    Hi Lynn, and congratulations on 12 years! That's certainly something to be happy and proud about.

    Changing of blood type is actually quite common from what I've heard.  In fact, at my center they checked blood type daily after transplant for all patients in case they needed a blood transfusion.

    Your other symptoms seem common to me, but 12 years is a long time to first be getting them. We sometimes forget that we sometimes get things that are totally unrelated to out AML or its treatment.  I would consult with a transplant doctor rather than my family doctor.  Good luck.

     

  • lynnyb323
    lynnyb323 Member Posts: 11
    #3
    louzac said:

    Bone pain and blood type

    Hi Lynn, and congratulations on 12 years! That's certainly something to be happy and proud about.

    Changing of blood type is actually quite common from what I've heard.  In fact, at my center they checked blood type daily after transplant for all patients in case they needed a blood transfusion.

    Your other symptoms seem common to me, but 12 years is a long time to first be getting them. We sometimes forget that we sometimes get things that are totally unrelated to out AML or its treatment.  I would consult with a transplant doctor rather than my family doctor.  Good luck.

     

    Thanks louzac!
    I have made an

    Thanks louzac!

    I have made an appointment with the transplant doc. I did to some research, you are definitely right...IT IS a VERY common thing!

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