Osteosarcoma

Hello, my name is Lindsay and I am almost 20 years old and a 3 time survivor of Osteosarcoma and very interested in communicating with you and hoping that both our situations could help bring a positive light on our situations. Here is just a little info. about me. I was first diagnosed with Osteo. when I was a freshmen in high school. I had to leave school because the treatments were just too much to handle. While I was on many different treatments, I mostly had Adriamycin during this round. After 7 months I was in remission. Then around Christmas of my senior year, I relapsed again. This time I was more prepared for the chemo, but the cancer definitely changed me an my lifestyle. During this time I was mostly on VP-16 and at one points cisplatin. Then I entered college and thought this would be behind me. But then at the end of my around the end of October of last year, I discoverd the Osteo had returned. I did stay in college and also did treatments. But then it was in February that the cancer metestasized to my right lung. This was probably the most grimm part of my struggle, but I remained in school and struggled a lot. I was on Taxol for the most part. And now on the 27th, I will be proud to celebrate 3 months of being in remission.
So, with this said, I feel like I could go on forever, but I think I'll just say a few more things and let you respond with your own personal questions. Right now, I feel for your son because I've had the disease, but at this tender age of 18, I feel for him even more. This is an odd age because we are Legally adults, but not really prepared for such a dramatic illness. Also, when it comes to the cancer scene, this age is often overlooked. Many people focus on childhood cancers, which Osteo generally is, but 18 year olds don't want to be put in hospital rooms with Winnie the Pooh on the walls and giving us a sucker, most likely won't make me smile. But, like I said we are not adults with families to take care of and jobs that are a main priority. In turn, I feel like we often get overlooked. That is one reason I would like to communicate with you. I think I may be able to relate to you and your family, but I also have had cancer turn my life upside down and I'm looking for resources to get people like your son and myself to get recognition and have places to fit into. There is, in actuallity, very little knowledge of "cancer" itself and especially with Osteo. In just my 7 years of dealing with this there have been major changes in the treatment options, etc.
Ok, I know I've said a lot... hopefully not too much. Please feel free to e-mail me at pinzy4@hotmail.com.

Hi,I was diognosed with osteo in august of '98.I am now two years off treatment and doing great.I will be turning 18 in three weeks.I would love to talk about my expeiences.

Hi-

I'm 19, and a osteosarcoma survivor. I was diagnosed about 8 years ago after having an ongoing pain in my leg, especially during my basketball games and figure skating practices. For the last 7 years I've been involved in a one-on-one support program for teens with cancer through the hospital, so I'm definitely used to talking about my experience and would love to help in any way possible. Right now I'm in the process of designing a website called "connect" which is geared toward college and high school age people. It's pretty cool, and there are other stories of osteosarcoma survivors on our site and email addresses to contact them. It's at www.connectonline2k.cjb.net (sorry about the pop-ups, we're in the process of getting a .com site) If you want, you can also email me at JenJenMU@hotmail.com

Best of luck to you and your son-

Jen

pinzy4 said:

Hello, my name is Lindsay and I am almost 20 years old and a 3 time survivor of Osteosarcoma and very interested in communicating with you and hoping that both our situations could help bring a positive light on our situations. Here is just a little info. about me. I was first diagnosed with Osteo. when I was a freshmen in high school. I had to leave school because the treatments were just too much to handle. While I was on many different treatments, I mostly had Adriamycin during this round. After 7 months I was in remission. Then around Christmas of my senior year, I relapsed again. This time I was more prepared for the chemo, but the cancer definitely changed me an my lifestyle. During this time I was mostly on VP-16 and at one points cisplatin. Then I entered college and thought this would be behind me. But then at the end of my around the end of October of last year, I discoverd the Osteo had returned. I did stay in college and also did treatments. But then it was in February that the cancer metestasized to my right lung. This was probably the most grimm part of my struggle, but I remained in school and struggled a lot. I was on Taxol for the most part. And now on the 27th, I will be proud to celebrate 3 months of being in remission.
So, with this said, I feel like I could go on forever, but I think I'll just say a few more things and let you respond with your own personal questions. Right now, I feel for your son because I've had the disease, but at this tender age of 18, I feel for him even more. This is an odd age because we are Legally adults, but not really prepared for such a dramatic illness. Also, when it comes to the cancer scene, this age is often overlooked. Many people focus on childhood cancers, which Osteo generally is, but 18 year olds don't want to be put in hospital rooms with Winnie the Pooh on the walls and giving us a sucker, most likely won't make me smile. But, like I said we are not adults with families to take care of and jobs that are a main priority. In turn, I feel like we often get overlooked. That is one reason I would like to communicate with you. I think I may be able to relate to you and your family, but I also have had cancer turn my life upside down and I'm looking for resources to get people like your son and myself to get recognition and have places to fit into. There is, in actuallity, very little knowledge of "cancer" itself and especially with Osteo. In just my 7 years of dealing with this there have been major changes in the treatment options, etc.
Ok, I know I've said a lot... hopefully not too much. Please feel free to e-mail me at pinzy4@hotmail.com.

Hi Lindsay! My name is Jennifer. I have had osteosarcoma 3 times as well and found your story interesting. I was 1st diagnosed at 13 years old.Then again at 15, and then it came back to my lungs at 18 right after I graduated high school. I know exactly what you have been through and the worries of it returning. Trust me. They amputated my right leg above the knee. I do well. I have 4 healthy children. 3 daughters and 1 son. I would love to chat with you and hear more of your story. I wanted to give you hope because I am now 30 years old and almost 13 years cancer free!!! I would love to hear from you. Jennifer

Zeus_66 said:

13 years later....

Hi! 

Im Amanda, I know this post was from 13 years ago but id love to share my story. 

I was diagnosed with osteosarcoma in March of 2011.

I had a small tumor in my right fibula. 

I had it removed and was declared Cancer free January of 2012.

I've been cancer free since:)

I also have PTSD (Post Traumatic Stress Disorder) 

Im always afraid of it returning and have nightmares about it. 

I hope your son is okay now!

Cry for help

Hi, my name is Brianna and I know you have been in remission (thank goodness) but I have been rediagnosed (seven years after) my first diagnosis which was a different cancer Soft tissue sarcoma. Now I have been diagnosed with Grade 2 intermediate Osteosarcoma. I want to be calm and collective about all this, but its really hard to since lately I've been suffering from anxiety and depression. I guess I was a little too confident that it wouldn't return since its been 7 years, but now that is has, I'm petrified. I'm sorry, I don't mean to feed your fears or make anything worse, but I just need someone who relates..and can maybe answer a few questions.