Eributux

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  • Nana b
    Nana b Member Posts: 3,030 Member
    #22
    johnnybegood said:

    hey nanab

    dont know much about that drug but just wanted to say im sorry you have to go thru this after being on irrinatecan before i sure did not expect after my first treatment back on it would land me in the hospital and my hair is coming out by the handfuls.did i mention cancer sucks...Godbless....johnnybegood

    Hi JBG

    Hi there.  Hope you are better.   You gave us a scare!  I am now on antibiotics for the rash and it has helped ALOT.   I'm waiting on the miraculous eye lash growth.  :) I'm on Clindamyvin lotion and Minocycline generic for Minocin.

     

    Im doing well, just tired. More so then Om 5FU. My CEA GOT TO 280 that is high cosnide ring I was 150 before liver reaction. 

     

    Take care! 

  • 256marygrace
    256marygrace Member Posts: 5
    #23
    Nana b said:

    Hi JBG

    Hi there.  Hope you are better.   You gave us a scare!  I am now on antibiotics for the rash and it has helped ALOT.   I'm waiting on the miraculous eye lash growth.  :) I'm on Clindamyvin lotion and Minocycline generic for Minocin.

     

    Im doing well, just tired. More so then Om 5FU. My CEA GOT TO 280 that is high cosnide ring I was 150 before liver reaction. 

     

    Take care! 

    My father in law just took

    My father in law just took his 2nd erbitux treatment on Friday. His first was the Friday before. He has not experienced the horrid rash as of yet. At what point does ot normally show up?  

  • Nana b
    Nana b Member Posts: 3,030 Member
    #24
    256marygrace said:

    My father in law just took

    My father in law just took his 2nd erbitux treatment on Friday. His first was the Friday before. He has not experienced the horrid rash as of yet. At what point does ot normally show up?  

    For me, right after the

    For me, right after the second infusion. 

  • herdizziness
    herdizziness Member Posts: 3,624 Member
    #25
    256marygrace said:

    My father in law just took

    My father in law just took his 2nd erbitux treatment on Friday. His first was the Friday before. He has not experienced the horrid rash as of yet. At what point does ot normally show up?  

    For me

    the rash showed up the end of the first week after first infusion (both times), but I also had lost my hair by the third week, and here I am six weeks later on the second go around (last time I had Erbitux was Aprill and started on Vetibix in October) and while my hair has thinned (not noticeably, only I know from touching it, and from the hair that seems to land on my food), so far have only lost the gray hairs and not all of them, I am amazed, I'm hoping I'll still have my hair for my daughter's graduation on the 14th of December!!

    mine this time has been a red face mostly and very few zit like things, but am on Vetibix this go around, I had more zit stuff on my nose with the Erbitux.

    Winter Marie

  • serenity101
    serenity101 Member Posts: 82
    #26
    256marygrace said:

    My father in law just took

    My father in law just took his 2nd erbitux treatment on Friday. His first was the Friday before. He has not experienced the horrid rash as of yet. At what point does ot normally show up?  

    rash timing

    My rash started showing up within a few days of my first infusion.

  • Nana b
    Nana b Member Posts: 3,030 Member
    #27
    serenity101 said:

    rash timing

    My rash started showing up within a few days of my first infusion.

    I'm not supposed to lose the

    I'm not supposed to lose the hair, I'm on oxy and xeloda, but I have noticed thinness and gaur loss, lots on the brush and fingers.  My head itches.  I read that your hair growing at times uncontrollably is a Eurbutux side affect.   Come on lashes. :).  Got to keep some humour going. 

  • herdizziness
    herdizziness Member Posts: 3,624 Member
    #28
    Nana b said:

    I'm not supposed to lose the

    I'm not supposed to lose the hair, I'm on oxy and xeloda, but I have noticed thinness and gaur loss, lots on the brush and fingers.  My head itches.  I read that your hair growing at times uncontrollably is a Eurbutux side affect.   Come on lashes. :).  Got to keep some humour going. 

    Lashes side effect

    This year was the first time in my life that I bought and can use an eye lash curler!!  I was so happy to have had to finally make that purchase, while the rest of me was bald (Irrinotecan) in the beginning of this year my eyelashes grew and still remain long, a lovely side effect.

    Winter Marie

  • Phil64
    Phil64 Member Posts: 838 Member
    #29
    I survived with Erbitux

    You can too!!! Below are three posts from my blog dealing with Erbitux (including pictures). You might get a laugh on the third post. Laughing is good. :-) If you read a few posts inbetween these you will see the success I experienced with Erbitux. It basically kicked the crap out of the tumors in my liver, and brought my CEA down to under 1. I've been off it for a while now and the rash is nearly gone. A few blemishes on my body remain but the face is virtually clear!

     

    http://pscamihorn.me/2013/02/14/valentines-day-02142013/

    http://pscamihorn.me/2013/02/16/good-news-update-02162013/

    http://pscamihorn.me/2013/06/

     

  • Nana b
    Nana b Member Posts: 3,030 Member
    #30
    Phil64 said:

    I survived with Erbitux

    You can too!!! Below are three posts from my blog dealing with Erbitux (including pictures). You might get a laugh on the third post. Laughing is good. :-) If you read a few posts inbetween these you will see the success I experienced with Erbitux. It basically kicked the crap out of the tumors in my liver, and brought my CEA down to under 1. I've been off it for a while now and the rash is nearly gone. A few blemishes on my body remain but the face is virtually clear!

     

    http://pscamihorn.me/2013/02/14/valentines-day-02142013/

    http://pscamihorn.me/2013/02/16/good-news-update-02162013/

    http://pscamihorn.me/2013/06/

     

    Thank you so much for

    Thank you so much for sharing!  

  • strick7106
    strick7106 Member Posts: 9
    #31
    Rash

    Mine looked like the other pictures that were shared with you.  I did 17 Erbitux treatments total. The side effects got bad enough that we reduced the dose to 80% and went 2 out of every 3 weeks rather than weekly.  Eyelashes got very long, I got little 'paper cut' like splits in the ends of my fingers, and the toenails on both big toes became discolored.  I think everything they say you can get, I got.  I ended up growing a beard to hide some of the rash but that's probably not an option for you :)Laughing O -well, I guess I had the full experience.  Right now I've been off of it for 3 weeks and the rash is about 95% gone.  My next step in the Big 'C' battle is HIPEC surgery on Dec. 4th and you are suppoesed to be off of Erbitux 4 weeks prior.  Hope the Erbitux does the job for you, and don't worry too much about the rash - it's only skin deep, and we know that everyone involved in this battle is much 'deeper' than just that. 

    Happy Thanksgiving.

  • Nana b
    Nana b Member Posts: 3,030 Member
    #32
    strick7106 said:

    Rash

    Mine looked like the other pictures that were shared with you.  I did 17 Erbitux treatments total. The side effects got bad enough that we reduced the dose to 80% and went 2 out of every 3 weeks rather than weekly.  Eyelashes got very long, I got little 'paper cut' like splits in the ends of my fingers, and the toenails on both big toes became discolored.  I think everything they say you can get, I got.  I ended up growing a beard to hide some of the rash but that's probably not an option for you :)Laughing O -well, I guess I had the full experience.  Right now I've been off of it for 3 weeks and the rash is about 95% gone.  My next step in the Big 'C' battle is HIPEC surgery on Dec. 4th and you are suppoesed to be off of Erbitux 4 weeks prior.  Hope the Erbitux does the job for you, and don't worry too much about the rash - it's only skin deep, and we know that everyone involved in this battle is much 'deeper' than just that. 

    Happy Thanksgiving.

    Thanks for sharing!    No,

    Thanks for sharing!    No, I'm not worried about it. I did get all on nose, forehead, around mouth.    They appear to be drying, so I stopped antibiotic, ONC said no, stay on for now.  

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