Pet Scan today- update ...hip fracture- mets confirmed

unknown said:

I am absolutely amazed

that the radiology tech seeing the scan did not call for a radiologist for an urgent interpretation of the fracture.  He should have never been moved from the scanner board until paramedics arrived to immobilize the leg and transfer him to the ED of your hospital.  It borders on negligence which must be proved by 3 conditions: the person knew something was wrong, had a duty to act, and an injury or worsening occurred due to the failure to act.  The fracture could have easily been made worse just by moving him without proper immobilization.

And then for the on call doc not to make an effort to contact your personal oncologist despite him being off that weekend is deplorable to me.  Your personal physicians not only have a vested interest in your health, they should have a vested interest in your relationship. If they could have contacted him/her and he cares, he would have come.

I'm sorry I went off on this, but my thoughts and prayers are for a good outcome.

Dan

  

My heart breaks for you both. You've already been through so much.

It also makes you wonder who, exactly dropped the ball and why wasn't this discovered sooner? As Chelsea says, don't ever second guess yourself. You have been doing all the right things and you have done the best you know how. I'm just so sorry the medical care has not been better. Been there, done that! I hope his team will become involved ASAP and a course of action will be taken.

You are in my thoughts.

Luv,

Wolfen

jen2012 said:

Well we ended up in ER last

Well we ended up in ER last night when the pain got so bad that he couldn't move.  Had to call an ambulance and it took them an hour to get him in the ambulance.   He has a fractured hip...where the femur meets the hip.  According to the ortho doc, he has a met there.  The same one that has been biopsied 3 times and been negative.   So I guess bone mets are confirmed.   They still want to do a surgical biopsy to make sure this is a CRC met and not a different kind of cancer  - which they say is unlikely to be a different cancer, but it would change the course of treatment so they want to be sure.  

 

I know how you are feeling...with my sister it finally got to the point where we were going tnsist that she be admitted for pain control even if they didn't know the cause.  As it turned out, the last ER visit was where they could see the fracture in her pelvis and determined it was bone mets from her uterine cancer.

The brain MRI was done to determine if there was a differnt cause for the pain being so bad.  In her case, all was clear there.

The ER doctor said that bone mets can cause pain from pressing on a nerve long before they can be seen on the tests.  Odd I know.

Have they done a bone scan?  I would think they might before a biopsy.  In my sister's case they did neither due because of other indicators making any treatment beyond radiation of questionable use.  And of course radiation does not care what kind of cancer the met is.

Prayers that they can soon get hubby's pain under control and be done with tests and on to treatment.

Hugs for you both.

Marie who loved kitties

Prayers and hugs steaming your way.  Our modern and evolving medical system is seemingly moving care of lovd ones back to the famiy, without education or training :-(

I hope he feels better soon and you can get some rest yourself.

Art

herdizziness said:

Ahhhh Jen

d@mn it, I'm so sorry that it's mets, but glad he is getting the care finally that he needs.

It is amazing what does NOT show up on scans, I've been through that myself lately.  You've done all the right things, unfortunately our medical system isn't infallible, but when they finally catch what is wrong, it's a relief to get it fixed.

I send you both my heart and nothing but good thoughts in a speedy recovery for your husband.

Hugs and Luv,

Winter Marie

Oh, Jen, I am sorry that you are both going through so much once again. This disease is so insidious. Hopefully, now there will be pain relief.....pain is a horrible thing to go thru and to watch.  Know that you are in my heart and prayer.  

Be gentle with yourself.

CM

my prayers and hugs are out to you and your husband.  

jen2012 said:

Thank you all for your kind

Thank you all for your kind words and support.    It's really helpful to "talk" to people who understand.  And not say things like "oh a broken leg - he'll be fine" ....or the opposite with the doom.   People do say strange things.

He's recovering from the first surgery and was moved to a private room on the oncology floor.  Surgical was not used to dealing with the amount of pain meds he's requiring.  We know the oncology nurses anyhow and they are all wonderful - and it's a slow week -only 4 or 5 patients on the floor, so he's had 2 nurses since he's been moved.  Plenty of attention, but they've been sensitive to the fact that he doesn't want to be bugged all day either. 

She did send him yesterday for the brain MRI - I'm not thinking about that, just hoping it's fine.

He will have the 2nd leg set on Tuesday.  Another rod from the knee to the hip.   So Thanksgiving will not be at home   and our youngest is not allowed to visit    That's going to be difficult for him.  (though I just got an email from the social worker to see if she can work out an exception for Thanksgiving)  

The oncologist thinks he'll be starting chemo two weeks after the next surgery, but is waiting for approval from the ortho surgical onc.  Folfiri I think.   I assume that avastin will be added after several more weeks.

I am sorry for what you are both going through. You must be exhausted. The caregiver always seems to get neglected. I hope his mri is clean. I hope the social worker can make arrangements for you youngest to see your husband on thanksgiving. I am sure that will really boost his spirits.

jen2012 said:

Got the okay on bringing the

Got the okay on bringing the 2 yr old for Thanksgiving   :-)

Thars great. I couldn't imagine them not making an exception considering the situation.

Happy thanksgiving

jen2012 said:

Thank you all for your kind

Thank you all for your kind words and support.    It's really helpful to "talk" to people who understand.  And not say things like "oh a broken leg - he'll be fine" ....or the opposite with the doom.   People do say strange things.

He's recovering from the first surgery and was moved to a private room on the oncology floor.  Surgical was not used to dealing with the amount of pain meds he's requiring.  We know the oncology nurses anyhow and they are all wonderful - and it's a slow week -only 4 or 5 patients on the floor, so he's had 2 nurses since he's been moved.  Plenty of attention, but they've been sensitive to the fact that he doesn't want to be bugged all day either. 

She did send him yesterday for the brain MRI - I'm not thinking about that, just hoping it's fine.

He will have the 2nd leg set on Tuesday.  Another rod from the knee to the hip.   So Thanksgiving will not be at home   and our youngest is not allowed to visit    That's going to be difficult for him.  (though I just got an email from the social worker to see if she can work out an exception for Thanksgiving)  

The oncologist thinks he'll be starting chemo two weeks after the next surgery, but is waiting for approval from the ortho surgical onc.  Folfiri I think.   I assume that avastin will be added after several more weeks.

What an ordeal.

Its obviously no fun, but it sounds like he is in excellent hands (yours) and I'm glad that he's getting the right care on an Onc ward. 

It will be a different Thanksgiving for sure (I spent last years Thanksgiving drinking goup and sitting on the loo becasue my bowel resection was the next day), but you have each other and the children.

Blessings and healing thoughts continue your way.