Neurothopy

jean70T
jean70T Member Posts: 16
in Breast Cancer #1

Good afternoon everyone

  I am finally at a point where I can get into this site and ask some questions.  I have neurothopy - ends of fingers and feet.  Try to exercise them but doesn't seem to help much.  The feet seem to stiffen up more at night just about time to get in bed.  My last chemo was in August 2013 and the onc. says it could take 4-6 months before this goes away if it does.  If I need she will prescribe a medicine at that time but I don't really want anymore chemical in me.  I try to stay to the natural stuff as much as possible.  Any ideas would certainly be appreciated.

 Prayers and fast/great recoveries to all.

Roberta

 

Comments

  • CypressCynthia
    CypressCynthia Member Posts: 4,014 Member
    #2
    Below is a good link from

    Below is a good link from ACS.  I have had some mild neuopathy in my feet from taxotere, but have escaped the bad stuff.  When my feet get hot, I remove my shoes and socks and elevate them on a pillow and that has helped me.  Acupuncture may be something to try if you want to avoid medications.  Good luck!

     

    http://www.cancer.org/acs/groups/cid/documents/webcontent/002908-pdf.pdf

  • mtmom
    mtmom Member Posts: 59
    #3
    Me, too

    Roberta,

    I'm in the boat with you. We stopped chemo early because I got neuropathy (July 2013). We are blessed to have a naturopathic doctor who sees patients through the cancer center and so I use her alot! I'll tell you what I use, but please check with your doctors or if you can see a naturopath I would recommend that. I have been on Vitamin B6 since I started chemo and then added Lipoic Acid before Taxol started. I'm not taking the LA right now since I've been doing radiation, but I will start back with it again 3 weeks after treatment. I also have an essential oil massage blend from Doterra that is supposed to help with circulation. I still have numbness and tingling, but the pain has subsided quite a bit. And, I think it is fairly common to have to wait several months to see improvement. Your body has been to war...make sure and rest when you need it, exercise, eat, and stay hydrated!

    Blessings,

    ~Mtmom

  • tasha_111
    tasha_111 Member Posts: 2,072
    #4
    Peripheral Neuropathy

    I got it doing Chemo (Fdxtaxotare) 6 years ago, tries Lyrica and numerous other drugs... none worked.  Sorry but it seems to go on forever, not got any better after 6 years, sometimes gets worse. Sorry for the neg dx.  J xxxx

  • jojo2
    jojo2 Member Posts: 28
    #5
     

    I had good luck with

     

    I had good luck with reversal of loss of sensation in my right foot to my calf, with acupuncture. I didn't even realize I had no feeling in my calf until I had the needles inserted and felt nothing. After  I could feel my feet it felt like I was walking with hockey pucks in my shoes. I bought the ReBuilder  from a chiropractor online for $250. I used the water bath method, used Epsom salts to make the water more conductive and used it 2x/day for months. Then gradually decreased how often to not using it 3 yrs later. I still have some numbness but don't think of my feet with each step. If it really bothers me I get out the ReBuilder again. You have be compliant to make it work and it is a pain in the neck lugging water but it helped so much. A chiropractor nearby uses the Rebuilder, maybe you could try it there to see if it helps you. My onco group is looking into the Metanx med per my request. It is a new drug for diabetic neuropathy that some have had good luck with. Also read about cold lazer helping. Hope you find something that helps. jojo2

  • jean70T
    jean70T Member Posts: 16
    #6
    info on neuropothy

    Thanks ladies for your input.  Some days I try to keep positive that it will go away and then other days I get a bit frightened that it won't.  Fortunately, I don't have a lot of pain but I do feel like I am walking on big dirt clods and the tips of the fingers don't want to pick up things easily.  Am losing my nails so I keep cutting them back and there is no help there. 

    Have a blessed day all of you.

     

    Roberta

  • jean70T
    jean70T Member Posts: 16
    #7
    mtmom said:

    Me, too

    Roberta,

    I'm in the boat with you. We stopped chemo early because I got neuropathy (July 2013). We are blessed to have a naturopathic doctor who sees patients through the cancer center and so I use her alot! I'll tell you what I use, but please check with your doctors or if you can see a naturopath I would recommend that. I have been on Vitamin B6 since I started chemo and then added Lipoic Acid before Taxol started. I'm not taking the LA right now since I've been doing radiation, but I will start back with it again 3 weeks after treatment. I also have an essential oil massage blend from Doterra that is supposed to help with circulation. I still have numbness and tingling, but the pain has subsided quite a bit. And, I think it is fairly common to have to wait several months to see improvement. Your body has been to war...make sure and rest when you need it, exercise, eat, and stay hydrated!

    Blessings,

    ~Mtmom

    doterra

    Morning mtmom

      I have a question about the doterra essential oil.  You mention a blend that you have used on your feet - trying to find info on it but not sure what blend I am looking for.  Any info would be greatly appreciated.  Have a fantastic day as we travel through all of this.

     

    jean70T (Roberta)

  • 24242
    24242 Member Posts: 1,398 Member
    #8
    jean70T said:

    info on neuropothy

    Thanks ladies for your input.  Some days I try to keep positive that it will go away and then other days I get a bit frightened that it won't.  Fortunately, I don't have a lot of pain but I do feel like I am walking on big dirt clods and the tips of the fingers don't want to pick up things easily.  Am losing my nails so I keep cutting them back and there is no help there. 

    Have a blessed day all of you.

     

    Roberta

    Some things never change

    As you must know by now I am 17 year survivor and the miracle of life is I am still here.  At Diagnosis my odds for survival were less than 40% and boy I thought my life was over especially being so sick.  I had never met a diagnosed cancer patient ever so ill as I so my hopes dropped drastically...

    I was 36 at the time with one of the most aggressive forms of Breast Cancer and looking back I had been sick most of my adult years but in too good fo shape for anyone to really care about me being tired and sore.  I found my own lump at 36 and then another grew quickly a golfball size in less than a week in my arm pit.  No one needed to diagnose me it was clear to me I just needed help...

    Side affects were many and about 4 years into survival I could no longer struggle through all the pain.  The doctors wanted me to finish at all costs every therapy along the way and deal with the fall out later hoping it too would go away.  I was left to GP and he was ill equiped to deal with new ways of dealing with medication.  At one time I was on 7 different medications because there were layers and layers of pain.  One was methadone and if there is one thing I have learned it does our bodies no good to suffer and soon wanting to put a gun to my head.  I was given every kind of antidepresant under the sun by my GP because Cancer survivors suffer anxiety instead of looking for actual reasons I was in pain.

    I finally after 5 years found an all natural product to replace the 7 medications after much reserching because I had been in manufacturing for more than 30 years.  I know there is nothing natural about most processes and that goes for processed natural foods and vitamins.  Money truly is the most important thing no matter.  I took Morinda Tahitian Noni and it can only be this kind for they independantly get tested to prove what they say is true and Hawaian Hospitals are studying this very product.  It cost the same as taking all the meds in a month and I soon found I had more energy and sleeping better feeling awake not dozie in the morning.  I stayed on it for 5 years but lost my job and couldn't afford it and haven't been able to take it since always out of work it seems.  Check it out it is the most amazing thing I have seen yet... I do not sell it or anything so good luck to you.  You must know that I mud and tape drywall something I apprenticed in since my cancer battle.  Movement is the only thing I have found that keeps one in shape and well.

    Tara

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