What worked for you?

Loewenhart
Loewenhart Member Posts: 21
in Ovarian Cancer #1

Hello friends,

I'm looking for survivors of aggressive ovarian cancer and would like to ask:  What drug treatments/alternative therapies/foods worked for you?

Thank you for your time and sharing.

Comments

  • 2timothy1 7
    2timothy1 7 Member Posts: 345
    #2
    Treatments

    Hello,

    i was dx nov2011, 3c,grade3. 6 rounds taxol/cisplatin IV&IP: 7 months remission. April 2013 clinical trial with olaparib, 7 months stable and counting, ca 125 is 16 now

    What have you been treated with?

  • Lisa 00
    Lisa 00 Member Posts: 134 Member
    #3
    2timothy1 7 said:

    Treatments

    Hello,

    i was dx nov2011, 3c,grade3. 6 rounds taxol/cisplatin IV&IP: 7 months remission. April 2013 clinical trial with olaparib, 7 months stable and counting, ca 125 is 16 now

    What have you been treated with?

    what I do

    Hi there,

    Part of my ovarian tumor was clear cell, an agressive type.  I had taxol and carboplatin, 6 rounds plus 5 weeks of external radiation.  The only thing I really do differently now is drink a large glass of green tea every night.  Depending on how much I want to make, I'll brew 3 to 5 tea bags in a 2 cup pyrex measuring cup for 19 minutes.  Then I mix in ice, fresh lemon juice, agave and maybe a little water.  An oncologist said you shouldn't drink lots of green tea during your chemo treatment period because it somehow interferes with the chemo, so I started after treatments were over. 

    Anyway, I just made it to 5 years cancer free!  I wish you the best. 

  • Loewenhart
    Loewenhart Member Posts: 21
    #4
    2timothy1 7 said:

    Treatments

    Hello,

    i was dx nov2011, 3c,grade3. 6 rounds taxol/cisplatin IV&IP: 7 months remission. April 2013 clinical trial with olaparib, 7 months stable and counting, ca 125 is 16 now

    What have you been treated with?

    Hello
    Sounds llike you are

    Hello

    Sounds llike you are doing well.

    I have advanced ovarian cancer . I received 3 rounds of Carbo/taxol, then surgery, then another 3 ounds of Carbo/taxol. I've been referred for possible clinical trials ant Princess Margaret Hospital in Toronto and so I wait....

  • Loewenhart
    Loewenhart Member Posts: 21
    #5
    Lisa 00 said:

    what I do

    Hi there,

    Part of my ovarian tumor was clear cell, an agressive type.  I had taxol and carboplatin, 6 rounds plus 5 weeks of external radiation.  The only thing I really do differently now is drink a large glass of green tea every night.  Depending on how much I want to make, I'll brew 3 to 5 tea bags in a 2 cup pyrex measuring cup for 19 minutes.  Then I mix in ice, fresh lemon juice, agave and maybe a little water.  An oncologist said you shouldn't drink lots of green tea during your chemo treatment period because it somehow interferes with the chemo, so I started after treatments were over. 

    Anyway, I just made it to 5 years cancer free!  I wish you the best. 

    Thank you LIsa
    The

    Thank you LIsa

    The carbo/taxol didn't work for me. I asked about the radiation and the oncologist just shook her head. I've now been referred for possible clinical trials. I wait....and wait...I will try the green tea--can't hurt. 

  • Glad to be done
    Glad to be done Member Posts: 569
    #6
    Loewenhart said:

    Hello
    Sounds llike you are

    Hello

    Sounds llike you are doing well.

    I have advanced ovarian cancer . I received 3 rounds of Carbo/taxol, then surgery, then another 3 ounds of Carbo/taxol. I've been referred for possible clinical trials ant Princess Margaret Hospital in Toronto and so I wait....

    I was diagnosed January 2012

    I was diagnosed January 2012 with Stage 3c grade 3 after my hysterectomy.    I did six rounds of cisplatian/taxol IV/IP...  My CA level was in the high 200's before surgery.  The day I started chemo it was 19.  Today it is 5.8...  17 months cancer free so far.....

  • Loewenhart
    Loewenhart Member Posts: 21
    #7
    Glad to be done said:

    I was diagnosed January 2012

    I was diagnosed January 2012 with Stage 3c grade 3 after my hysterectomy.    I did six rounds of cisplatian/taxol IV/IP...  My CA level was in the high 200's before surgery.  The day I started chemo it was 19.  Today it is 5.8...  17 months cancer free so far.....

    That's wonderful news. Thank

    That's wonderful news. Thank you for sharing

  • kikz
    kikz Member Posts: 1,345 Member
    #8
    Diagnosed Stage IIIc on 3/16/2010.

    Three rounds taxol/carbo needed to shrink tumors enough for surgery.  Then complete hysterectomy,  oophorectomy and salpingectomy.  I then had eight more chemo infusions (too sick for 9th).  I had 5 taxol and 3 cisplatin  I was in remission for 18 months.  Completed 4 taxol/carbo this past spring/summer and am in remission again.  I have my first CA 125 next month and am scared of course.

    We all pretty much share the same journey.

     

    Karen

  • scatsm
    scatsm Member Posts: 296 Member
    #9
    Alexandra

    BOOM!

    you are too much (of a good thing).

    Jbahama...best of luck to you.

  • JoWin615
    JoWin615 Member Posts: 150 Member
    #10
    Haven't been here in awhile

    scatsm, you beat me to it!

     Alexandra, you rock.

    Loewenhart, I'm a lllC. I tolerated Carbo/taxol pretty well, recurred after seven months, then went on Carbo/Gemzar, which worked beautifully and was easily tolerated. It's been four months since I've had any chemo, and I am cautiously optimistic. Chemo saved my life.

    Karen, I love your profile pic!

    Even though I don't post here much, I feel as though I know you all. 

    Cheers, to remission!

    Jo

     

  • Mwee
    Mwee Member Posts: 1,338
    #11
    I'm here...

    diagnosed May 2006, 3C. Been through the surgery, initial round of chemo and then I enjoyed a 3 year remission. I've been on several kinds of chemo and what works on one of us may not be the silver bullet for another, but carbo/taxol did the trick for me the first time and cisplatin/gemzar is my best friend right now. It keeps me stable and if you saw me in the grocery store, I'll bet you've never guess. I eat lots of healthy foods because I always have, but I don't do any alterntive therapies. I do enjoy yoga and I listen to audiobooks while drifting off to sleep to quiet any "what if" thoughts.

    We're here to help in any way we can.      (((((HUGS)))))   Maria

  • Loewenhart
    Loewenhart Member Posts: 21
    #12
    Mwee said:

    I'm here...

    diagnosed May 2006, 3C. Been through the surgery, initial round of chemo and then I enjoyed a 3 year remission. I've been on several kinds of chemo and what works on one of us may not be the silver bullet for another, but carbo/taxol did the trick for me the first time and cisplatin/gemzar is my best friend right now. It keeps me stable and if you saw me in the grocery store, I'll bet you've never guess. I eat lots of healthy foods because I always have, but I don't do any alterntive therapies. I do enjoy yoga and I listen to audiobooks while drifting off to sleep to quiet any "what if" thoughts.

    We're here to help in any way we can.      (((((HUGS)))))   Maria

    Hi Maria 
    You are an

    Hi Maria 

    You are an inspiration. Do you get cisplatin/gemzar on an ongoing basis? 

    I work hard to keep those negative thoughts out of my mind but sometimes it's a struggle. I love this board as it connects me to people who totally understand.

    Hugs back to you

    Mo

  • Mwee
    Mwee Member Posts: 1,338
    #13
    Loewenhart said:

    Hi Maria 
    You are an

    Hi Maria 

    You are an inspiration. Do you get cisplatin/gemzar on an ongoing basis? 

    I work hard to keep those negative thoughts out of my mind but sometimes it's a struggle. I love this board as it connects me to people who totally understand.

    Hugs back to you

    Mo

    Dear Mo

    There's nothing like being understood! I get cisplatin/gemzar one week and gemzar the next. Then I get 2 weeks off. I know how scary that sounds, but it is doable. I can take time off when I wish, but I try to stick to the routine as best as I can.

    Those negative thoughts are with all of us. Sometimes they whisper and sometimes they scream. I hesitate talking about being on long term chemo. Most here will not have to do that, but I want you to know that I'm here.... 7 years after diagnosis..... loving every minute that I'm up and around!

                                                  (((((((HUGS)))))))   Maria

  • lovesanimals
    lovesanimals Member Posts: 1,366 Member
    #14
    Mwee said:

    Dear Mo

    There's nothing like being understood! I get cisplatin/gemzar one week and gemzar the next. Then I get 2 weeks off. I know how scary that sounds, but it is doable. I can take time off when I wish, but I try to stick to the routine as best as I can.

    Those negative thoughts are with all of us. Sometimes they whisper and sometimes they scream. I hesitate talking about being on long term chemo. Most here will not have to do that, but I want you to know that I'm here.... 7 years after diagnosis..... loving every minute that I'm up and around!

                                                  (((((((HUGS)))))))   Maria

    Dear Maria

    It is so good to hear from you.  I think about you often because I know you are on chemo for the long term.  Clearly, you are as strong and supportive as ever to all of your teal sisters!

    Wishing you and all of these strong women the best, especially as we head into the holiday season.

    Hugs back,

    Kelly

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