petscan result and bloods from yesterday

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Comments

  • very worried husband
    very worried husband Member Posts: 88
    #22
    Sorry

    Don't know what to say.. 

  • Unknown
    Unknown
    #23
    Alternative Treatments

    Sorry about the CEA spike.  Cancer: The gift that keeps on giving.

    So many alternative treatments out there, I have to admit that I'm at a stage of advancement with my last CEA at 250 and new mets, that I feel experimenting with alternative tx would be a gamble I can't afford. I realize that moving to still unproven phase 1 & phase 2 trials is a risk, but at least there is reliable scientific evidence that targeting genomes and genes in the cancer cells is the best way to kill them all instead of subduing them with conventional therapies that a few people respond very well to. Fact remains that everyone's cancer is a little different in one gene or another and that's the reason we all get different responses to chemos and alternative therapies.

    If one of these trials works for me I'll be expecting you to help my wife and I decide which sections of the barrier reef are best to dive. It'll take a year or so for us to reach the financial part of the big trip from Texas, but it's something we've been counting on as a bucket list mark-off.  She is very healthy and we're both master divers with experiencies in many adverse water conditions. Of course we prefer clear vis and mild currents and lots of fish.

    Hoping you do well in your current challenge.  Dan

  • Kathleen808
    Kathleen808 Member Posts: 2,342 Member
    #24
    Thinking of you Pete

    Thinking of you Pete. Thanks for sharing.  I pray you get a good plan and keep cancer dodown aloha,

    kathleen

  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    #25
    Kathleen808 said:

    Thinking of you Pete

    Thinking of you Pete. Thanks for sharing.  I pray you get a good plan and keep cancer dodown aloha,

    kathleen

    thanks, packing and flying next vaccine 10am duderstadt germany

    2013-11-07

     

  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    #26
    pete43lost_at_sea said:

    thanks, packing and flying next vaccine 10am duderstadt germany

    2013-11-07

     

    tace 10 mri found liver activity and lymph nodes

    these were treated a few days ago, its interesting how a clear pet and ct a few weeks ago, then a cea spike, now confirmed treatable disease.

    sometimes these recurrences comeback with a vengence, doing another tace in 2 weeks.

    got another split vaccine injection due next wednesday.

    started low dose xeloda 500mg for a week, so i am not as holistic as i used to be, but i am pragmatic.

    a few other colorectal friends are doing well with these therapies.

    a longer remission would have been nice, but i think i have learned what is ending my remissions, seeing what the doctors think. 

    I have been obsessed about many things, but the trigger of recurrence in the microtumour environment, well thats whats preoccupied my time.

    I am feeling fine, and very grateful to have these treatment options that are working for me.

  • janderson1964
    janderson1964 Member Posts: 2,215 Member
    #27
    pete43lost_at_sea said:

    tace 10 mri found liver activity and lymph nodes

    these were treated a few days ago, its interesting how a clear pet and ct a few weeks ago, then a cea spike, now confirmed treatable disease.

    sometimes these recurrences comeback with a vengence, doing another tace in 2 weeks.

    got another split vaccine injection due next wednesday.

    started low dose xeloda 500mg for a week, so i am not as holistic as i used to be, but i am pragmatic.

    a few other colorectal friends are doing well with these therapies.

    a longer remission would have been nice, but i think i have learned what is ending my remissions, seeing what the doctors think. 

    I have been obsessed about many things, but the trigger of recurrence in the microtumour environment, well thats whats preoccupied my time.

    I am feeling fine, and very grateful to have these treatment options that are working for me.

    So what do you think is

    So what do you think is triggering these recurrences.

  • sharpy102
    sharpy102 Member Posts: 368 Member
    #28
    pete43lost_at_sea said:

    tace 10 mri found liver activity and lymph nodes

    these were treated a few days ago, its interesting how a clear pet and ct a few weeks ago, then a cea spike, now confirmed treatable disease.

    sometimes these recurrences comeback with a vengence, doing another tace in 2 weeks.

    got another split vaccine injection due next wednesday.

    started low dose xeloda 500mg for a week, so i am not as holistic as i used to be, but i am pragmatic.

    a few other colorectal friends are doing well with these therapies.

    a longer remission would have been nice, but i think i have learned what is ending my remissions, seeing what the doctors think. 

    I have been obsessed about many things, but the trigger of recurrence in the microtumour environment, well thats whats preoccupied my time.

    I am feeling fine, and very grateful to have these treatment options that are working for me.

    hello

    Hi Pete:

     

    So I did not notice this thread until just got notified today about it. I was all happy reading your previous post (back from January) and now that they brought this to my attention I am a bit more sad, not pessimistic. Just sad to hear that it is not going as well for you as in your previous post. I hope you'll bounce back soon though! We need your strong will of fighting this beast! I wish you the very best, and hopefully you can eventually get rid of this monster!!! Please take care of yourself!!!

  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    #29
    janderson1964 said:

    So what do you think is

    So what do you think is triggering these recurrences.

    chronic infection driving crp, then vegf etc etc etc

    recurrence 1 maleria 4 weeks later cea 5 on 27 nov 2011

    recurrence 2 port infection 4 weeks later cea 23 on april 2013

    recurrence 3 port infection/inner ear infection burst drum 4 weeks later cea 21 3 november 2013

    suspect bacterial infection disables innate immune system and that tams move in and produce proangiogenic factors etc etc

    also considering any and all immunosuppressive factors ie stress, lack of sleep, nutrient deficiency, these occured in last few weeks before recurrence.

    also considering risk of falling out of ketosis.

    anyway we are treating the cea rise and likely rise from liver and lymph nodes.

    anything worth doing, takes effort and focus, and if at first you dont success try try again. 

    still dreaming of long term remission based on diet and immunotherapies

  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    #30
    sharpy102 said:

    hello

    Hi Pete:

     

    So I did not notice this thread until just got notified today about it. I was all happy reading your previous post (back from January) and now that they brought this to my attention I am a bit more sad, not pessimistic. Just sad to hear that it is not going as well for you as in your previous post. I hope you'll bounce back soon though! We need your strong will of fighting this beast! I wish you the very best, and hopefully you can eventually get rid of this monster!!! Please take care of yourself!!!

    thanks sharpy

    doing my best, I am very grateful for my present health and the opportunities before me.

    its the smallest, earliest recurrence likely ever detected, if it responds like my previous 9 taces well here comes another hopefully longer remission.

    I will take care of myself with the help of my doctors and friends.

     

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