Two and a half weeks in to radiation therepy...

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Comments

  • CivilMatt
    CivilMatt Member Posts: 4,724 Member
    #22
    swallowing is good

    Jamie,

    If he is like I was, you could hide anything you want in my drink and I wouldn’t know or care.

    Drinking lots of water is (maybe) the best advice I received from H&N central.  I was so concerned with swallowing; I felt it was the one thing I could control.  I drank so much water the neighbors were using me to put out small fires.

    Today, my swallower is different from before, but it does the job very well.

    Matt

  • j4mie
    j4mie Member Posts: 218
    #23
    CivilMatt said:

    swallowing is good

    Jamie,

    If he is like I was, you could hide anything you want in my drink and I wouldn’t know or care.

    Drinking lots of water is (maybe) the best advice I received from H&N central.  I was so concerned with swallowing; I felt it was the one thing I could control.  I drank so much water the neighbors were using me to put out small fires.

    Today, my swallower is different from before, but it does the job very well.

    Matt

    And once again Matt...

    I love your witty remarks!!! You get the award for making me laugh on a day when I really haven't felt like laughing much...Thank you Laughing

  • phrannie51
    phrannie51 Member Posts: 4,716
    #24
    Steve5 said:

    Love the Smoothie

    Jamie - Skins, Caps and Nats fans we are! - I am guessing I will be starting treatments in about 2 weeks so this is great information on nutrition - I do like spinach and welcome any additional information from others here on supplements and intake and regular feeding and hydration - I am practicing, I hope this does not sound ridiculous, but I am drinking water constantly to get use to doing this during and after treatment - is it easie with a straw, right now I am using a drinking bottle that I just keep filling and it has a big plastic straw in it. 

     

    Steve

    Good for you!!

    practice does make perfect!! Laughing  I still can't remember to haul my bottle around with me....I'm famous for having to stop and buy a bottle along the way wherever I go....I have two one liter bottles I keep stratigically in my house...one by the computer, one by my recliner.....all others I've lost somewhere...leave them at where ever I went. 

    I still have to get up and pee every night....not the 4 or 5 times I did during treatment, but I'm still sucking water down in a big way....after years of hardly ever drinking the stuff unless it was mixed in coffee, or pop, or tea.....but I was never seen just filling up a glass and drinking it.

    p

  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #25
    CivilMatt said:

    swallowing is good

    Jamie,

    If he is like I was, you could hide anything you want in my drink and I wouldn’t know or care.

    Drinking lots of water is (maybe) the best advice I received from H&N central.  I was so concerned with swallowing; I felt it was the one thing I could control.  I drank so much water the neighbors were using me to put out small fires.

    Today, my swallower is different from before, but it does the job very well.

    Matt

    Fire Starter...

    They wouldn't have had to use you as much if all of the chemo in your urine wasnt re-igniting the fires...

    JG

  • j4mie
    j4mie Member Posts: 218
    #26
    Skiffin16 said:

    Fire Starter...

    They wouldn't have had to use you as much if all of the chemo in your urine wasnt re-igniting the fires...

    JG

    OK John...

    Now Matt and you have me & Pat laughing! Laughter is the best medicine...right?!?! Laughing

  • CherieLW
    CherieLW Member Posts: 472
    #27
    Jamie, I just watched my dad

    Jamie, I just watched my dad go through treatment and he finished as of July 25th of this year.  It is doable I promise although he may feel a little worse before he feels better.  I was so scared and nervous and just feeling like you so unsure about everything.  I don't think that's something anyone ever wants to go through!

    Dad had sinus of the nasal cavity and in one lymph node.  He lost most of his taste by the 3rd week and before his last few treatments he was not eating so a feeding tube was put in.  That was so scary for me and my family, just the thought of it, but in reality it is not that bad.  Tracy, Phrannie and others on here have been really helpful with giving advice because they went through it themselves!  If not for the feeding tube, my dad would have been starving and dealing with lack of nutrition.  He did well with staying active part of the days all through treatment, even if it was an hour or so he would get out and do something.  He did sleep more though and have mucous build up, sore throat.  He lost a band of hair around the bottom from chemo.  He had 3 chemos and 35 rads.  Anyway, I just want to give you a little insight on what you can expect, not scare you!

    A few weeks after treatment, dad tried to eat but could only taste very little.  He had problems chewing and swallowing with all the mucous and soreness.  I' would say the past 2 months he has really improved on eating, but still remains on the peg due to lack of apetite. He does really good with it though and it doesn't scare me anymore although I can't wait for it to be gone!  Dad got energy back pretty quickly although he does tire a lot easier now.  He's getting back to abi-normal as they say!  Even better nose, is all that nasty chemo and rads did its job and my dad is now cancer free!  So try to look at the positive side of all of this as hard as it is.  Hang in there and I'm praying for you guys!  Things will look up it just takes time!  Before you know it he will be done with treatments and hopefully get some news that his cancer has vanished!

  • j4mie
    j4mie Member Posts: 218
    #28
    CherieLW said:

    Jamie, I just watched my dad

    Jamie, I just watched my dad go through treatment and he finished as of July 25th of this year.  It is doable I promise although he may feel a little worse before he feels better.  I was so scared and nervous and just feeling like you so unsure about everything.  I don't think that's something anyone ever wants to go through!

    Dad had sinus of the nasal cavity and in one lymph node.  He lost most of his taste by the 3rd week and before his last few treatments he was not eating so a feeding tube was put in.  That was so scary for me and my family, just the thought of it, but in reality it is not that bad.  Tracy, Phrannie and others on here have been really helpful with giving advice because they went through it themselves!  If not for the feeding tube, my dad would have been starving and dealing with lack of nutrition.  He did well with staying active part of the days all through treatment, even if it was an hour or so he would get out and do something.  He did sleep more though and have mucous build up, sore throat.  He lost a band of hair around the bottom from chemo.  He had 3 chemos and 35 rads.  Anyway, I just want to give you a little insight on what you can expect, not scare you!

    A few weeks after treatment, dad tried to eat but could only taste very little.  He had problems chewing and swallowing with all the mucous and soreness.  I' would say the past 2 months he has really improved on eating, but still remains on the peg due to lack of apetite. He does really good with it though and it doesn't scare me anymore although I can't wait for it to be gone!  Dad got energy back pretty quickly although he does tire a lot easier now.  He's getting back to abi-normal as they say!  Even better nose, is all that nasty chemo and rads did its job and my dad is now cancer free!  So try to look at the positive side of all of this as hard as it is.  Hang in there and I'm praying for you guys!  Things will look up it just takes time!  Before you know it he will be done with treatments and hopefully get some news that his cancer has vanished!

    Thank you!

    Thank you for your kind words and encouragement! One day at a time for sure...

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