Soreness

Your brother should have an after hours number for his oncologist and his surgeon.  He should not have to wait until Monday visit to get some recommendaitons on help.

As for nutrition, it is very difficult to think of eating when you know that pain will come after.  Unless he has other dietary restrictions perhaps he could add Boost, Ensure, Glucerna or other enhanced drink to help with nutrition.  You might also ask if he can take any pro-biotics to help get the good digestive bacteria back in his system.

He should also be able to take more than the recommended dosage of the imodium...with the doctor's approval...as I know others on here have.

In all cases run all these things past his doctors before doing.

Others will be along shortly to give their own experiences with these issues and what helped them.

Hope he finds relief soonest.

Marie who loves kitties

UncleBuddy said:

Thanks Marie

My dad came by to drop off some paperwork for my brother, so I found this out this afternoon. His doctor did tell him to take a stronger does of Imodium. I will take your advice and give her a call. He has been through so much already, I don't want him to be uncomfortable. I thought I'd give the Desitin 24 hours, but she may have something stronger. Thanks for the advice. I will ask his doctor about all of this. This is why I love this site.

Is this normal for these drugs. I know last time he had chemo, he was pretty much fine until his last round.

i use the BRAT diet (bananas,rice,applesauce,toast)and it usually slows my bowels down also i take a hot shower and after i put A and D ointment on my hiney all this works for me ,he may have to try a few different things before he finds what works for him.hang in there it is a rough road we have to travel...Godbless...johnnybegood

...BRAT diet.

Also he is taking so much drugs. Ask the oncologist if reducing the dose by 25% were possible. Many patients here got a big relief after that.

Wish you guys good luck. You are an awesome brother. Try to be more proud and less angry. This isn't fair, useless to feel guilty or angry.

Laz

UncleBuddy said:

LazI am a sister, LOL. I am

Laz

I am a sister, LOL. I am very proud of my brother and how he is handling all of this. I am angry at the diease, no one else. I am just venting, I never, ever show this to my brother. I am taking him for his chemo treatment on Monday, I will find out about reducing the amounts. I think they are hitting it hard because he is stage 4.

 

Johnnybegood and wintermarie, I will see if the A&D is better. I'll suggest it to him. I will also suggest the wipes and BRAT. He tells me he's going a lot, but didn't say it was diarreah, so I should check that with him. I know the dr told him how much Imodium he can take. I just assumed it was loose. Ugh, I'm trying...

Dear Lin,

It does seem so unfair that he has to deal with stage four cc in addition to having a developmental disability.  Life has thrown him several major curve balls.  It sounds like he is a very special person.  It's great that he has a wonderful sister in his corner rooting for him.  Sadly, it seems to be a benefit to patients who have a strong family advocate.  It sounds like your a wonderful advocate on your brothers behalf.  Stay strong for him.  Life can seem so cruel, at times....

Chelsea

Rather than IMODIUM  get a prescription for LOMOTIL. It stops diarrhea cold.  For his raw butt, if it is burning, try RADIAGEL from Wallmart.  Also use Equate flushable Wipes rather than toilet paper.  These are also available at wallmart.  Maybe these will make his life easier. Good Luck to you both.

Although the previous suggestions are surely helpful, a spray bottle of water to cleanse and then a gentle pat dry, or air dry, may also be more comfortable.  

Very sorry to hear about your Uncle.  There is no doubt that life does not seem fair sometimes.

Art

danker said:

Lin

Rather than IMODIUM  get a prescription for LOMOTIL. It stops diarrhea cold.  For his raw butt, if it is burning, try RADIAGEL from Wallmart.  Also use Equate flushable Wipes rather than toilet paper.  These are also available at wallmart.  Maybe these will make his life easier. Good Luck to you both.

that is the one med that helped me with the raging diarrhea I had on FOLFOX.  You can also ask about how best to take it.  My doc told me to take 6 of the 8 total pills for the day all at once, then the final two 30 minutes later if things hadn't stopped.  This is NOT how they tell you take it on the label, so you def want to check with the doctor first before trying this approach.  I will say, though, that it stopped things cold, and this was after taking boatloads of Immodium, and every other thing you can think of, including tincture of opium (which sounds like it should be fun, but isn't).

I also sat in a warm bath tub for hours on end.  This helped ease the pain (although I hate baths to this day as a result).

You're a wonderful niece and your Uncle Buddy is very lucky to have you!

Hugs to you both~AA

Sorry Lin, but this thread reminds me a bit of a "who's on first" skit. 

I'm sorry your poor brother has been through so much.  Certainly not fair.  In some ways, maybe it's easier for him that he doesn't grasp the situation.   Hang in there...