Here go the nerves again

It usually means something, but one step at time and you know WHATEVER it is, the warriors here will help.  It could mean anything, so take some deep breaths and come back and let us know.  While you have your loved ones with you, there is a whole world out here who supports you as well.

Let us know.

<<HUGS>>

Oh girl I can honestly say I know exactly how you feel. I was shopping when I got a call saying the doctor wants to see you today. I'll be thinking of you all day especially at 3:30,good luck!

tattooedtxgirl said:

Many thanks

Thanks for the support!!

It means a lot to have a place to come and be able to vent and ask questions.. and find comfort in a time when we need it the most.

I will keep everyone posted as I find out.

 

Wishing everyone the very best!!

 

Crystal

Crystal:

I hope everything went well today at your appointment.   I hope the doctors didn't use the scare tactic to make you do something quickly.  Just know, if there is something you are unsure or it just doesn't feel right to you, please get a second opinion.

Sending you support and wishing you comfort.

Kathy

ConnieSW said:

Please know

Im thinking about you.

Hi Crystal!

I also wanted to let you know I have been thinking about you...following your posts up until your surgery. Glad all went well on that front and hope anything you hear is not as bad as what we can conjure up in our heads.

I always swear the waiting is the worst as I go thru that period of anxiety where I am freezing up or numbing out or I can't turn my brain off. But then reality and reason kick in and I realize it is always better to know...better....... but not neccesarily easier.

Let us know how you make out when you're ready...

Kathy

tattooedtxgirl said:

UPDATE

Surgeon told us yesterday that all 4 lymph nodes came back clean, pelvic washing came back clean, all tests show NED....

However, the tumor started to invade the uterine wall and the surgeon isn't comfortable with my reoccurance chance.

He wants me to do internal Radiation once a week for three weeks and chemo once a week for three weeks. 

I don't go back for my follow up till Nov 4th. Surgeon said he'd like me to start treatment last week of Nov.

Still not sure how I feel. HAPPY for NED for sure!

This process is a trying one.

 

Hope you are all doing well!!

Hugs ladies,

Crystal

Oh, Crystal, when you didn't post right away, I was afraid you had gottEn really bad news.  This sounds doable.  What stage did they give you?  What kind of chemo?

tattooedtxgirl said:

UPDATE

Surgeon told us yesterday that all 4 lymph nodes came back clean, pelvic washing came back clean, all tests show NED....

However, the tumor started to invade the uterine wall and the surgeon isn't comfortable with my reoccurance chance.

He wants me to do internal Radiation once a week for three weeks and chemo once a week for three weeks. 

I don't go back for my follow up till Nov 4th. Surgeon said he'd like me to start treatment last week of Nov.

Still not sure how I feel. HAPPY for NED for sure!

This process is a trying one.

 

Hope you are all doing well!!

Hugs ladies,

Crystal

*Hugs*  I know its not the news you were hoping for, but I am glad that it is also not the news you were dreading.  You can do this!  And you have all these fabulous women here to help you do it.

Lisa 00 said:

internal radiation

Crystal,

If I were you, knowing what I know about internal radiation, I would really educate myself as to what my situation is and if I really needed 3 rounds of internal radiation.  I suppose what I am really saying, is that I think you should consider a second opinion. 

It sounds like your uterine cancer (endometriod adenocarcinoma) was not that advanced, but I really can't tell.  Mine was stage 2B, positive washings, 75% wall invasion into the uterine wall and it was into the cervix.  I only got 2 internal radiation treatments which left me with a myriad of permanent 'changes'.  (I also got 5 weeks of external radiation and 6 rounds of chemo)  

Three internal radiation 'treatments' sounds like overkill to me.  I'm just trying to warn you about the negative effects of internal radiation, which they won't really tell you about, and my feeling that you may find a second opinion helpful.         

I agree that it is important to understand the reasoning for your individual treatment options.

I do know from my conversations they take into account:

the type - MMMT versus non, if non than what grade

the size of the polyp or tumor

how far it went into the wall

lymph node review, how many did they check as they don't check them all

washings, lymphatic invasion (you can see this from your copy of the pathology report

Based on this they should be able to help you understand what your treatment is attending to

i do know that different places do the internal radiation differently but in the end the dosage might be the same. For example I had 3 internal and Dana Farber would have done 6 with 1/2 dosages.

Another point is everyone is different, some folks have issues from the internal and others don't as I haven't.

but asking and understanding should make you feel good about the treatment. If it doesn't make sense you should seek a second opinion as I did and was glad i did

But all in all the outcome is looking mangeable, which is nice

Sharon

Hybridspirits said:

treatment

I agree that it is important to understand the reasoning for your individual treatment options.

I do know from my conversations they take into account:

the type - MMMT versus non, if non than what grade

the size of the polyp or tumor

how far it went into the wall

lymph node review, how many did they check as they don't check them all

washings, lymphatic invasion (you can see this from your copy of the pathology report

 

Based on this they should be able to help you understand what your treatment is attending to

 

i do know that different places do the internal radiation differently but in the end the dosage might be the same. For example I had 3 internal and Dana Farber would have done 6 with 1/2 dosages.

Another point is everyone is different, some folks have issues from the internal and others don't as I haven't.

but asking and understanding should make you feel good about the treatment. If it doesn't make sense you should seek a second opinion as I did and was glad i did

But all in all the outcome is looking mangeable, which is nice

Sharon

 

 

But I'm also so relieved that while further treatment is being recommended, your disease sounds very treatable.  Are you still considered Stage 1?  As Sharon outlined above, the type of the cancer (Type I - endometroid adenocarcinoma vs. Type 2 (UPSC, MMMT, etc), the grade, size of the tumor, your age, lymph node involvement, etc and very importantly, how far it penetrated the uterine wall are key factors in recommending adjuvanct treatment.  Do you know all this information about your cancer?  Do you have a copy of the pathology report?  You must have other risk factors for recurrence than just a little bit of uterine wall penetration?????  Like a higher grade or type ????

Good luck as you move forward.  I hope you do that armed with all the information you need whether that involves a second opinion or not.  I just have to add that chemo is very doable (I had it for breast cancer), but it is also a very serious and risky experience.  We all say it wasn't so bad, but most of us sure hope we never have to do it again.  I have heard there are many issues with internal radiation, but I'd do it in a heartbeat if I felt it was necessary to save my life.  Same with chemo.  Just be comfortable that it's necessary.

Suzanne