Mixed Bag - CA125 up by CT pretty good

JulieBelle
JulieBelle Member Posts: 61
in Ovarian Cancer #1

Hi all

Sorry I haven't been on for a while.  I have been lurking and reading but not quite ready to post.

Last week more results and my second cycle of Etopocide. Unfortunately my CA125 went up again from 534 to 650.  However chest abdo and pelvic CT pretty good.  Lungs showed two areas of concern which we may attack with radiation and abdomen and pelvic no change!   Something to cheer about!   

I had chemo Tues, Wed & Thurs and Friday and over the weekend could barely get out of bed.  I have never felt like that before.  Totally just wanted to sleep, ached all over and then add a bit of misery to that mix!   Now I have angry red hot swellings on my right foot, knee and thigh (super attractive!) and heard last night some infection showing up again in my blood test!   I am worried I will end up in hospital again today (just had two weeks in a month ago).  Thankfully my temperature is still on the straight and narrow.  I go to Oncology first thing this morning for Avastin and to change the dressing on my PICC line then to the Oncologist.   (I will pack a little bag just in case!)

After 22 months since diagnosis and 23 cycles of various chemos I guess my body is feeling pretty battered & bruised!

Almost forgot to mention - it seems so minor now - I lost my hair again this week so pulled out the scarves etc.

Wish me luck!!!   Cheers, Julie      

Comments

  • kikz
    kikz Member Posts: 1,345 Member
    #2
    I do wish you much luck Julie.

    You have gone through so much in a short time.  I love your beautiful smile and hope you get some relief soon.  

    Karen

  • kikz
    kikz Member Posts: 1,345 Member
    #3
    I do wish you much luck Julie.

    You have gone through so much in a short time.  I love your beautiful smile and hope you get some relief soon.  

    Karen

  • Alexandra
    Alexandra Member Posts: 1,308
    #4
    Dear Julie! I wish you good luck and good karma

    I am so sorry about all the crap you are going through. You deserve a break. Keep up the good fight and your beautiful smile, kick cancer's butt and hair will soon come back. I should be losing mine in a month or so and honestly I couldn't care less.

    Hugs,

    Alexandra

  • scatsm
    scatsm Member Posts: 296 Member
    #5
    Wishing you the best Julie!

    Your upbeat attitude and gentle humor leave me in awe.

    Your body may be battered and bruised but your spirit isn"t!

    I hope you can stay out of the hospital!

    Susan

     

  • JulieBelle
    JulieBelle Member Posts: 61
    #6
    Thanks girls - I have shingles!!

    At last a diagnosis so it will be a quiet week for me.  This came out of the blue!   Dr was considering gout and infection and its Shingles.   So glad to have an answer and have started on the medication.

     

    I guess I am lucky in that we are heading into summer with my baldness so I will have a pretty cool head!!!

     

    Cheers Julie

  • wholfmeister
    wholfmeister Member Posts: 315
    #7
    JulieBelle said:

    Thanks girls - I have shingles!!

    At last a diagnosis so it will be a quiet week for me.  This came out of the blue!   Dr was considering gout and infection and its Shingles.   So glad to have an answer and have started on the medication.

     

    I guess I am lucky in that we are heading into summer with my baldness so I will have a pretty cool head!!!

     

    Cheers Julie

    We can count on you!

    You find a way to make shingles sound like a good thing! 

    Keep your positive attitude!

    you'll be a winner!

  • lovesanimals
    lovesanimals Member Posts: 1,366 Member
    #8
    wholfmeister said:

    We can count on you!

    You find a way to make shingles sound like a good thing! 

    Keep your positive attitude!

    you'll be a winner!

    Dear Julie

    What a pain that you have to deal with shingles on top of everything else.  Please know that I'm cheering you on and hoping that you beat both shingles and cancer real soon!

    Hugs,

    Kelly

  • Alexandra
    Alexandra Member Posts: 1,308
    #9
    JulieBelle said:

    Thanks girls - I have shingles!!

    At last a diagnosis so it will be a quiet week for me.  This came out of the blue!   Dr was considering gout and infection and its Shingles.   So glad to have an answer and have started on the medication.

     

    I guess I am lucky in that we are heading into summer with my baldness so I will have a pretty cool head!!!

     

    Cheers Julie

    OMG Julie, when it rains it pours

    Like you need more health problems! I hope your new medication is working and you will get rid of shingles fast.

    I admire how you always see the glass half-full. While you're heading into summer, we are bracing for another cold Canadian winter. Yuck!

    Hugs,

    Alexandra

    PS. That Peritoneal board of yours is awefully quiet. Come over to ovarian board full time. No one here has ovaries anyways.

     

  • JulieBelle
    JulieBelle Member Posts: 61
    #10
    Alexandra said:

    OMG Julie, when it rains it pours

    Like you need more health problems! I hope your new medication is working and you will get rid of shingles fast.

    I admire how you always see the glass half-full. While you're heading into summer, we are bracing for another cold Canadian winter. Yuck!

    Hugs,

    Alexandra

    PS. That Peritoneal board of yours is awefully quiet. Come over to ovarian board full time. No one here has ovaries anyways.

     

    Meds starting to work

    Hi Alexandra - yes the meds seem to be cutting in today and starting to feel a little better thankfully.

    I don't think I would handle your winters very well - our winters are probably more like for summer for many of you in the far north!!

    It is a shame the Peritoneal board is so quiet - But you are right, not an ovary to be seen on either!! 

     

    Cheers,

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