throat cancer

Glad you found our little slice of the internet.

Your body has been through a lot these last few weeks.....and you did good....REALLY good eating all the way through.  I did 35 rads along with Cisplatin....but then had another 3 treatments of Cisplatin/5FU after radiation was over....so I basically had two endings to my treatment.  While I had an appetite in my mind, my body wasn't as coopertive....I'd watch food shows, and be starving, but when it came time to actually eat something....well....three or four bites/sips...and that was plenty. 

Everybody is different....some regain tastebuds, and some saliva quickly after treatment (say 3 weeks or so).....some of us are far slower in the return to normal.  I'm a year out of treatment now, and have regained maybe 50% of my saliva, and 70% of my taste...I just figure, no biggie.....eat to live, rather than live to eat.  A couple of folks on here got most of everything back within 2 years....so I'm keeping that in my horizon.  I slowly regained my energy over a four or five month time period....tho I did go back to work full time within 6 weeks of finishing treatment.

 Healing from this treatment comes in weeks and months....never days.....keep your expectations in check, and enjoy not having to go to rads everyday....and only one more Cisplatin treatment....WHOO HOO!!  

p

I had I lymph node removed- an unknown primary- HPV positive - 1 months post treatment. Still having issues with taste, saliva, neuropathy and hearing loss, not to mention the lymphodima ( duck neck) under the chin. I had almost the same treatment as you although I don't know what they targeted with you. Finally after 10 months I am almost able to eat whatever I want. The process of recovery is not measured in days or weeks but rather months and years. Learn to adapt. I now blend every morning kale and fruits along with flax seeds and nuts and a scoop of whey protein. I wasn't able to drink that until a few months after treatment. I too lost about 30 lbs. guess we were lucky. Didn't need a feeding tube. When I was just out of treatment French toast, noodles mixed with an egg, ensure kept me going. Melted American cheese on various breads kept me full. Good luck in your fight. Others on this sight are more knowledgeable than me. Look to them for answers and check out the super thread

Roar said:

Had he same treatment

I had I lymph node removed- an unknown primary- HPV positive - 1 months post treatment. Still having issues with taste, saliva, neuropathy and hearing loss, not to mention the lymphodima ( duck neck) under the chin. I had almost the same treatment as you although I don't know what they targeted with you. Finally after 10 months I am almost able to eat whatever I want. The process of recovery is not measured in days or weeks but rather months and years. Learn to adapt. I now blend every morning kale and fruits along with flax seeds and nuts and a scoop of whey protein. I wasn't able to drink that until a few months after treatment. I too lost about 30 lbs. guess we were lucky. Didn't need a feeding tube. When I was just out of treatment French toast, noodles mixed with an egg, ensure kept me going. Melted American cheese on various breads kept me full. Good luck in your fight. Others on this sight are more knowledgeable than me. Look to them for answers and check out the super thread

Ben all the good stuff is right over that next hill over there. You are doing well. Don't sweat the white count thing, a small hurdle. We had similar  cancers and similar treatments at similar ages. I'm doing very well four years out. Give yourself 6 months. You have been to hell, it takes a little time to crawl back. Congrats on finishing soon and Welcome.

benjamin2121 said:

I am sorry I have stage

I am sorry I have stage 4 larynx cancer ...the crazy thing is the waiting....they said they want us to come back in three months to see if the treatment worked...did you have to wait that long for your pet scan and if so what besides faith got you through

 

B

b, that is the same cancer i had.  i had 35 rad tx.  it recurred 1.5 yrs afterwards and i had a complete laryngectomy.  i assume u had rads and chemo?  btw, several people here had to skip a tx b/c of low wbc.  like the others said, it is going to take time and patience to get back to any type of "normal".  in fact, u will actually find u have a "new" normal.  john calls us "abi-normal" and i think hes right...lol.  be patient and enjoy each day and each little improvement.

dj

Sounds like your doing pretty well. Like others have said we are all different. I lost 92 pounds in about 5 months with the operation and radiation. Keep forcing yourself to eat and drink. Protein drinks helped me alot. I finished radiation the end of March and was out doing yard work at a very slow pace the end of April.

You found the gem of websites the folks in here can coach you through a championship series.

Heal on

      Jeff