Judy (wawaju04976)

annalexandria said:

Wondering too!

Check in with us if you can, Judy.  We're thinking of you!

I had a very bad week. Friday (a week ago Friday) I was prescribed a fentinyl (sp?) patch. Saturday I had a rash which I didn't give much thought about. I developed a headache so I couldn't go to my niece's wedding. I remember nothing from there. Jim called the cancer center; they thought the cancer had gone to my brain. Jim said no, but when the cancer center called back, they said I needed to hit the hospital. What happened from there on I became dilirious with this medication. I refused to put clothes on to go to the hospital. Heck, I refused to go to the hospital and Jim and to call for an ambulance. Then I guess I kept pulling my curtain back in my room and pulling my johnny up. I kept telling Jim I hated him, couldn't stand him, etc.It took an mri, a couple catscans, to figure out there were no infections.I saw my oncologist Wednesday. He apologized for the medication, then took Jim out and told Jim he didn't think I'd be walking out the doors of the hospital. This is the guy who gave me my 20 weeks of folfox. Everytime we'd ask what the goal was, he'd say he'd reached his goal for me, what did we want. Mentioned surgery a while back, he said, no that won't be necessary. So I am looking for a totally different facility. I'll miss another week of school, as I still need to strengthen up.

wawaju04976 said:

Week from Heck

I had a very bad week. Friday (a week ago Friday) I was prescribed a fentinyl (sp?) patch. Saturday I had a rash which I didn't give much thought about. I developed a headache so I couldn't go to my niece's wedding. I remember nothing from there. Jim called the cancer center; they thought the cancer had gone to my brain. Jim said no, but when the cancer center called back, they said I needed to hit the hospital. What happened from there on I became dilirious with this medication. I refused to put clothes on to go to the hospital. Heck, I refused to go to the hospital and Jim and to call for an ambulance. Then I guess I kept pulling my curtain back in my room and pulling my johnny up. I kept telling Jim I hated him, couldn't stand him, etc.It took an mri, a couple catscans, to figure out there were no infections.I saw my oncologist Wednesday. He apologized for the medication, then took Jim out and told Jim he didn't think I'd be walking out the doors of the hospital. This is the guy who gave me my 20 weeks of folfox. Everytime we'd ask what the goal was, he'd say he'd reached his goal for me, what did we want. Mentioned surgery a while back, he said, no that won't be necessary. So I am looking for a totally different facility. I'll miss another week of school, as I still need to strengthen up.

that sounds so terrible!  It's definitely time to fire that doctor of your.  He sounds like an insensitive jerk.

I believe the fentanyl patch (I don't know how to spell it either-wish CSN had a spell check) can have some very nasty side effects.  Did they take you off of it?  And are you still in the hospital or back home now?

Keep us posted if you can-we worry when we don't hear from folks.

Hugs coming your way~AA

wawaju04976 said:

Week from Heck

I had a very bad week. Friday (a week ago Friday) I was prescribed a fentinyl (sp?) patch. Saturday I had a rash which I didn't give much thought about. I developed a headache so I couldn't go to my niece's wedding. I remember nothing from there. Jim called the cancer center; they thought the cancer had gone to my brain. Jim said no, but when the cancer center called back, they said I needed to hit the hospital. What happened from there on I became dilirious with this medication. I refused to put clothes on to go to the hospital. Heck, I refused to go to the hospital and Jim and to call for an ambulance. Then I guess I kept pulling my curtain back in my room and pulling my johnny up. I kept telling Jim I hated him, couldn't stand him, etc.It took an mri, a couple catscans, to figure out there were no infections.I saw my oncologist Wednesday. He apologized for the medication, then took Jim out and told Jim he didn't think I'd be walking out the doors of the hospital. This is the guy who gave me my 20 weeks of folfox. Everytime we'd ask what the goal was, he'd say he'd reached his goal for me, what did we want. Mentioned surgery a while back, he said, no that won't be necessary. So I am looking for a totally different facility. I'll miss another week of school, as I still need to strengthen up.

Thank goodness you are feeling better.  This story is just crazy!! I think your making the right decision with finding a new facility. It sounds like that was pretty traumatizing and not something you would want to repeat! 

Was this all from the medication?? Thankfully you have Jim!

All my best to you!

wawaju04976 said:

Yep, the patch put me into delirium.

 

The dose was too large, to begin with. Then the pharmacist was shocked the oncologist would prescribe this on top of oxycodone.

Judy

Judy, I don't blame you for changing facilities. I have done it a couple of times.

jen2012 said:

Wow Judy - quite the ordeal,

Wow Judy - quite the ordeal, but glad you are on the mend.   Now I'm wondering if that is what happened with my mom a couple of weeks ago.  She's been using the pain patch for surgical and nerve pain (not cancer related) but after an angioplasty they were giving her percocet by shot (or IV...can't remember) and it made her crazy.  She was accusing the doctors of trying to kill her and ordered them out of her room.  Not like her!

Anyhow, I hope your new docs are a great help to you.

And did your husband have his procedure?

And what about you?  Any further info on the mammo results?

Whew...just typing all that made me exhausted.  You need to get a break!

Btw, on the topic of pain meds causing delusion, that is absolutely the case.  I was given heavy duty opiates combined with a tad too much Ativan after one of my surgeries, and I spent two days basically psychotic.  Kept answering the phone when it wasn't ringing, petting cats who weren't there (I did kind of wonder what kind of weird hospital allowed cats, but I like cats, so ok), and I sent a mysterious text message to my daughter that appeared to be in some sort of code.  Sounds funny, but it was actually pretty scary.

If you have a loved one in the hospital who starts acting crazy, the first thing to look at is what's going on with the medications.  I didn't return to reality until a nurse noticed how much Ativan I was being given (they had based it on what I told them I took at home, then gave me the same amount in IV form, which is NOT THE SAME, sheesh), and had the dosage reduced.  Cats disappeared, phone stopped ringing, and I was back to as close as I ever get to normal.

Scary.

wawaju04976 said:

Week from Heck

I had a very bad week. Friday (a week ago Friday) I was prescribed a fentinyl (sp?) patch. Saturday I had a rash which I didn't give much thought about. I developed a headache so I couldn't go to my niece's wedding. I remember nothing from there. Jim called the cancer center; they thought the cancer had gone to my brain. Jim said no, but when the cancer center called back, they said I needed to hit the hospital. What happened from there on I became dilirious with this medication. I refused to put clothes on to go to the hospital. Heck, I refused to go to the hospital and Jim and to call for an ambulance. Then I guess I kept pulling my curtain back in my room and pulling my johnny up. I kept telling Jim I hated him, couldn't stand him, etc.It took an mri, a couple catscans, to figure out there were no infections.I saw my oncologist Wednesday. He apologized for the medication, then took Jim out and told Jim he didn't think I'd be walking out the doors of the hospital. This is the guy who gave me my 20 weeks of folfox. Everytime we'd ask what the goal was, he'd say he'd reached his goal for me, what did we want. Mentioned surgery a while back, he said, no that won't be necessary. So I am looking for a totally different facility. I'll miss another week of school, as I still need to strengthen up.

I am so glad you are still with us! With an onc like that it's a wonder that you are.

A new onc and facility sounds like the only reasonable thing to do, the quicker the better!!!

I'm glad you are doing better!!

Winter Marie

wawaju04976 said:

Week from Heck

I had a very bad week. Friday (a week ago Friday) I was prescribed a fentinyl (sp?) patch. Saturday I had a rash which I didn't give much thought about. I developed a headache so I couldn't go to my niece's wedding. I remember nothing from there. Jim called the cancer center; they thought the cancer had gone to my brain. Jim said no, but when the cancer center called back, they said I needed to hit the hospital. What happened from there on I became dilirious with this medication. I refused to put clothes on to go to the hospital. Heck, I refused to go to the hospital and Jim and to call for an ambulance. Then I guess I kept pulling my curtain back in my room and pulling my johnny up. I kept telling Jim I hated him, couldn't stand him, etc.It took an mri, a couple catscans, to figure out there were no infections.I saw my oncologist Wednesday. He apologized for the medication, then took Jim out and told Jim he didn't think I'd be walking out the doors of the hospital. This is the guy who gave me my 20 weeks of folfox. Everytime we'd ask what the goal was, he'd say he'd reached his goal for me, what did we want. Mentioned surgery a while back, he said, no that won't be necessary. So I am looking for a totally different facility. I'll miss another week of school, as I still need to strengthen up.

Sorry to hear that happened to you.  You were in the fishbowl!  lol  That's what my sister and I call it obviously because you're being watched like a fish!  I was in the fishbowl due to medication.  I couldn't stop pacing and at some point couldn't stop jumping up and down like I was on crack so my friend from work said Helen, you're not yourself and I need you to listen to me, I need you to call a relative and tell them to come to work and get you and take you to the ER.  Turns out the medication was making me crazy.  I had been walking around work all day telling people that this was awful and I felt suicidal.  Unfortunately, I remember it all and so do they!  This stuff can be very dangerous.  Glad you are okay.  Sounds like a new facility or at least a new doctor is a good idea.