Axitinib / Inlyta

angec said:

Well Ron, on the brighter

Well Ron, on the brighter side of things.... always a brighter side right?  This drug has brought you back to puberty!  Hail Inlayta!  Be careful on the drive.

Ron, I've sent you are Mily Cyrus poster. I know that in our day it was Farah Fawcette. But, I thought it would go with the zits.

GSRon said:

Oh my...  OK, so I learned a

Oh my...  OK, so I learned a lot today... not much good... per se.   Well, you see that up until today, none of my family knew about my Cancer, last year's operation etc.   But as I am attending my Aunt's funeral this week... I knew it would come out.   So I told my one cousin this morning, and needless to say the word spread faster than my Mets...   So, I just talked to my other cousin.. had not talked to her is about 40 years... well her son has polycystic kidney disease, she has thyroid issues (Cancer..?), and another cousin has Ovarian Cancer... Needless to say there is a lot of Cancer within my family..!  I did send the CSN link to my one Cuz, and I suggested she pass it on to those that need it...   I can only wonder if somehow we all got bad genes...??

Be Well All..!!!

Ron 

What an eye opener for you today!   I see alot of cancer going on today and I am not too sure it all depends on genes.  MY SIL who is 47 and has stage 4 uterine cancer had great scans two months ago, where some spots were gone and others were smaller. This week she goes for another scan and they are growing again!  I have heard of three of my friends who have cancer just last week, my mom has RCC, my other SIL's aunt has breast cancer and she just lost her sister to breast cancer.  The list goes on and on. And yet, no cure yet?  Besides a cure, the food industry is trying to kill us with GMO's, food imported from other parts of the world where dog food isn't even safe, no label information, etc.  We all have to stay vigiliant with our diet, eat organic, locally grown fruits and veges if we can, grass fed meat with no hormones or antibiotics. I am incorporating raw veges into my diet more and more and trying to juice daily. 

But Ron, I hope the new scans show some positive results for you on the new drug. I wanted to ask, what is the normal dosage for that drug?  I know there are several different dosages.  Do you take one am and one pm?  How are the side affects treating you at the moment?  Are you on Milk Thistle?  I hope you were able to find out just what is happening with your liver.  Did they do all kinds of tests and even offer you the hepatitis vaccine? They offered that to my brother because he had high numbers but thankfully we got his numbers down.

Keep your chin up!!  By the way, the bike is really nice!

GSRon said:

Where do I start..??  OK, I

Where do I start..??  OK, I am taking 5 MG Inlyta twice a day... which is about mid dosage as far as I can tell.   I think max dose is about double what I am on.. and some people do like a 5 MG and a 2 MG.   No major side effects as of today...  Hypertension is listed as occuring about 48% of patients... so that is the main worry..  Hand and foot (I have that, worst part is the skin issues mid body.. nuff said)..  I have teen like acne, and some fatigue..  Not bad... really not bad... the skin issues I am using lotion on and that reduces the itchy feeling which helps.

 

OK, maybe this is not the best place to post this part.. but I will start here... anyone feel free to add it somewhere else if there is such a need... dunno...

 

Bilirubin - Aha..  my Onc said I had a disease called Joe Bears...   I tried to find it, but could not...   So today I saw my Cardio Dr (she is great.. also good looking.. Ooops..!!).  Anywas my Cardio doc spends more quality time with me, and seems to like it when I question things..  When I brought up my Bilirubin issue she aske about my Liver Enzymes, and I said they are normal now... she blurted out.. you have classic Gilbert's disease... Gilbert was a French guy so you pronounce it Joe Bears... geeesh...    OK, so Gilbert's is no big deal.. yes my Biliruben will be above normal... but nothing to worry about.   My Cardio Doc says like 10% of the population have Gilbert's and do not even know it.. duh...!!  Ding ding ding...   So I will post two links below that give good info...

So we had a chat about Norvasc (Amplodomine) and she kind of chuckled... and put things in perspective...  IF a person is at Max dose then yes Liver issues can happen.  But I am on a very small dose AND I only take it when I need it, which is less than once a week.. No issue...   And she told me more.. basically there are two kinds of B.P. meds, ones that metabolize in the liver and ones that use the Kidney... take your pick..??   Aha.. now I understant... but she also stated that Statins would not be good for me...(I knew that already).   So the nurse took my BP and it was normal... like 125 over 72.   I was surprized, so the Doc took my BP twice more.. same results... cool..!!   My Cardio Doc is all for how I am managing my BP.  I take the Metroprolo daily (50 MG)  Up that dose to double if need be, and use the Norvasc should my BP go crazy...  And if it goes crazy take a Norvasac or even two of them.. and if my BP is not behaving call her ASAP...!   Like I said she is awesome..!!  

So here are two Liver links... remember, there must be 50 ways to love your Liver....""

 

Ron 

 

http://www.howtodothings.com/health-and-fitness/a4674-how-to-understand-gilberts-syndrome.html

 

http://www.liverdoctor.com/liver-problems/gilbert-syndrome/

Ron, what are your liver enzyme numbers now and did your bilirubin go over the 400 mark, like mine? 

I'm glad to hear you're coping well with the s-e's.  I guess you'll be following the big Conversations on that topic on SP? Incidentally, you'll see I've made another side-swipe at Norvasc while warning folks there about new  European findings about metoclopramide - too dangerous for anyone in their right mind to take for more than 5 days and best avoided completely!

GSRon said:

What a difference a few days

What a difference a few days make...  I guess I spoke too soon.  My BP spiked  big time yesterday, and still is way high.  It went up to 195 / 110..!  I took lots of pills to bring it down.. finally a full day plus later it is now just a little high.. 138 / 85.  For me, high BP gives me a nasty headache.. and it finally is a low grade headache..  Oh I also had some slight nausea, but a single piece of hard candy does the trick...  One more week until my one month blood tests... woo hoo..!!!

Be Well All..!!

Ron

Be well Ron.

Alexandra said:

I didn't want to write it, but you forced me Ron

Acne usually comes on a boy's face AFTER he turns 13

I LOVE IT!!!  LMAOROTF