Just curious-What was everyone's initial PET UPTAKE VALUE's?

wellington90
wellington90 Member Posts: 20
in Head and Neck Cancer #1

I'm just curious to know what everyone's initial (beginning) PET SCAN uptake SUV values where?

High-Low? 

Comments

  • phrannie51
    phrannie51 Member Posts: 4,716
    #2
    I have not

    one single clue....sorry.  I was diagnosed already by the time I got my first PET....and my thought at the time, was the PET scan was more for getting ready for rads than anything else.  I'm wondering if you've thought about packing up all the scan disks and path reports and sending them to someplace like MD Anderson, or John Hopkins for review? 

    p

  • wellington90
    wellington90 Member Posts: 20
    #3
    phrannie51 said:

    I have not

    one single clue....sorry.  I was diagnosed already by the time I got my first PET....and my thought at the time, was the PET scan was more for getting ready for rads than anything else.  I'm wondering if you've thought about packing up all the scan disks and path reports and sending them to someplace like MD Anderson, or John Hopkins for review? 

    p

    Possible

    Phrannie,

    Can I just mail these to MD Anderson? 

  • hlrowe
    hlrowe Member Posts: 80
    #4
    Don't know the values but

    my first PET 3 mo post tx showed my lungs ALL lit up. Everyone agreed (to 99% since doctors will never give you a 100%) it was inflamation. A scan follow up 2 mo after that showed no uptake.

  • robswife87
    robswife87 Member Posts: 209
    #5
    Her were Robs before treatment

    Head and Neck: There is a left hypermetabolic tonsillar mass (SUV max
    9.1). Smaller right tonsillar mild FDG avid mass is also seen (SUV max
    4.9). There are multiple bilateral neck FDG avid lymph nodes, namely in
    the left retropharyngeal region (SUV max 9.8), left level 2 and 3 (SUV
    max 11.3 and 3, respectively), and right level 2 (SUV max 3.8).

  • phrannie51
    phrannie51 Member Posts: 4,716
    #6
    wellington90 said:

    Possible

    Phrannie,

    Can I just mail these to MD Anderson? 

    When I sent mine to MD Anderson....

    I went to their web site and got the phone number and called to ask what all did I need to send.  They assigned a nurse to me, who sent me an email within a day with a list of what they wanted and where to send it.

    p

  • debbiejeanne
    debbiejeanne Member Posts: 3,102 Member
    #7
    robswife87 said:

    Her were Robs before treatment

    Head and Neck: There is a left hypermetabolic tonsillar mass (SUV max
    9.1). Smaller right tonsillar mild FDG avid mass is also seen (SUV max
    4.9). There are multiple bilateral neck FDG avid lymph nodes, namely in
    the left retropharyngeal region (SUV max 9.8), left level 2 and 3 (SUV
    max 11.3 and 3, respectively), and right level 2 (SUV max 3.8).

    ok, i don't know any of

    ok, i don't know any of this!  this stuff was never mentioned to me.  what is suv?  what # should it be or should u have it at all?  should all cancer patients know this info?  f so, how do we get it?  what is scan uptake?  it amazes me how much people on here know about cancer!  i don't even understand the stuff i read here.  it can really make one feel stupid.  thx for the info.

    dj

  • robswife87
    robswife87 Member Posts: 209
    #8
    debbiejeanne said:

    ok, i don't know any of

    ok, i don't know any of this!  this stuff was never mentioned to me.  what is suv?  what # should it be or should u have it at all?  should all cancer patients know this info?  f so, how do we get it?  what is scan uptake?  it amazes me how much people on here know about cancer!  i don't even understand the stuff i read here.  it can really make one feel stupid.  thx for the info.

    dj

    SUV uptake

    will be higher in the areas with cancer. Not sure how it all works but these are the numbers doctors look at.

    Not sure what a normal number would be and I don't read, as I call it Chinese. I am able to look at all tests Rob has had done on his hospital portal. 

    They put every test he has on there, we can look and print anytime we want.

    Sandy

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