Stage IV Breast Cancer with Mets to Bone

New Flower said:

Hello & welcome

Welcome to the board.

I have similar diagnosis and just completed 8 months of Xeloda. I am also on Xgeva monthly shot to improve structure of my bones and prevent fractures.

My initial diagnosis was Stage III in 2008 at the age of 46. Four years later cancer has progressed to my bones showing in 10 different bones. Last year my son has graduated from college, in this respect my situation is different.

Xeloda treatment was reasonable for me, however when I learned about mets all over my body while on Tamoxifen,  and that Chemo is the only option for me I was in shock. 

All ledies and gentelments on this board are very supportive. Please come back for support and advice. If you have any questions about Xeloda please PM me I will be happy to help. We have seen improvement from Xeloda treatment and very optimistic for the future

New Flower

 

Hello, I know exactally what you are going through. 10yrs later I had my reoccuence tomy bones. That was in Sept. of 2013. My children where 5,2 and 1 yrs. of age and I was VERY aggresive with my treatments and did ALL the surgery I was suppose to. So no I did not and was shocked it came back after 10 yrs. Although in the back of my mind I always knew it was a possibility. So bone mets are fine for me and its been 6 months on Fulvestrant and Xgeva {denosumab}- to make bones stronger. I feel much better and bones are healing and Im actually able to get back to being active. I fractured my Clavicle bone { PAINFUL} and on the tennis courts, who knew you can fracture a bone with no impact of any kind. I posted just the other day for my first time so Im also new here.  If you ever feel like talking inbox me your number. Best Wishes to US! Debbie

Debaludoll said:

Hello, I know exactally what

Hello, I know exactally what you are going through. 10yrs later I had my reoccuence tomy bones. That was in Sept. of 2013. My children where 5,2 and 1 yrs. of age and I was VERY aggresive with my treatments and did ALL the surgery I was suppose to. So no I did not and was shocked it came back after 10 yrs. Although in the back of my mind I always knew it was a possibility. So bone mets are fine for me and its been 6 months on Fulvestrant and Xgeva {denosumab}- to make bones stronger. I feel much better and bones are healing and Im actually able to get back to being active. I fractured my Clavicle bone { PAINFUL} and on the tennis courts, who knew you can fracture a bone with no impact of any kind. I posted just the other day for my first time so Im also new here.  If you ever feel like talking inbox me your number. Best Wishes to US! Debbie

I have bone mets and 2 days ago my clavicle fractured.  I had a lesion on that bone.   i am in excruciating pain and can't do anything for myself since it is on my right side and I am right handed.  How long did it take for the severe pain to subside and how long til it healed?   I'm so depressed right now.  All I did was push myself off from bed and it popped.  

hope67 said:

Welcome

I am sorry for the reason you came here and I am sorry for all you are dealing with. I am not in similar situation, just wanted to wish you all the best.

Carmen

Hoping that this will do a good job for you.  I have not experienced what you are going through but there are others who have, among them New Flower, who can share their knowledge with you.  Good thoughts for this to be successful.

Stef

tasha_111 said:

Hi

Hi, I was dx 2007 her+ and st2.  had 5 years and 3 months clear and it came back as st 4, spine, sternum, breast and lymph nodes.  I am on a differenty regime to you.  Daily exemestane pills and a once monthly infusion of pamidronate.  Got told yesterday that the spinal tumour is stable .  I  was finding the pain terrible  but a dose of dexemethesone daily has sorted all that out.  Wishing you only the very best.  TASH xxxx

Hi Col43

sorry for your painful experience . I had rib broken due to mets and it was not fun. I did nothing just a simple move to watch TV and pain was awful, like a spasm. I assume clav bone even more painful. We continue with treatment plan that was oral pill Chemo Xeloda and bone strengthing shots Xgeva. my bones healed as get control of cancer. I also used pain medications including Lidocaine patch which I wear every day for 12 hours for 1 months. There are stronger pain medication patches , please ask your doctor for help.

Your doctor and you need to figure out your treatment plan for metastasis which will help bones to heal. 

Please do not be depressed right out to suppress your pain.

hugs and let us know how are you doing

New Flower

Tasha35 said:

Xeloda

I am 36 years, First diagnosed 2012 stage 2A Lumpectomy and just find out I have mets too the bone spine only, I just started xeloda 1week on and 1 week off, Not Sick at All, just no appeitite, How are you doing with the medication?

Hi Tasha35,

 I was on Xeloda for 9 months from 7/1 to 3/13, I also had Xgeva shots as well. My PET scan and ovllrall halth has improved as a results of this drug. I tolerated Xeloda well, was able to work while had several side effects. Please drink a lot of water, at least 1.5 L a day. Feel free to ask any additional questions.

After Xeloda I  started a clinical trial, which I had to leave de to the side effects. I am currentely on Faslodex shots.  My October CT showed stable. 

Good luck to you. Please update us in the future

New Flower