Newly diagnosed

2

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  • Septemberzoe
    Septemberzoe Member Posts: 49
    #22
    Septemberzoe said:

    :)

    Just heard from doctor's office that my chest CT and bone scan were "negative" and "normal"....two of the sweetest words I've ever heard

    Help

    Heard from drs office again today....they were just talking about the bone scan being normal....called today with results from chest ct...2 lung nodules...one in each lung...2mm and 3 mm. Nurse said dr not concerned and that they will do a follow up ct in 3 months to see if there is any change. I'd never had a chest ct before this so don't know if the nodules have always been there or are a result of my rcc. kind of freaking out....wondering if anyone else has similar experience? My kidney tumor was 3.5 cm clear cell grade 3 stage 1a (if it is in the lung now does that make it stage 4?) help :( 

  • Texas_wedge
    Texas_wedge Member Posts: 2,798
    #23
    Septemberzoe said:

    Help

    Heard from drs office again today....they were just talking about the bone scan being normal....called today with results from chest ct...2 lung nodules...one in each lung...2mm and 3 mm. Nurse said dr not concerned and that they will do a follow up ct in 3 months to see if there is any change. I'd never had a chest ct before this so don't know if the nodules have always been there or are a result of my rcc. kind of freaking out....wondering if anyone else has similar experience? My kidney tumor was 3.5 cm clear cell grade 3 stage 1a (if it is in the lung now does that make it stage 4?) help :( 

    Staging

    Relax!!!  You're still stage 1 and will stay that way.  You're effectively as near cured as it's possible to be.  Your stage of 1a is the best possible.  You don't have lung mets and the two tiny nodules are too small to be worried about. The 3 month CT follow-up is routine and will show whether anything has changed (e.g. the nodules may have resolved, disappeared, or be unchanged). 

    The follow up is well-judged since you've been allocated a grade of 3 so keeping an eye open is a sensible precaution but the crucial prognostic factor is Stage and yours is the best on the scale!

  • icemantoo
    icemantoo Member Posts: 3,361 Member
    #24
    Septemberzoe said:

    Help

    Heard from drs office again today....they were just talking about the bone scan being normal....called today with results from chest ct...2 lung nodules...one in each lung...2mm and 3 mm. Nurse said dr not concerned and that they will do a follow up ct in 3 months to see if there is any change. I'd never had a chest ct before this so don't know if the nodules have always been there or are a result of my rcc. kind of freaking out....wondering if anyone else has similar experience? My kidney tumor was 3.5 cm clear cell grade 3 stage 1a (if it is in the lung now does that make it stage 4?) help :( 

    Not to worry

    Zoe,

    I had a chest CT for respiratory issues about 6 months ago. I am an 11 year survivor of RCC. It showed lung nodules of I believe 4 and.6mm. Neither my ENT, Pulmonary doctor or Urologist were comcerned. Those nodules under >8 mm can not even be seem under a chest xray.  The chance of a nodule being cancerous under 1 cm is very low., like under 1 % The only way ro be sure is a follow up CT in 6 months.

     

    Icemantoo

  • Septemberzoe
    Septemberzoe Member Posts: 49
    #25
    Septemberzoe said:

    Help

    Heard from drs office again today....they were just talking about the bone scan being normal....called today with results from chest ct...2 lung nodules...one in each lung...2mm and 3 mm. Nurse said dr not concerned and that they will do a follow up ct in 3 months to see if there is any change. I'd never had a chest ct before this so don't know if the nodules have always been there or are a result of my rcc. kind of freaking out....wondering if anyone else has similar experience? My kidney tumor was 3.5 cm clear cell grade 3 stage 1a (if it is in the lung now does that make it stage 4?) help :( 

    Sorry

    Sorry...made a typing mistake...was grade 2 not 3

  • MDCinSC
    MDCinSC Member Posts: 574
    #26
    Septemberzoe said:

    Sorry

    Sorry...made a typing mistake...was grade 2 not 3

    Even Better Then!

    Still, follow ups are key!  Stay on top of things and go live your life!

    Eat well, stay hydrated, and live.

    Michael

  • Septemberzoe
    Septemberzoe Member Posts: 49
    #27
    Thank you

    Thank you so much for your words of encouragement..I'm so sorry that I'm so needy was just so thrown by the "you're fine...oh wait maybe you're not" news. Do you guys truly think these could be something benign? I don't want to get my hopes up if they turn out to be mets....thanks so much for the wisdom and support

  • icemantoo
    icemantoo Member Posts: 3,361 Member
    #28
    Septemberzoe said:

    Thank you

    Thank you so much for your words of encouragement..I'm so sorry that I'm so needy was just so thrown by the "you're fine...oh wait maybe you're not" news. Do you guys truly think these could be something benign? I don't want to get my hopes up if they turn out to be mets....thanks so much for the wisdom and support

    Zoe,

     

    You will be fine. The size of your nodules are too small to be anything but benign and too small to show up on a chest xray which is the most common test to determine if RCC has spresd to the lung. Many of us have small nodules on the lung and small cysts on the kidney which are harmless.

     

     

    Icemantoo

  • Texas_wedge
    Texas_wedge Member Posts: 2,798
    #29
    Septemberzoe said:

    Thank you

    Thank you so much for your words of encouragement..I'm so sorry that I'm so needy was just so thrown by the "you're fine...oh wait maybe you're not" news. Do you guys truly think these could be something benign? I don't want to get my hopes up if they turn out to be mets....thanks so much for the wisdom and support

    For my money, there's no way

    For my money, there's no way these are mets and you have nothing whatever to worry about.  Follow the routine scan procedure and forget all about the topic.  Carry on with life as usual, appreciating it all the more for the scare you had that's now behind you.

  • izzycohen
    izzycohen Member Posts: 80
    #30
    Consider yourself fortunate

    Zoe,

    Welcome to our club of which no one wants to be a member.  Like me, you too are truly blessed that the tumor was found early on.  You will discover, probably already have, there are people far less fortunate than yourself.  RCC is very treatable.  The success rate is high.

    Iceman is right.  It's all overwhelming at first.  It does get better.

    Good luck.

    Izzy

     

     

  • Septemberzoe
    Septemberzoe Member Posts: 49
    #31
    Thank you

    I read these comments everyday for reassurance...thank you.

  • icemantoo
    icemantoo Member Posts: 3,361 Member
    #32
    Septemberzoe said:

    Thank you

    I read these comments everyday for reassurance...thank you.

    Pretty soon

    Zoe,

    The last thing in the world I felt when i went through the surgery (scared s...less) it that someday I would be helping others. Perhaps you will see  yourself there pretty soon.

     

    Icemantoo

  • mattieguerrero
    mattieguerrero Member Posts: 3
    #33
    *hugs*

    I know very much how you feel not expecting your diagnosis. I am type 1 diabetic juvenile onset so I have had problems with my kidneys before. 2009 I went into acute renal failure for "no reason". after a ct and ultrasound they found clear cell rcc stage 2 7.5 cm on the upper half of my right kidney, that had started to reach the layer of fat that encases the kidney. I am so happy that you were able to catch it that early! you are very blessed!

  • Septemberzoe
    Septemberzoe Member Posts: 49
    #34
    Thank you again

    I come back and read these postings whenever I get myself worked up with anxiety and they calm me down....thank you all so much for being my "anti-anxiety drug"...waiting til beginning of December for my next set of scans and it seems like a long time...add christmas in there and I'm a wreck....thanks again everyone...xo

  • Dave Otto
    Dave Otto Member Posts: 4
    #35
    Newly diagnosed

    So...I am also newly diagnosed, CT scan indicates 3.8 X 3.1 cm tumor, with an open partial nephrectomy scheduled for October 17th.  I am concerned more about the recovery process than anything else,at this point.

  • Septemberzoe
    Septemberzoe Member Posts: 49
    #36
    Dave Otto said:

    Newly diagnosed

    So...I am also newly diagnosed, CT scan indicates 3.8 X 3.1 cm tumor, with an open partial nephrectomy scheduled for October 17th.  I am concerned more about the recovery process than anything else,at this point.

    Hi

    Hi Dave, 

    my surgery was laprascopic so I can't offer you too much advice...had it on sep 3rd and I feel pretty much back to myself physically but I think for an open it might take you a bit longer....don't rush it! Physically the hardest part of recovery for me was the nausea that came after the anaesthesia...but that only lasted a couple of days...best of luck! when is your surgery?

  • Septemberzoe
    Septemberzoe Member Posts: 49
    #37
    Septemberzoe said:

    Hi

    Hi Dave, 

    my surgery was laprascopic so I can't offer you too much advice...had it on sep 3rd and I feel pretty much back to myself physically but I think for an open it might take you a bit longer....don't rush it! Physically the hardest part of recovery for me was the nausea that came after the anaesthesia...but that only lasted a couple of days...best of luck! when is your surgery?

    Duh

    Just saw the date is the 17th...will be thinking of you and hoping all goes well...xo

  • Dave Otto
    Dave Otto Member Posts: 4
    #38
    NanoSecond said:

    PDF

    It's already on its way via direct email.  So please let me know if you don't receive it.

    I'm also interested in your .pdf Neil

    Please add me to your list of people interested in your pdf file Neil.  Thanks very much for sharing.

    webmajor@shaw.ca

  • Dave Otto
    Dave Otto Member Posts: 4
    #39
    Septemberzoe said:

    Duh

    Just saw the date is the 17th...will be thinking of you and hoping all goes well...xo

    I'm a little more "Duh" than you.  My surgery is the 22nd.  I'm taking the wife to a specialist on the 17th.  10 hour drive for the return trip.  Doesn't really pay to live in the boondocks, sometimes.

  • NanoSecond
    NanoSecond Member Posts: 653
    #40
    Dave Otto said:

    I'm also interested in your .pdf Neil

    Please add me to your list of people interested in your pdf file Neil.  Thanks very much for sharing.

    webmajor@shaw.ca

    Nutrition Guide

    Hi Dave,

    It's on its way via direct email so let me know if you do not receive it.

    Best wishes,

     

    -Neil

  • Septemberzoe
    Septemberzoe Member Posts: 49
    #41
    Dave Otto said:

    I'm a little more "Duh" than you.  My surgery is the 22nd.  I'm taking the wife to a specialist on the 17th.  10 hour drive for the return trip.  Doesn't really pay to live in the boondocks, sometimes.

    Still wishing good luck!

    Good luck then with the drive and the surgery!

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