FYI-Long term side effects after treatment

qv62
qv62 Member Posts: 434 Member
in Anal Cancer #1

Forgive me if this link doesn't work, I am not all that technical, I am hoping to attend  and thought of all of you so I wanted to share it

http://www.mskcc.org/events/support-meeting/addressing-long-term-side-effects-after-treatment-anal?dtstart=1381354200&dtend=1381359600

«13

Comments

  • Marynb
    Marynb Member Posts: 1,118
    #2
    Qv
    It sounds like you will get some good information! I have never seen anything like this! I hope you can go and share the info with us!
  • pializ
    pializ Member Posts: 508 Member
    #3
    Marynb said:

    Qv
    It sounds like you will get some good information! I have never seen anything like this! I hope you can go and share the info with us!

    QV

    I look forward to your update. It sounds as if it could be informative. I hope they are looking at how they can help those of us suffering from a range of side effects from the only treatment currently available.

  • mp327
    mp327 Member Posts: 4,440 Member
    #4
    qv62

    Thank you SO much for posting this!  I hope you will get to go and then share the information with all of us here.  I am going to post this link on my other websites.  Thanks again!

  • eihtak
    eihtak Member Posts: 1,473 Member
    #5
    qv62

    Thank you, I wish there were a way we could all go together! Hopefully it will go well and we will see more meetings addressing this throughout the country.

  • sandysp
    sandysp Member Posts: 868 Member
    #6
    Me too!

    I am planning to go to this event also and am so glad they are doing it. I don't know the other doctor but Dr. Carter is my Women's Health Psychologist and she is amazing.

    Hope to see you there!

  • eihtak
    eihtak Member Posts: 1,473 Member
    #7
    sandysp said:

    Me too!

    I am planning to go to this event also and am so glad they are doing it. I don't know the other doctor but Dr. Carter is my Women's Health Psychologist and she is amazing.

    Hope to see you there!

    sandy....

    This is so exciting, I can't wait for you both to up-date us!

  • mp327
    mp327 Member Posts: 4,440 Member
    #8
    sandysp said:

    Me too!

    I am planning to go to this event also and am so glad they are doing it. I don't know the other doctor but Dr. Carter is my Women's Health Psychologist and she is amazing.

    Hope to see you there!

    Sandy

    I'm so glad to hear you're attending and that you two will get to meet in person!  How exciting.  I hope this event will be very informative.

  • qv62
    qv62 Member Posts: 434 Member
    #9
    sandysp said:

    Me too!

    I am planning to go to this event also and am so glad they are doing it. I don't know the other doctor but Dr. Carter is my Women's Health Psychologist and she is amazing.

    Hope to see you there!

    Sandysp

    I am so glad you are attending, can't wait to see you again !

  • sandysp
    sandysp Member Posts: 868 Member
    #10
    qv62 said:

    Sandysp

    I am so glad you are attending, can't wait to see you again !

    Me too!

    I am so glad they are doing this. I wonder how many people will show up and if any of them even know about this board?

    See you soon!

    Sandy

  • qv62
    qv62 Member Posts: 434 Member
    #11
    To all

    It would be wonderful if everyone was close enough to attend but hopefully between Sandy and I we can report back the key facts of the lecture, I will take notes for sure, we need more of these type s of information seminars, @ Sandy, yes Dr. Carter is fabulous and I don't know the other physician either but I see she is a member of the radiological oncologists in the city, my radiological oncologist works out of the LI facility but meets with the city physicians weekly, she is the one that actually sent me to Dr. Carter

  • qv62
    qv62 Member Posts: 434 Member
    #12
    To all

    Don't know if ther will be a Q & A but if there is. let us know what we can inquire about for you

  • LaCh
    LaCh Member Posts: 557
    #13
    holy cheet! thanks for posting!

    Well, that'll show me!  Here I stayed away from this website for the last 7 months or so and managed to stumble back just in time to see this post.  Called and registered. Am now good to go.  As I posted elsewhere, my disease is cured but the cure is now the diesase.  Am looking forward to this talk.  Thanks for posting!!

  • Marynb
    Marynb Member Posts: 1,118
    #14
    LaCh said:

    holy cheet! thanks for posting!

    Well, that'll show me!  Here I stayed away from this website for the last 7 months or so and managed to stumble back just in time to see this post.  Called and registered. Am now good to go.  As I posted elsewhere, my disease is cured but the cure is now the diesase.  Am looking forward to this talk.  Thanks for posting!!

    LaCh
    Wow! Good for you that you are CURED!! That is really great!!!!
  • LaCh
    LaCh Member Posts: 557
    #15
    Marynb said:

    LaCh
    Wow! Good for you that you are CURED!! That is really great!!!!

    Marynb

    Thank you... Laughing

  • qv62
    qv62 Member Posts: 434 Member
    #16
    LaCh said:

    holy cheet! thanks for posting!

    Well, that'll show me!  Here I stayed away from this website for the last 7 months or so and managed to stumble back just in time to see this post.  Called and registered. Am now good to go.  As I posted elsewhere, my disease is cured but the cure is now the diesase.  Am looking forward to this talk.  Thanks for posting!!

    LaCh

    So glad you saw the post and can attend ! That makes 3 of us from the board so far, hope these last month have been managable for you, hope we can meet up there.

  • mp327
    mp327 Member Posts: 4,440 Member
    #17
    qv62 said:

    LaCh

    So glad you saw the post and can attend ! That makes 3 of us from the board so far, hope these last month have been managable for you, hope we can meet up there.

    LaCh

    I'm glad to see you back here and even happier that you are going to the seminar!

  • LaCh
    LaCh Member Posts: 557
    #18
    mp327 said:

    LaCh

    I'm glad to see you back here and even happier that you are going to the seminar!

    mp

    thanks mp but I'm not really back....  I just dropped in by chance, but I don't plan to stay. Check in from time to time.... maybe.... or maybe not....dunno.  I never planned to stay beyond my treatments; this was an experience like any other, but it's done, over and isn't who I am.  I'll check in maybe, but it's largely in my rear view mirror. In any case, I appreciate the sentiment.... so thank you.

  • mp327
    mp327 Member Posts: 4,440 Member
    #19
    LaCh said:

    mp

    thanks mp but I'm not really back....  I just dropped in by chance, but I don't plan to stay. Check in from time to time.... maybe.... or maybe not....dunno.  I never planned to stay beyond my treatments; this was an experience like any other, but it's done, over and isn't who I am.  I'll check in maybe, but it's largely in my rear view mirror. In any case, I appreciate the sentiment.... so thank you.

    E-Mail re: Seminar
    I received the following e-mail from the HPV and Anal Cancer Foundation regarding the upcoming seminar, which I wanted to pass on, especially those who are planning to attend. The informal gathering with the Almada's would be very interesting and I hope some or all of you can attend that as well.

    We warmly invite all survivors to the first ever forum dedicated to addressing the side effects and quality-of-life concerns that occur after treatment for anal cancer. The Foundation is co-sponsoring this educational meeting with Memorial Sloan-Kettering Cancer Center (MSKCC). A panel of experts and survivors will focus on sexual function and management of long-term side effects resulting from radiation therapy.


    Addressing Long-Term Side Effects After Treatment for Anal Cancer
    Educational Support Meeting for Anal Cancer Survivors

    Wednesday, October 9, 2013
    5:30 PM

    417 East 68th Street, Room ZRC-136
    (between 1st & York Avenues), New York City

    Leading the event will be Dr. Karyn A. Goodman, Associate Attending in the Radiation Oncology Department, and Dr. Jeanne Carter, Head of Female Sexual Medicine and Women’s Health programs, at MSKCC. The HPV and Anal Cancer Foundation’s Executive Director, Justine Almada, as well as three survivors will also speak at the event.

    There will be an opportunity for questions following the panel discussion. The event is open to all anal cancer survivors and their families.

    MSKCC has requested that all guests register beforehand. Please RSVP to 646-888-4740 or e-mail RLAC@mskcc.org.

    We hope you can be part of this historic gathering of anal cancer survivors. After the program, the HPV and Anal Cancer Foundation will informally gather with survivors at a nearby café.

    For a copy of a flyer to distribute, click here. We look forward to seeing you there!

    Justine Almada
    Executive Director
  • sandysp
    sandysp Member Posts: 868 Member
    #20
    LaCh said:

    holy cheet! thanks for posting!

    Well, that'll show me!  Here I stayed away from this website for the last 7 months or so and managed to stumble back just in time to see this post.  Called and registered. Am now good to go.  As I posted elsewhere, my disease is cured but the cure is now the diesase.  Am looking forward to this talk.  Thanks for posting!!

    Great

    I hope you recognize me. Please, if you do and you feel like it, come up to me. I would love to meet you.

    Sincerely,

    Sandy

  • qv62
    qv62 Member Posts: 434 Member
    #21
    mp327 said:

    E-Mail re: Seminar
    I received the following e-mail from the HPV and Anal Cancer Foundation regarding the upcoming seminar, which I wanted to pass on, especially those who are planning to attend. The informal gathering with the Almada's would be very interesting and I hope some or all of you can attend that as well.

    We warmly invite all survivors to the first ever forum dedicated to addressing the side effects and quality-of-life concerns that occur after treatment for anal cancer. The Foundation is co-sponsoring this educational meeting with Memorial Sloan-Kettering Cancer Center (MSKCC). A panel of experts and survivors will focus on sexual function and management of long-term side effects resulting from radiation therapy.


    Addressing Long-Term Side Effects After Treatment for Anal Cancer
    Educational Support Meeting for Anal Cancer Survivors

    Wednesday, October 9, 2013
    5:30 PM

    417 East 68th Street, Room ZRC-136
    (between 1st & York Avenues), New York City

    Leading the event will be Dr. Karyn A. Goodman, Associate Attending in the Radiation Oncology Department, and Dr. Jeanne Carter, Head of Female Sexual Medicine and Women’s Health programs, at MSKCC. The HPV and Anal Cancer Foundation’s Executive Director, Justine Almada, as well as three survivors will also speak at the event.

    There will be an opportunity for questions following the panel discussion. The event is open to all anal cancer survivors and their families.

    MSKCC has requested that all guests register beforehand. Please RSVP to 646-888-4740 or e-mail RLAC@mskcc.org.

    We hope you can be part of this historic gathering of anal cancer survivors. After the program, the HPV and Anal Cancer Foundation will informally gather with survivors at a nearby café.

    For a copy of a flyer to distribute, click here. We look forward to seeing you there!

    Justine Almada
    Executive Director

    mp327

    I recieved the same e-mail today, this is the seminar that both Sandy and I are attending, from a previous post it appears LaCh will also be there, anyone else that you know of ?

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