Worried, dad still not eating

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  • CherieLW
    CherieLW Member Posts: 472
    #22
    donfoo said:

    soft food list

    Cherie,

    Search around for the soft foods list. I was surprised that  "mashed taters" was not considred a soft food. I wondered why I had trouble with them myself then discovered the list which had items far more comforting to get down the throat.

    It seems your Dad has been getting sufficient liquid daily but stay on top of this. Of all things that is the most critical of all otherwise he's off to ER with dehydration.

     

    Thanks Don, I'm def keeping

    Thanks Don, I'm def keeping him hydrated.  Bw me and mom lol.  It's so hard to go through this with a loved one, but I know things could be a lot worse.  I can't wait for more improvements!   Bless you all!

  • CherieLW
    CherieLW Member Posts: 472
    #23
    MarineE5 said:

    Hot and Cold

    Cherie,

    "T" mentioned something that is important, hot and cold foods. After treatments, our mouth, tongue and throat are pretty raw and act as if we are a new born once again. Your Dad might want to try eating something soft, but at room temperature. I am out of treatment 8 1/2 years and I still take caution when eating anything that I see steaming, I let it cool down...cold foods, well I let them melt a bit in a bowl. The hot and cold feels as if our mouths are burning....everything at room temperature for awhile.

    My Best to Both of You and Everyone Here

    Thanks for reminding me!

    Thanks for reminding me!  There's so much info on these boards, is easy to overlook things! 

  • CherieLW
    CherieLW Member Posts: 472
    #24
    Ingrid K said:

    Try eating crushed ice

    Cherie

    Don't panic !!  As long as your dad is using the PEG for nutrition, he is doing fine.  The eating of regular foods will come back.  I had my PEG for 18 months (but I lost 75% of my tongue, so swallowing and eating took me a lot longer to re-learn).

    The biggest worry now should be forcing himself to swallow.  As everyone has said, you HAVE to keep the swallow muscles working or they will atrophy pretty quickly.

    I lived on crushed ice (snow cone consistency) for months.  I would sit and "eat" it with a baby spoon.  It forced me to swallow and gave me additional water.  Maybe dad could give that a try.  My hubby actually went out and got me a mini-Sno Cone Maker from Bed, Bath & Beyond.  Worked like a charm.

    Good luck to you and Dad !

     

     

    Thanks Ingrid! He had trouble

    Thanks Ingrid! He had trouble with too hot or too cold foods.  I have him a list of foods everyone mentioned awhile ago.  I hope he starts soon!

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