going home to sydney after almost a year, in remission, its my 47th birthday as well

annalexandria said:

On your blog...

you included this bit:

"after a year of the walking post experiment on csn I should know about what colorectal patients do and do not do! most do not do enough, and they don't wont to be told about their lazy is contributing to their death, that's what amazed me about lifestyle, but that's the truth!"

Why edit your opinion of us lazy folks at CSN out of this version, Pete?

We, along with survivors of others cancers, are probably the last group of people who I would ever consider lazy.

k44454445 said:

Pete

happy birthday!!!

hugs

judy

Pete is only sharing his journey.  Many people have left this forum because they are not allowed to talk about their adventures and choice of treatments.  This isn't really up for debate.  Its people that go out of their comfort zone that usually make a difference.    If he fails fine, but as long as there is tomorrow, he can keep trying.  His money. 

I don't go for finding fault in some one for their way of thinking, or the actions that they take when they are not hurting anyone  I like to wish them well and not publically talk about them/him with no consideration to his feelings. Yes, he gets defensive because he is put down a lot.   We can choose to read posts and follow or not.  Keep in mind there is a language barrier in his writings.   I do realize he goes  overboard at times when making a point 

No. I'm not Germany bound I couldn't afford it  But I wish him success. 

Shake your head in your home, but don't blast him on his own post, for Pete's sake! 

Nana b said:

Pete is only sharing his

Pete is only sharing his journey.  Many people have left this forum because they are not allowed to talk about their adventures and choice of treatments.  This isn't really up for debate.  Its people that go out of their comfort zone that usually make a difference.    If he fails fine, but as long as there is tomorrow, he can keep trying.  His money. 

I don't go for finding fault in some one for their way of thinking, or the actions that they take when they are not hurting anyone  I like to wish them well and not publically talk about them/him with no consideration to his feelings. Yes, he gets defensive because he is put down a lot.   We can choose to read posts and follow or not.  Keep in mind there is a language barrier in his writings.   I do realize he goes  overboard at times when making a point 

 

No. I'm not Germany bound I couldn't afford it  But I wish him success. 

Shake your head in your home, but don't blast him on his own post, for Pete's sake! 

 

 

 

Hi Nana,

Welcome back.

I believe that you misunderstand why people are upset with Pete since you  have not been the board in a while.  It is certainly NOT that he is sharing his journey, spending money, traveling the world or getting alternative treatments.  It IS because he is disrespectful, rude, and narcissistic.  He’s called CSN members “sheep” for taking their doctor’s direction on chemo, told members that they are jealous of him because he deems his treatments a success, has called himself the new John the Baptist spreading the word, insulted more people than I can count telling them how wrong they are but how right he is, insinuating that all chemo patients are lazy since they don’t exercise daily or off to Germany for their treatments even though it’s cost Pete over a $1M to do so.  Do you have a million dollars in your pocket that you could use to traveling the world for unproven alternatives?  We didn’t.   Rick was certainly not lazy because he couldn’t afford to travel - that is simply absurd.   Let me tell you, when my Rick was alive, he tried all types of vitamins, meditation, he didn’t eat sugar (at all),  as well as tried to exercise until his body just refused.  Cancer was simply devouring his good cells, he could barely make it to the kitchen and back to the living room.  So, how dare Pete tell patients that they are lazy and not worth listening to because they do the traditional chemo route (yes, he said that too).   Everyone here was very patient with Pete, but he just didn’t get it. And no, it’s not because he didn’t spell well, do use that excuse, we can certainly understand what his thoughts and intentions are behind his bad grammar.  It’s simply that we gotten tired of his rants and narcissist personality.  How do you think the newbies like coming onto this board only to be told by Pete that they are sheep to be following the advice of their doctors.  And don’t you find it rather hypocritical that Pete has been taking Irinotecan, Avastin and Xeloda the whole time???  I do.

Take care Nana,

Cynthia

annalexandria said:

So...

You are fine with the following:

forum members are "lazy" (this one was from right before he posted this thread here)

Forum members are "sheep"

Forum members "lack courage"

Forum members are "like heroin addicts in their addiction to sugar"

More on sugar:  It's the "blind leading the blind, they will never learn or study"

etc, etc, etc.

All actual quotes, hence the quotation marks...and with links to our conversations here.

There are many more statements I could present to you if I really wanted to dig through all of Pete's stuff, both here and on his own blog, which I won't because it's depressing.

I don't know how many times we can say this, but virtually everyone here was supportive of Pete's various therapies, and cheered on his endeavors.  IT IS NOT THE THERAPIES THAT ARE THE PROBLEM.   The problem lies in Pete's own words, which he chooses to put down in written form and then hit "submit".

You have the right to accept all this (I guess when he talks about forum members, he's not including you), but I sure as heck don't have to.  I come here to support people who are going through the very treatment that he calls us "fools" for accepting and enduring.  I mean really...do you think Craig is a coward for facing chemo for the umpteenth time, instead of selling everything he owns and jumping on a plane to Germany?  Because that is what Pete has said on more than one occasion, and it ticks me off.  So I will continue to comment on these public threads, and you can keep on supporting Pete, with all the ramifications that that holds when you do so.

AA

ETA what the heck is Pete's "language barrier"??  Isn't he Australian?

He does struggle with his words, very hard to follow at times.   I must say,  I at times feel like a sheep waiting for the the next pUsh.   I do feel that  chemo will kill me before the cancer. sucks!  

Pete and I were on the same path and the Chemo didn't work for us. He stopped before I did.   His CEA started going down and mine continues to rise, mine is at 140+.  I am interested in picking up whatever I can to learn what may be out there. I really  don't focus on what's not important, I focus on what can be out there to help us. 

Anyway. we can't allow others to upset us.  I choose to say, crazy people And move on!  People  deal with mortality differently, and go into crisis mode and will do and stay anything.

 Obviously, I have missed some of his threads as I have not seen some of the things you three  mention. There is no excuse for rudeness,   so Pete lighten up. 

Living life a day at a time.  Not letting anyone ruin my day.  

Off to go see Mom in the hospital. It's been 3 weeks Since she fell.  She is doing better. 

Wish you the best. 

mags uk said:

Wishing you well

NanaB , I wish you well and hope your mum is making progress. I am like you I am focusing on my mum's care and lots of the discussion was on his private blog so certainly not a requirement to visit it. I would never use the tone he has used but neither do I make judgements on peoples mental health or assume that we are all able to process life in the same manner and that all gets amplified when a difficult diagnosis is involved. 

I do get concerned by diagnosis on personality types or mental health issues on internet forums, think it breaches some laws. My son is dyslexic and internet forums present communication problems for him. We do not know what other people bring to the table.

I wish you all well,

Mags

Thanks Mags. 

I wish you and your Mom many more great memories! 

Kathleen808 said:

Friends

Hi Friends,

I feel a need to share a story from a friend who recently returned from the Hallway clinic in Germany.  This is not to pick sides on anything but just to share with you the experience of one of our friends.  Oahu is a small island and people tend to run in small circles of friends here.  About 2 years ago someone suggested that **** talk to a man who was just diagnosed with stage 4 prostrate cancer.  He had 2 young children and was also a pilot so they thought that **** could share hope with him.  He was originally told he had less than 6 months to live and that he would not fly again.  After **** spoke with him his hope was renewed and he sought out a fabulous naturopath and some more medical advice.  He felt good about his new path and then we did not hear from him the past 6 months.  **** recently contacted him and he is cancer free and flying again.  There are very high medical standards for getting your FAA medical license. He went to the Hallwag clinic that Pete went to (I have not read through Pete's blog but I know at one point he was at the Hallwag clinic).  When our friend returned to Oahu and was scanned the tech was totally blown away.  Our friends thought at first that the cancer may have wildly spread but instead, there was no cancer to be seen. 

This is one of our friend's stories. We know many people who know this man well and he is of excellent character.  I do not know all the treatments he had, I do not know how long his cancer will be gone, I realize he had prostrate cancer and not colon cancer but I thought his story was important enough to share.

I hope this story may help someone.

Aloha,

Kathleen

That's a great story, Kathleen.  I am sure it is helpful to many.  If he's got a cancer blog or webpage, it would be helpful to many people to see more details on his Hallway and alternative experiences in general.  Our individual experiences multiply as group awareness and knowledge, especially when we plunge into the unseen world of alternative and experimental medicine.

annalexandria said:

That's a positive story and good to hear.

I would like to stress, however, once again, that no one is debating alternative vs convetional therapies in this thread.  The issue with Pete has nothing to do with his choice of therapies, and everything to do with treating others as you yourself would like to be treated.

Hope things are going better with ****, Kathleen.

Thanks Kathleen for sharing the story. It really is awesome to see some one winning against this horrible disease, no matter what plan of action they take......

Nana b said:

He does struggle with his

He does struggle with his words, very hard to follow at times.   I must say,  I at times feel like a sheep waiting for the the next pUsh.   I do feel that  chemo will kill me before the cancer. sucks!  

Pete and I were on the same path and the Chemo didn't work for us. He stopped before I did.   His CEA started going down and mine continues to rise, mine is at 140+.  I am interested in picking up whatever I can to learn what may be out there. I really  don't focus on what's not important, I focus on what can be out there to help us. 

Anyway. we can't allow others to upset us.  I choose to say, crazy people And move on!  People  deal with mortality differently, and go into crisis mode and will do and stay anything.

 Obviously, I have missed some of his threads as I have not seen some of the things you three  mention. There is no excuse for rudeness,   so Pete lighten up. 

 

Living life a day at a time.  Not letting anyone ruin my day.  

Off to go see Mom in the hospital. It's been 3 weeks Since she fell.  She is doing better. 

 

Wish you the best. 

While on chemo in aus my CEA continued to rise no matter what the oncologists prescribed. Yes I sold the house and headed for germany to seek alternatives knowing that chemo was a dead end.  Been off systemic chemo since april and despite some early hickups, my CEA dropped from 3300 to 760. I am still far from winning the battle, and may not, but the results are far better than traditional cancer treatments. I just wish I did this 6 months earlier as pete urged me to.