Fallopian Tube Cancer Chemo Question

japo2345
japo2345 Member Posts: 4
in Ovarian Cancer #1

Ive been diagnosed with stage 3A fallopian tube cancer (serous carcinoma)...the doctors follow the same regimen as epithelial ovarian cancer...I can get platinum based treatment via IV or IP (intraperitoneal)...my question is does anyone recommend IV over IP, or vice versa? Ive been told that IP has better success rate but much more toxic and difficult then IV. Please any advice would help I must make a decision soon. Thanks for the help

Comments

  • mamajc
    mamajc Member Posts: 22
    #2
    FTC Chemo question

    It sounds like a hard decision.I think there are advantages to both treatment. At the recent conference research indicated that those who received IP chemo have alonger survival rate. My brother in law Clydes sister had Ovarian cancer and she hasn't had a recurrence since she had IP chemo.. I don't remember how long it has been for her. When I read the research I cried. I wasn't able to have IP treatment

    My cancer source is the fallopian tube also. . I had dose dense regimen taxol/carbo iv through my medport. I was able to tolerate it well.

    Regardless of how you get your chemo, I would recommend starting off on L glutamine 10 grams three times a day to prevent neuropathy. I didn't start it until I had numb toes despite the recommendations by my cancer nurses.

    I would talk to your cancer nurses about the best way to manage side effects... Good luck! Joan

  • wholfmeister
    wholfmeister Member Posts: 315
    #3
    Go for IP

    Can't talk long...gotta get to work!

    But go for the IP if available to you.  Research supports it.  It is harder tan IV, but totally doable.  I did 6 months of it.  Kept working. Can't give you details right now, but go for the IP! 

    Later!

  • Cafewoman53
    Cafewoman53 Member Posts: 735 Member
    #4
    Fallopian Tube Cancer

    I also have Fallopian Tube Cancer and was not able to do the ip chemo I wish I could have I just read somewhere recently that women are having much longer lives because of it. Good Luck

    Colleen

  • Alexandra
    Alexandra Member Posts: 1,308
    #5
    Chemo

    If they are offering you IP carboplatin - take it. You will have side effects either way but IP statistically extends survival by a year and a half compared to IV.

  • Alexandra
    Alexandra Member Posts: 1,308
    #6
    I gave your website 10 minutes you asked for...

    If you really are the owner of EndAllDisease website in charge of its content, leave it off your resume. As if the pompous name and messianic slogan "The Truth Has Arrived" were not enough... It's an embarrassing collection of random "news", conspiracy theories and useless products. Don't forget the picture of a smug youngster leaning on a limo claiming to have read $12,000 worth of "world's greatest books". I have never before seen a website that has no "contact us" info and is fishing for PayPal donations at the same time.

    Please do us all a favor and stop posting spam on multiple CSN boards.

  • kimberly sue 63
    kimberly sue 63 Member Posts: 421 Member
    #7
    wholfmeister said:

    Go for IP

    Can't talk long...gotta get to work!

    But go for the IP if available to you.  Research supports it.  It is harder tan IV, but totally doable.  I did 6 months of it.  Kept working. Can't give you details right now, but go for the IP! 

    Later!

    aftetr the research on IP

    aftetr the research on IP treatment there was another study that discussed chemo dense treatment---which meand chemo weekly which had just as good results and less abdominal complications. Discuss these options with your gyne-oncologist! Kim

  • mamajc
    mamajc Member Posts: 22
    #8
    Alexandra said:

    I gave your website 10 minutes you asked for...

    If you really are the owner of EndAllDisease website in charge of its content, leave it off your resume. As if the pompous name and messianic slogan "The Truth Has Arrived" were not enough... It's an embarrassing collection of random "news", conspiracy theories and useless products. Don't forget the picture of a smug youngster leaning on a limo claiming to have read $12,000 worth of "world's greatest books". I have never before seen a website that has no "contact us" info and is fishing for PayPal donations at the same time.

    Please do us all a favor and stop posting spam on multiple CSN boards.

    Alexandra

    Awesome response! Nothing is worse than having to deal with cancer and being hustled by some scam artist.  When I worked in Hospice about 20 years ago, I saw families spend thousands and thousands of dollars on shark cartilage and other "natural cures". They gave false hope and emptied their pockets!

  • japo2345
    japo2345 Member Posts: 4
    #9
    thanks

    Thank you all for your advice!!...im going with IP chemo cisplatin/taxol

     

    I also wanted to ask...does anyone know how to deal with the side effects (especially long term) of recieving chemo.

     

    I heard l-glutamine and vitamin B6 helps with neuropathy, reishi mushrooms help make cancer cells more sensitive to cisplatin (http://www.ncbi.nlm.nih.gov/pubmed/21399867)

     

    does anyone have anymore reccomendations like this?

     

    Again thanks SOO much for the help (and best of luck to everyone:)

  • Alexandra
    Alexandra Member Posts: 1,308
    #10
    japo2345 said:

    thanks

    Thank you all for your advice!!...im going with IP chemo cisplatin/taxol

     

    I also wanted to ask...does anyone know how to deal with the side effects (especially long term) of recieving chemo.

     

    I heard l-glutamine and vitamin B6 helps with neuropathy, reishi mushrooms help make cancer cells more sensitive to cisplatin (http://www.ncbi.nlm.nih.gov/pubmed/21399867)

     

    does anyone have anymore reccomendations like this?

     

    Again thanks SOO much for the help (and best of luck to everyone:)

    Hey Japo

    I had an IP port installed in hopes of having IP chemo, but it never closed and was never used. All my chemo I got through IV into the arm (I didn't have a chest port).

    So I can only speak for the side effects of IV chemo. Temporary effects I had: hair loss, skin dryness. I did not have mouth sores, GI truct issues, nausea/vomiting (once I found correct anti-emetics), low blood counts, clots, etc.

    Long-term side effects: fatigue, peripheral neuropathy and "chemo brain" (cognitive decline and short-term memory loss). They can resolve on their own, but in my case they didn't.

    I asked for ice socks during chemo; Gabapentin, Vitamin B1 (thiamin) and Lipoic Acid seem to help with peripheral neuropathy. There was a post about a month ago about some kind of coooling hat that prevents hair loss.

    You're going to find a million different "miracle cancer cure" products on the internet, some legit some no so much. While you're on chemo, whatever you decide to supplement, run it by your oncologist before you put it in your mouth. That includes reishi mushrooms and vitamins.

    Good luck to you!!!

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