newly diagnosed

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  • srbelle1
    srbelle1 Member Posts: 123
    #22
    srbelle1 said:

    We live in San Rafael and my

    We live in San Rafael and my husband is being treated at UCour his oncologist is Chuk Ryan and the surgeon is Dr. Max Meng. Both are very experienced with this disease.

    We have not taken this lightly; this has taken over our lives; radiation is at what used to be Mt. Ziom. I am very worried about the weight loss from the intestinal obstruction and current lack of appetite. Radiation is really wiping him out and this is not good for his upcoming nephrectomy. 

    I used to envy his metabolism and the fact that he had not gained a pound since I have known him. Now, that metabolism will make it difficult for him to gain weight.

     

    I meant UCSF and Dr. Chuck

    I meant UCSF and Dr. Chuck Ryan as oncologist. 

  • GSRon
    GSRon Member Posts: 1,303 Member
    #23
    srbelle1 said:

    I meant UCSF and Dr. Chuck

    I meant UCSF and Dr. Chuck Ryan as oncologist. 

    Sorry srbelle.. I should not

    Sorry srbelle.. I should not of used the word "lightly"  should of said to stay dilligent.  Regardless of who the Docs are, they can be "human" too..  Lots of good info here in past postings.. being the patient advocate can help big time..! 

    Ron

  • srbelle1
    srbelle1 Member Posts: 123
    #24
    GSRon said:

    Sorry srbelle.. I should not

    Sorry srbelle.. I should not of used the word "lightly"  should of said to stay dilligent.  Regardless of who the Docs are, they can be "human" too..  Lots of good info here in past postings.. being the patient advocate can help big time..! 

    Ron

    Ron:
    Apology not needed; your

    Ron:

    Apology not needed; your intent was to wake me to the seriousness of this disease. From my experience on breast cancer forums in the '90's, it is patients who provide the best information on all related treatments and side effects.

     

    I am learning about these new, promising treatments which have some not-so-great side effects.

     

    Will keep reading despite a growing anxiety and sadness.

     

    thanks, Sarah

  • foxhd
    foxhd Member Posts: 3,181 Member
    #25
    srbelle1 said:

    Ron:
    Apology not needed; your

    Ron:

    Apology not needed; your intent was to wake me to the seriousness of this disease. From my experience on breast cancer forums in the '90's, it is patients who provide the best information on all related treatments and side effects.

     

    I am learning about these new, promising treatments which have some not-so-great side effects.

     

    Will keep reading despite a growing anxiety and sadness.

     

    thanks, Sarah

    Constance

    I have been Through much of the same journey since march 2011. Active, fit and strong. Next thing it is a nephrectomy with enough mets to fill a football team roster. I was fortunate to have been on the trial drug nivolumab for 18 months with awesome results. But after a few new mets, I am now having Il-2. Still awaiting ct scans on that. However the point is that we are still leading happy productive lives. Concentrate on the goal. Don't waste time worrying. That is unrecoverable time lost. Be proactive. Research your options and persue them. Stay in the drivers seat. And be sure you have the rifght doctors.

  • constance08
    constance08 Member Posts: 7
    #26
    foxhd said:

    Constance

    I have been Through much of the same journey since march 2011. Active, fit and strong. Next thing it is a nephrectomy with enough mets to fill a football team roster. I was fortunate to have been on the trial drug nivolumab for 18 months with awesome results. But after a few new mets, I am now having Il-2. Still awaiting ct scans on that. However the point is that we are still leading happy productive lives. Concentrate on the goal. Don't waste time worrying. That is unrecoverable time lost. Be proactive. Research your options and persue them. Stay in the drivers seat. And be sure you have the rifght doctors.

    thank you for your response

    thank you for your response wishing you well with your nexr scan.

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