Folfiri appears to be working

tachilders
tachilders Member Posts: 313
in Colorectal Cancer #1

As some of you may remember, I started to have ascites build-up due to my peritoneal tumors. They took off 1.7L about 2 months ago and then 3L one month ago. Well, I went in yesterday after another month and there was too little fluid to try and remove. This very likely means the folfiri is controlling the peritoneal tumors. Still have 4-5 weeks before a CT scan but this is welcome news. The best part is that I'm only taking a 60% dose of irinotecan and still getting results. I'm also only getting an 80% dose of 5FU right now. I'm also on avastin but at full dose. Just wanted to post some good news for a change. 

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Comments

  • lilacbrroller
    lilacbrroller Member Posts: 412 Member
    #2
    yay!

    Fabulous news!  Glad it's working! Sealed

     

    - Karin

  • smokeyjoe
    smokeyjoe Member Posts: 1,425 Member
    #3
    lilacbrroller said:

    yay!

    Fabulous news!  Glad it's working! Sealed

     

    - Karin

    Glad it working for you .....

    Glad it working for you ..... keep up the great news :)

  • jen2012
    jen2012 Member Posts: 1,607 Member
    #4
    Great Tedd - glad you got

    Great Tedd - glad you got some good news.  Hope you are feeling well!

  • lp1964
    lp1964 Member Posts: 1,239 Member
    #5
    That is awesome!

    Keep it up. I just hope that you are handling the chemo well as far as the side effects.

    Wishing you further long lasting improvements.

    Laz

  • annalexandria
    annalexandria Member Posts: 2,571 Member
    #6
    That's terrific news!

    I was just thinking about you the other day, wondering how you were doing.  I'm so glad this is helping!

    Hugs~AA

  • tachilders
    tachilders Member Posts: 313
    #7
    Didn't take my chemo today as

    Didn't take my chemo today as bilirubin was 1.9 (normal is 0.0-1.2). I was suspicious that my stent was blocked as I have been seeing signs (light colored stool and orange urine). Had an ultrasound but don't think it will show much. Not sure what the plan is but my NW onc is recommending a MRI of the liver to really see if there is a blockage. If so, we will have to place a new stent. Minor procedure but always a risk of a problem. Main thing is I don't want to be off chemo while messing around with this stent deal. 

  • Chelsea71
    Chelsea71 Member Posts: 1,169 Member
    #8
    Great news that the Folfiri

    Great news that the Folfiri is working.  Can't tell you how much I am rooting for you.  Thanks for the update.

     

    Chelsea

  • hippiechicks
    hippiechicks Member Posts: 509 Member
    #9
    Great news on the Folfiri

    Great news on the Folfiri !!! Laughing

  • tachilders
    tachilders Member Posts: 313
    #10
    hippiechicks said:

    Great news on the Folfiri

    Great news on the Folfiri !!! Laughing

    Well it has been a wild ride

    Well it has been a wild ride since my last post. I had some bad nauseau last weekend (week before Labor Day) and started to have some signs of jaundice. Things got better throughout the week but again felt crappy this past weekend. Was scheduled for chemo wednesday but bilirubin was 1.9 so we held off. Ended up in ER because I spike a fever of 102+ on Monday evening. Of course it was back down to near normal when I got to the ER. Anyway, they detected a gram negative rod infection in my bloodstream and my bilirubin was 5.2 and looking like a clogged stent. Did an ultrasound, MRCP, CT scan and X-rays. been on IV antibiotics since Monday night and will get an ERCP tomorrow to really check my stent. Biggest problem has been the vomiting and lack of appetite. Hopefully we can sort this out and get me home soon. 

  • Nana b
    Nana b Member Posts: 3,030 Member
    #11
    tachilders said:

    Well it has been a wild ride

    Well it has been a wild ride since my last post. I had some bad nauseau last weekend (week before Labor Day) and started to have some signs of jaundice. Things got better throughout the week but again felt crappy this past weekend. Was scheduled for chemo wednesday but bilirubin was 1.9 so we held off. Ended up in ER because I spike a fever of 102+ on Monday evening. Of course it was back down to near normal when I got to the ER. Anyway, they detected a gram negative rod infection in my bloodstream and my bilirubin was 5.2 and looking like a clogged stent. Did an ultrasound, MRCP, CT scan and X-rays. been on IV antibiotics since Monday night and will get an ERCP tomorrow to really check my stent. Biggest problem has been the vomiting and lack of appetite. Hopefully we can sort this out and get me home soon. 

    Awesome! 

    Awesome! 

  • lp1964
    lp1964 Member Posts: 1,239 Member
    #12
    Dear Friend,

    I can't imagine what you are going through even though my third Folfox is kicking my butt too. We have to hang on, because if you really look there is a thousands of reasons to live for and no reason to die, right?

    I keep you in my heart and share your struggle.

    Laz 

  • Chelsea71
    Chelsea71 Member Posts: 1,169 Member
    #13
    tachilders said:

    Well it has been a wild ride

    Well it has been a wild ride since my last post. I had some bad nauseau last weekend (week before Labor Day) and started to have some signs of jaundice. Things got better throughout the week but again felt crappy this past weekend. Was scheduled for chemo wednesday but bilirubin was 1.9 so we held off. Ended up in ER because I spike a fever of 102+ on Monday evening. Of course it was back down to near normal when I got to the ER. Anyway, they detected a gram negative rod infection in my bloodstream and my bilirubin was 5.2 and looking like a clogged stent. Did an ultrasound, MRCP, CT scan and X-rays. been on IV antibiotics since Monday night and will get an ERCP tomorrow to really check my stent. Biggest problem has been the vomiting and lack of appetite. Hopefully we can sort this out and get me home soon. 

    That does sound like a

    That does sound like a blocked stent.  Hopefully they will fix it fast so you can get home ASAP.  Will be thinking about you.

     

    Chelsea

  • annalexandria
    annalexandria Member Posts: 2,571 Member
    #14
    tachilders said:

    Well it has been a wild ride

    Well it has been a wild ride since my last post. I had some bad nauseau last weekend (week before Labor Day) and started to have some signs of jaundice. Things got better throughout the week but again felt crappy this past weekend. Was scheduled for chemo wednesday but bilirubin was 1.9 so we held off. Ended up in ER because I spike a fever of 102+ on Monday evening. Of course it was back down to near normal when I got to the ER. Anyway, they detected a gram negative rod infection in my bloodstream and my bilirubin was 5.2 and looking like a clogged stent. Did an ultrasound, MRCP, CT scan and X-rays. been on IV antibiotics since Monday night and will get an ERCP tomorrow to really check my stent. Biggest problem has been the vomiting and lack of appetite. Hopefully we can sort this out and get me home soon. 

    That sounds terrible, Tedd. :(

    I hope they get you fixed up and home soon.  Keep us posted.

  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    #15
    WooHoo

    Sounds like things are moving in the right direction which is a good way to go. 

    Kim

  • lilacbrroller
    lilacbrroller Member Posts: 412 Member
    #16
    tachilders said:

    Well it has been a wild ride

    Well it has been a wild ride since my last post. I had some bad nauseau last weekend (week before Labor Day) and started to have some signs of jaundice. Things got better throughout the week but again felt crappy this past weekend. Was scheduled for chemo wednesday but bilirubin was 1.9 so we held off. Ended up in ER because I spike a fever of 102+ on Monday evening. Of course it was back down to near normal when I got to the ER. Anyway, they detected a gram negative rod infection in my bloodstream and my bilirubin was 5.2 and looking like a clogged stent. Did an ultrasound, MRCP, CT scan and X-rays. been on IV antibiotics since Monday night and will get an ERCP tomorrow to really check my stent. Biggest problem has been the vomiting and lack of appetite. Hopefully we can sort this out and get me home soon. 

    hang in there..

    Hang in there, Tedd!  Hope you feel better soon.  

     

    take good care

     

    KarinSmile

  • UncleBuddy
    UncleBuddy Member Posts: 1,019 Member
    #17
    tachilders said:

    Well it has been a wild ride

    Well it has been a wild ride since my last post. I had some bad nauseau last weekend (week before Labor Day) and started to have some signs of jaundice. Things got better throughout the week but again felt crappy this past weekend. Was scheduled for chemo wednesday but bilirubin was 1.9 so we held off. Ended up in ER because I spike a fever of 102+ on Monday evening. Of course it was back down to near normal when I got to the ER. Anyway, they detected a gram negative rod infection in my bloodstream and my bilirubin was 5.2 and looking like a clogged stent. Did an ultrasound, MRCP, CT scan and X-rays. been on IV antibiotics since Monday night and will get an ERCP tomorrow to really check my stent. Biggest problem has been the vomiting and lack of appetite. Hopefully we can sort this out and get me home soon. 

    Feel better

    Sounds like things are looking better. I hope you start feeling much better soon.

  • UncleBuddy
    UncleBuddy Member Posts: 1,019 Member
    #18
    tachilders said:

    Well it has been a wild ride

    Well it has been a wild ride since my last post. I had some bad nauseau last weekend (week before Labor Day) and started to have some signs of jaundice. Things got better throughout the week but again felt crappy this past weekend. Was scheduled for chemo wednesday but bilirubin was 1.9 so we held off. Ended up in ER because I spike a fever of 102+ on Monday evening. Of course it was back down to near normal when I got to the ER. Anyway, they detected a gram negative rod infection in my bloodstream and my bilirubin was 5.2 and looking like a clogged stent. Did an ultrasound, MRCP, CT scan and X-rays. been on IV antibiotics since Monday night and will get an ERCP tomorrow to really check my stent. Biggest problem has been the vomiting and lack of appetite. Hopefully we can sort this out and get me home soon. 

    Feel better

    I'm glad things are looking up for you. Feel better soon!

    Lin

  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    #19
    Annabelle41415 said:

    WooHoo

    Sounds like things are moving in the right direction which is a good way to go. 

    Kim

    Hey Tedd

    Get Well, Tedd!

    Hope you get to go home soon...

  • tachilders
    tachilders Member Posts: 313
    #20
    Sundanceh said:

    Hey Tedd

    Get Well, Tedd!

    Hope you get to go home soon...

    Looks like I may get to go

    Looks like I may get to go home tomorrow. They will keep me on IV antibiotics for a week or so after I go home. Bilirubin was down to 2.5 today. They ended up putting a new stent inside the old stent and confirmed infection at the site. I'm ready to get home after a week in the hospital. So boring and I had no energy to really do anything. Only concern now is that my potassium was a tad low this am so I am taking a bag right now. I have been having trouble eating with the nauseau, medicines, some constipation, etc ...

  • hippiechicks
    hippiechicks Member Posts: 509 Member
    #21
    Wishing you all the best!

    Wishing you all the best! Sounds like they have gotten things moving in the right direction.  Glad to hear and will be sending postitive energy to you!

     

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