Tx this week

hwt
hwt Member Posts: 2,328 Member
in Head and Neck Cancer #1

Back up to Mayo in the morning for my 5 days of SBRT high dose targeted radiation. Biopsy is SCC and related back to primary in jaw January 2012. Mayo on-line is amazing. You can see your biopsy reports, scan results, blood work, doctors notes as soon as they post. You are looking at them at the same time doctor gets them. I was stunned when I went to enroll on-line and for security purposes, they asked 5 questions, one was "which of these 5 addresses have you lived at"  one was in KC nearly 20 years ago! Then they asked "which of the following watercraft have you owned" OMG big brother knows everything.  I'm anxious and scared but will be home with tx behind me in 5 days rather than 7 weeks. My brother, sister-in-law and two sisters are flying up with me. I'm blessed with my family and thankful for all my blessings which include the thoughts and prayers from my CSN family too.

Candi 

Comments

  • fishmanpa
    fishmanpa Member Posts: 1,227 Member
    #2
    Best Wishes!

    Positive thoughts and prayers be with you!

    "T"

    PS... Johns Hopkins has a similar interface called "MyChart". I can see all my charts, test results and communicate with my team.

     

  • osmotar
    osmotar Member Posts: 1,006
    #3
    Best Wishes

    Candi...your a fighter...go kick some cancer Azzzzzz. Blessings & light through this journey and treatment.

     

    linda 

  • KTeacher
    KTeacher Member Posts: 1,103 Member
    #4
    Good luck

    and please post if you can.  I am following your case, not stalking!  My daughter has had hospitals like that with the record keeping.  When she was having a problem during her pregnancy, she would look up info on her smart phone to let another doctor know the results.  My sister keeps all of my paperwork and we  hand carry, it has come in handy many times.  Glad so many family members will be going with you.  I always tried to make it to anything my mother had done medically, my older sister was there but she always appreciated the company.  My sister lives close to Stanford so we stay at her house.  My brother-in-law and nephews usually try to distract my husband for a while and my sister is always there with my husband during my surgeries and proceedures.  I know it is sometimes difficult to get on-line, I will be looking for posts but I understand if you are not able to post for a bit.

  • CivilMatt
    CivilMatt Member Posts: 4,724 Member
    #5
    Be strong

    Candi,

    I have read up on SBRT and you are getting the best, you should have great results and in only 5 days!

    It is wonderful to hear so many family members are stepping up to the plate to be with you, the rest of us will be a keystroke away.

    Good luck, see you soon, prayers and good thoughts.

    Matt

  • debbiejeanne
    debbiejeanne Member Posts: 3,102 Member
    #6
    candi, i'm very happy for you

    candi, i'm very happy for you that it will be over in 5 days!!!  it is fantastic that some of ur family can be with you!  i will be praying for you.  post your progress f u can, f not, we'll hear when you get home and feel up to it.  God bless you.

    dj

  • phrannie51
    phrannie51 Member Posts: 4,716
    #7
    Holding you close, Candi....

    One thing we do know....5 days ain't diddley after having faced 7 weeks.....right? Smile  This SBRT sounds like the perfect ticket for kicking a** on a reoccurance.....we'll be waiting to hear from you.

    p

    PS....You are tucked....can ya feel it?

  • donfoo
    donfoo Member Posts: 1,773 Member
    #8
    good luck

    Candi,

    Sounds like you got a plan and good support to boot! You'll be back in a flash so take care. don

  • hwt
    hwt Member Posts: 2,328 Member
    #9
    donfoo said:

    good luck

    Candi,

    Sounds like you got a plan and good support to boot! You'll be back in a flash so take care. don

    Thanks

    I feel "tucked in".  

  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #10
    Kick Butt

    Stay positive, keep strong, kick butt....

    John

  • katenorwood
    katenorwood Member Posts: 1,912
    #11
    Hey Candi !

    Yes I'm so thankful things are moving at a fast pace for you !  And you're right on-line info. is amazing !  I also have done this with the Masonic in Mpls. as it is such a distance in between.  And I can e-mail any and all concerns, and within 24 hrs. I get a phone call from the right person.  My thoughts and prayers are with you !  Katie

  • TracyLynn72
    TracyLynn72 Member Posts: 839
    #12
    Get it!!!!

    Candi...my prayers are with you!  Go get this over with and KICK BUTT!!!  

  • Laralyn
    Laralyn Member Posts: 532
    #13
    I'll be thinking of you!

    I'm glad they're starting quickly so you don't have to wait and think about it. You'll be back home befoe you know it, too. I hope the treatments pass quickly--and zap all the cancer cells out of commission!

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