advice needed

llwright said:

my doctors office is arranging  for me to consult with a liver surgeon for a biopsy. and since the colonoscopy doc refused to give me my results over the phone, even at my urging. im suspeccting its not good news.  yes  i am getting sick of all this waiting. gives me a headache....lol

You're really going through some scary things!  I hope you can get results of endo biopsy sooner than Sept. and liver biopsy turns out ok.  My experience has been that "they" don't take these things as urgently as we do.  Maybe in most cases, the outcome will be the same within a certain timeframe, but they have to know their patients are beside themselves with anxiety while waiting.  Frankly, I don't think they even think about us unless something is in their face (a test result or appontment) and if an appointment, they don't even review our records until just before they step in the door of the room (or sometimes after they enter the room).   I do think there is that there can be a visual appearance on the biopsy samples IF it's an obvious cancer.  At my biopsy, she took extra samples because they didn't look right.  That, however, does NOT replace a microscopic exam and some of us had biopsies that showed only atypical hyperplasia but ended up with a cancer diagnosis after surgery.   

Adding my encouragement and support to you through the waiting game. 

Suzanne

WOW!!!

As Suzanne says above you are really going through it! I hope you have a good support system while you are waiting for these results. I have always found the waiting is worse than dealing with concrete information...no matter how bad!

Hopefully your results will be good, but even if they are not once you move through this waiting phase into the 'action' phase with either a sense of direction or the sigh of relief that all is behind you it will be a better place!

Come back and let us know how you are doing...even if it is to vent!

Kathy

llwright said:

colonoscopy is clear and benign

got results from colonoscopy and the polyps were benign the CT scan and the liver mass says it does not appear as any classic benign lesion so they want to do a biopsy on my liver. i am still waiting on the results for the endometrial biopsy. they have ordered a mammogram and a endoscopy?? to check my stomach. going for mammogram tomorrow and see liver surgeon next week.

So glad the colonoscopy results are good.  Why on earth couldn't he have said that on the phone instead oif keeping you on pins and needles.

llwright said:

OMG is this ever gonna end

6 months ago i had a lump on my left breast. so doc sent me for a mammogram and ultrasound. It turned out to be a cyst,  A few dyas later i got a call saying i had to go for another mammogram. when i got there it wasnt for a mammogram but for a biopsy on my right breast. i got all freaked out because i had no idea and thought everything was fine. the new radiologist decided to do another mammo and ultrasound because she didnt seem to think that i should need a biopsy. so they re did both and said they couldnt find anything but to come back in six months for mammo to follow up.

well i went in this past thursday for mammo. now this morning i got a call from the radiologist to come in again because they want to do an ultrsound. so i asked her if my mammo was clear and she said we need to do an ultrasound...so i said again..is this because of the spot in particular from 6 months ago...and again all she said is" we need to do an ultrasound".....uuuggghh  

i feel like im going to explode. im still waiting on my uterine biopsy results and still have to go for a liver biopsy????

my god!!!! if i get through all this and i come out clear...im buying a lottery ticket!!!

This is such a nightmare.  I feel so awful for you and wish I could give you a big hug.  I guess a cyber hug will have to do.  Are you eating and sleeping ok?  I hate to think what this stress is doing to your poor body.

llwright said:

i know

no kidding connie this has sure been a very trying summer. thanks for the hug i dont know what kind of lesson the almighty up there is trying to teach me,   but enough is enough already!!

I can't believe how much you've been kept waiting! I'm in the USA, but I always make a written request to have my test results (blood work, MRI, UltraSound, PET/CT) faxed to me (we have a home fax machine) as soon as they are in, and if necessary I write that I do not want to wait to talk to the doctor about them before getting them. You can do this written request when you sign in for the tests, as a condition of giving them permission to do the test.

Most recently I got my PET/CT scan results faxed two days after the test, and well before the doctor called me. I much prefer to read results myself, look things up online, and then go into the conversation educated, with my questions ready, rather than the doctor having all the knowledge and power and I just have to listen, unprepared to ask good questions.

If I didn't have a fax machine, I'd ask to be phoned and then to come and pick the results up -- but I'm only 10 miles from the hospital where all the tests are done.

Getting the results mailed would be my last choice, as that can take a long while.

I just want to encourage everyone to be full owner of your tests results. It's your body!

llwright said:

endo biopsy results

good news. endo biopsy is b9 all clear!!!!  they've booked liver biopsy for september 23 unless an available time comes up sooner. go for ultrasound on breast this wednesday. Hopefully these good results keep coming.......:)

Happy for your news!

gamborgr said:

I have been reading your blog

I have been reading your blog - happy for you - in future be strong asking for your results. God Bless you - you are so strong.

 

Great news! So glad you have been jumping clear of EVERY hurdle that has been thrown your way and are almost to the finish line. One more to go and hopefully all clear!

Best of luck and keep us posted.

Kathy