Base tongue and lymph gland op

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Comments

  • jackflash22
    jackflash22 Member Posts: 524 Member
    #22
    fishmanpa said:

    Chiming in

    Hi J Flash,

    Just a note to say welcome and sorry you had to join us. I happened to name my cancer "Jack" after Jack Nicholson from the movie "The Shining" ;)
    There's a lot of good info and support as you begin the journey and you've gotten some great advice and tips already. 

    You didn't mention it but do you have someone there to act as caregiver? Either way, make a list of family and friends with phone numbers just in case you need assistance. I was blessed to have my partner in life Marcia throughout my journey. I know I couldn't have done it without her. 

    Positive thoughts and prayers as you begin your journey.

    "T"

     

    caregiver

    I have a partner but he's nearly blind and has a phobia about illness and hospitals so couldn't get him to visit me the 2 weeks I was having the op and recovering, he lost his daughter to ovarian cancer last year and watched her going down hill rapidly. start to finish 3 months. I have a very supportive family and friends tho'. He was very emotional when I got home.

  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #23
    Welcome

    Not a lot to say that hasn't been said already....

    Welcome...

    Thoughts & Prayers,

    John

  • jackflash22
    jackflash22 Member Posts: 524 Member
    #24
    getting my mask fitted

    getting my mask fitted

  • debbiejeanne
    debbiejeanne Member Posts: 3,102 Member
    #25
    jackflash22 said:

    getting my mask fitted

    getting my mask fitted

    WOW!  that mask is LONG!!! 

    WOW!  that mask is LONG!!!  mine only went below my chin.  i feel lucky...lol. 

    dj

  • jackflash22
    jackflash22 Member Posts: 524 Member
    #26
    debbiejeanne said:

    WOW!  that mask is LONG!!! 

    WOW!  that mask is LONG!!!  mine only went below my chin.  i feel lucky...lol. 

    dj

    mask

    this went down my chest I couldn't move an inch, my granddaughter and I had a laugh, she said I can take it home after and decorate it for a wall hanging, I thought of King Tut'. They put a little tattoo on my chest too and I had a CT scon with blue dye and they did some marking and once they study the CT scan they can make a plan. My treatment starts 19th next month.

  • jackflash22
    jackflash22 Member Posts: 524 Member
    #27
    fishmanpa said:

    Chiming in

    Hi J Flash,

    Just a note to say welcome and sorry you had to join us. I happened to name my cancer "Jack" after Jack Nicholson from the movie "The Shining" ;)
    There's a lot of good info and support as you begin the journey and you've gotten some great advice and tips already. 

    You didn't mention it but do you have someone there to act as caregiver? Either way, make a list of family and friends with phone numbers just in case you need assistance. I was blessed to have my partner in life Marcia throughout my journey. I know I couldn't have done it without her. 

    Positive thoughts and prayers as you begin your journey.

    "T"

     

    name

    I called my neck lump Gerald after a friend with a lump on his neck, his was harmless but always fancinated me when I spoke to him.

  • debbiejeanne
    debbiejeanne Member Posts: 3,102 Member
    #28
    jackflash22 said:

    mask

    this went down my chest I couldn't move an inch, my granddaughter and I had a laugh, she said I can take it home after and decorate it for a wall hanging, I thought of King Tut'. They put a little tattoo on my chest too and I had a CT scon with blue dye and they did some marking and once they study the CT scan they can make a plan. My treatment starts 19th next month.

    there was actually a post on

    there was actually a post on here w/pics where people decorated their masks!!  so, tell your granddaughter, someone else on here thinks like her...lol.

    dj

  • phrannie51
    phrannie51 Member Posts: 4,716
    #29
    jackflash22 said:

    getting my mask fitted

    getting my mask fitted

    Oh I remember that well...

    ...we've had many discussions on here on what to do with that mask once treatment is over.  Some people get arty, and make something with it....myself....I wanted to take mine home and run over it with my Jeep.  No matter what you want to do with it when treatment is over....it's going to be your little buddy for 6 weeks. 

    Spooky looking, aren't they?

    p

  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #30
    jackflash22 said:

    getting my mask fitted

    getting my mask fitted

    MASK

    Mine was like yours also..., came down to almost where the port was inserted..

    JG

  • fishmanpa
    fishmanpa Member Posts: 1,227 Member
    #31
    jackflash22 said:

    mask

    this went down my chest I couldn't move an inch, my granddaughter and I had a laugh, she said I can take it home after and decorate it for a wall hanging, I thought of King Tut'. They put a little tattoo on my chest too and I had a CT scon with blue dye and they did some marking and once they study the CT scan they can make a plan. My treatment starts 19th next month.

    Similar

    Initially where I began prepping for treatment locally they made the mask and it barely touched my shoulders. They did the tattoo dot on the stomach right around the diaphram. After a 2nd opinion, I ended up choosing John Hopkins and had to go through the mask making process again. That mask covered my shoulders down to my chest. There was also a mouthpiece built in that held my jaw in position. When I went for the simulation run the day before rads started I was taken back by how tight it was. Like you, I couldn't move an inch!  It was a little unsettling but I managed. Music helped a lot. 3-4 songs and I was done. 

    Between the mouthpiece and the swelling I found it difficult to breathe so I began using Afrin 30 minutes prior. It opened up my sinuses and helped a lot. I still have my mask. I need to find someone with a shotgun. I want to blow it to itty bitty pieces with a 12 gauge ;)

    "T"

  • jackflash22
    jackflash22 Member Posts: 524 Member
    #32
    fishmanpa said:

    Similar

    Initially where I began prepping for treatment locally they made the mask and it barely touched my shoulders. They did the tattoo dot on the stomach right around the diaphram. After a 2nd opinion, I ended up choosing John Hopkins and had to go through the mask making process again. That mask covered my shoulders down to my chest. There was also a mouthpiece built in that held my jaw in position. When I went for the simulation run the day before rads started I was taken back by how tight it was. Like you, I couldn't move an inch!  It was a little unsettling but I managed. Music helped a lot. 3-4 songs and I was done. 

    Between the mouthpiece and the swelling I found it difficult to breathe so I began using Afrin 30 minutes prior. It opened up my sinuses and helped a lot. I still have my mask. I need to find someone with a shotgun. I want to blow it to itty bitty pieces with a 12 gauge ;)

    "T"

    Mask targeting

    That would be therapeutic we could line our masks up along a fence  then stick a face of the most disliked politician or whatever oand you could blast them. just lately some of our government are sucking the life out of us. 

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