getting ready for onco appt.

camul
camul Member Posts: 2,537
in Breast Cancer #1
Havent seen him for 4 weeks. Am going to see f they can do radiation on my right femur/hip less painful. I was told 3 years ago that I couldnt have more rads to pelvic/hip and spine, but this is a little lower than my hip. When I put weight on my right side it sends pain straight up from my knee to my hip! Just hoping for some releif other han increasing pain meds again.
I am so tired of hearing they have done all they can do for me. I am egen thinking of getting another opinion.
Wish me luck.

Comments

  • SIROD
    SIROD Member Posts: 2,194 Member
    #2
    Radiation Oncologist instead of Oncologist

    I think you should try a second opinion, Carol.  How about asking for an appointment with your radiation oncologist since that is his specialty.  If you no longer have a current one, ask to see the last one you saw or at the radiation center you went.

    Please let us know and good luck,

    Doris

  • SIROD
    SIROD Member Posts: 2,194 Member
    #3
    SIROD said:

    Radiation Oncologist instead of Oncologist

    I think you should try a second opinion, Carol.  How about asking for an appointment with your radiation oncologist since that is his specialty.  If you no longer have a current one, ask to see the last one you saw or at the radiation center you went.

    Please let us know and good luck,

    Doris

    Bumped

    Bumped

  • coco2008
    coco2008 Member Posts: 418
    #4
    SIROD said:

    Bumped

    Bumped

    Will be praying for you.
    God

    Will be praying for you.

    God bless,

    Sandy

  • lintx
    lintx Member Posts: 697
    #5
    Good luck, Carol

     

    I hope your DR will have a plan for pain management.  Let us know how it goes. You're always in my prayers.  Hugs, Linda

  • mommaellen
    mommaellen Member Posts: 195
    #6
    Sending prayers and good

    Sending prayers and good thoughts to you.

     

    Hugs,

    Mommaellen

  • camul
    camul Member Posts: 2,537
    #7
    SIROD said:

    Bumped

    Bumped

    I did ask to see my radiation onco.

    I am having an MRI of my right femur/hip/pelvic on Thursday.  The rads onco is on the tumor board with my onco, so they will put the results befpre the board.  He is checking to make sure that the increased pain is not from a small fracture, then if I can have more rads to that area, I will see the rads onco who did 2 rounds on hips/spine/pelvic region 2 years ago. 

    If it is new tumors in my femur that is causing the issue, I should be able to get it zapped and hopefully it will help with the pain when I walk.  I am also scheduled with a new pain specialist.  I am excited about this one.  She uses holistic medicine in addition to the pain meds.  I have met her and really liked her.  So I am hoping she will have some new ideas, other than just drugging me up! 

    I also really like the rads onco, she is straight up, and the last time had some other ideas that worked. So at least I feel like there may be an answer to reducing pain without just increasing the pain meds.  Too hard to fish when I cant make it to the shore!   I was very happy with my onco setting me up with the 'new' pain specialist!  Wish he would have done this rather than me seeing Dr. Numnuts who dismissed me!  Still laugh over that one.

    Doris, I will keep you posted.

    Carol

     

  • New Flower
    New Flower Member Posts: 4,294
    #8
    mommaellen said:

    Sending prayers and good

    Sending prayers and good thoughts to you.

     

    Hugs,

    Mommaellen

    Carol thank you for the update

    Carol,

    I am glad things are moving forward. I am pro-holistic in addition to conventional treatment. Acupressure can be helpful for pain management. Check at your wellness community or ask your new pain specialist.

    good luck

  • desertgirl947
    desertgirl947 Member Posts: 653 Member
    #9
    SIROD said:

    Radiation Oncologist instead of Oncologist

    I think you should try a second opinion, Carol.  How about asking for an appointment with your radiation oncologist since that is his specialty.  If you no longer have a current one, ask to see the last one you saw or at the radiation center you went.

    Please let us know and good luck,

    Doris

    Yes

    I agree.  I think seeing a radiation oncologist would be a good idea, since you are unsettled.

  • Christmas Girl
    Christmas Girl Member Posts: 3,682 Member
    #10
    camul said:

    I did ask to see my radiation onco.

    I am having an MRI of my right femur/hip/pelvic on Thursday.  The rads onco is on the tumor board with my onco, so they will put the results befpre the board.  He is checking to make sure that the increased pain is not from a small fracture, then if I can have more rads to that area, I will see the rads onco who did 2 rounds on hips/spine/pelvic region 2 years ago. 

    If it is new tumors in my femur that is causing the issue, I should be able to get it zapped and hopefully it will help with the pain when I walk.  I am also scheduled with a new pain specialist.  I am excited about this one.  She uses holistic medicine in addition to the pain meds.  I have met her and really liked her.  So I am hoping she will have some new ideas, other than just drugging me up! 

    I also really like the rads onco, she is straight up, and the last time had some other ideas that worked. So at least I feel like there may be an answer to reducing pain without just increasing the pain meds.  Too hard to fish when I cant make it to the shore!   I was very happy with my onco setting me up with the 'new' pain specialist!  Wish he would have done this rather than me seeing Dr. Numnuts who dismissed me!  Still laugh over that one.

    Doris, I will keep you posted.

    Carol

     

    Am sending my best wishes, Carol...

    With hopes that you'll soon get some really good pain relief.

    Kind regards, Susan

  • VickiSam
    VickiSam Member Posts: 9,079 Member
    #11
    New Flower said:

    Carol thank you for the update

    Carol,

    I am glad things are moving forward. I am pro-holistic in addition to conventional treatment. Acupressure can be helpful for pain management. Check at your wellness community or ask your new pain specialist.

    good luck

    Carol ...

    keeping you close in my heart, and in prayers my dear sweet Carol.. 

     

    Vicki Sam

  • aisling8
    aisling8 Member Posts: 1,627 Member
    #12
    VickiSam said:

    Carol ...

    keeping you close in my heart, and in prayers my dear sweet Carol.. 

     

    Vicki Sam

    Well, that's good

    I like the idea that there's new things to try and do. That has a hopeful feel to it and is much better than continuing to be told the same old no to this and no to that that you've been hearing.

    You're still in my thoughts and prayers.

    xoxo

    Victoria

  • VickiSam
    VickiSam Member Posts: 9,079 Member
    #13
    aisling8 said:

    Well, that's good

    I like the idea that there's new things to try and do. That has a hopeful feel to it and is much better than continuing to be told the same old no to this and no to that that you've been hearing.

    You're still in my thoughts and prayers.

    xoxo

    Victoria

    .. Options, good to have

    more than 1 option - and opinion!  YOU Rock Carol .. get what you DESERVE - !!

     

    KissVicki Sam

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