Bendamustine rash/itching

eweb
eweb Member Posts: 14
in Lymphoma (Hodgkin and Non-Hodgkin) #1

I hope someone has some advice.  A family member is having a terrible time with the itching from his rash.  He's been taking Benadryl, but gets so sleepy.  I'm wondering if anyone has found some other way of managing the rash/itching.  Thanks for any help.

Comments

  • onlytoday
    onlytoday Member Posts: 609 Member
    #2
    Rash

    Hi,

     

    I'm wondering how extensive the rash is?  If it's a smaller area perhaps a steroid cream would work.  If the benedryl works he may just have to go with the tired-ness.  Is this rash happening during infusion or after? 

    I had Bendemustine but was lucky in that the benedryl they gave me with the infusion handled the itchiness.  Everyone reacts so differently to this stuff!

    Hope it gets better soon. 

     

     

  • Rocquie
    Rocquie Member Posts: 869 Member
    #3
    Doctor

    Has this rash and itching been reported to the doctor? If not, perhaps you should do so. Otherwise, have you tried ice? Calamine Lotion? A Benedryl cream? A soak in a bath with Aveeno (oats)?

    Best of luck, I know itching can be maddening!

    Rocquie

     

  • anliperez915
    anliperez915 Member Posts: 770
    #4
    Hi eweb

    Hi Eweb,

    I didn't have Benda, I received Rituxan but did have an allergic reaction which was causing some rash/hives through out my body. I called my Onc and he prescribed Prednisone...my advise would be to call the Oncologist! I remember that my Onc was upset with me for not letting him know sonner! Best of luck ")

    Sincerely,

    Liz

  • eweb
    eweb Member Posts: 14
    #5
    anliperez915 said:

    Hi eweb

    Hi Eweb,

    I didn't have Benda, I received Rituxan but did have an allergic reaction which was causing some rash/hives through out my body. I called my Onc and he prescribed Prednisone...my advise would be to call the Oncologist! I remember that my Onc was upset with me for not letting him know sonner! Best of luck ")

    Sincerely,

    Liz

    itch

    Thanks for all your help and suggestions.  The rash is pretty much all over and did start with Rituxan come to think of it.  Oh yes, the oncs know and have tried a couple of oral meds, but Prednisone is a no go for a number of reasons.  I'll pass on the cream suggestions and others - fingers crossed the rash simmers down soon between cycles.  The frustration with the sleepiness is that his hemoglobian has been well below 90 for 18 months, with transfusions, and he doesn't need the extra fatigue.  Thanks again!

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