Wife diagnosed with TNBC

sunil said:

Update

update..... thanks again providing more information.

Sorry it's been some time since i updated the status. We moved to Denver about 2 weeks ago and we are staying with her sister. Her first Chemo was done on 21st. The day before Chemo, Port was put in and Bone Scan was done. We spend almost whole day in hospital on 20th and she really hard time sleeping. We both end up sleeping in couch becuase she didn't feel comfortable in bed. Next day for Chemo, it took around 3-4 hours. First Adriamycin was given (around 20 mins) and Cytoxan took around 30 mins. Few of us there with us and we talked and talked to give her comfort.

She was given Emend before the chemo and she took it next 2 days. They also prescribed Zofran, Compazine, Ativan for now. She didn't feel that good on Saturday and Sunday and many friends and families were visiting so that didn't help. From next time, I will ask them not to visit for 4 days after chemo. From yesterday she is energized and we have gone to some evening walks as well.

She took compazine during the day and Ativan during the night. She is feeling better so she stopped taking compazine from yesterday but she is still taking Ativan at night. I think it helps her to get good sleep. She didn't have much apetite for first few days after chemo but it's getting better now. Do you suggest fresh fruits? I read somewhere that fresh fruits are not good so we haven't given any.

Planning to go for Wig and scar shopping this weekend. I would appreciate if anyone have good suggestion for the Denver area. She wants to get human hair wig.

Genetic testing is appointment is on June 2nd week.

 

Thanks for updating us.  I will be praying for your wife. 

Hugs, Diane

sunil said:

Genetic Test Positive

update....

Oncologists suggested to do the genetic test early so we could have test results early and make decision. preponed Genetic Test appointment on May 20th and got the results on 30th. The test came back with BRACA1 positive. Test results was told while she was having 6th Chemo. We have scheduled appointment next week to discuss further regarding the test results and what needed to be done. She has almost decided to double masectomy and worry about ovaries later (may need to remove when she is 35). It's been very hard with the BRACA1 positive results for her. We are planning to head back to Los Angeles for the surgery. We are thinking of going with new surgeon this time. Lumpectomy was done Northridge Hospital and had horrible time with the Surgeon trying to get more money from us. We would love to know if any of you done surgery at UCLA and if there is any other good alternate beside UCLA.

She had a horrible time with the 4th chemo (last A&C). Her chemo is on Thursday and used to only have issues till Sunday. But for 4th chemo she didn't feel good for a whole week. Glad that was the last A&C. She already completed 2 taxol and 2 more to go. She is doing better with Taxol. She gets bone ache and we are giving her Clarition and Ibrufen and massage to tolerate with the pain.

will update more and I hope this info will be useful to someone some day......

 

I am so glad she is almost done with her treatments! I remember my last AC was bad, as time went by, side effects lasted longer. But everyone is different. Taxol was much easier for me.

As far as foods, she can have fruit, just need to wash it with soap and rinse it well. You can peel the skin off and give her the inside. She should be OK eating the fruit.

Avoid grapefruit as this fruit tends to affect the effectiveness of certain drugs, including chemo!

If she is losing taste for foods, be sure to use these ingredients in her foods: lemon, olive oil, sea salt and maple syrup. This makes the flavors stronger.

Ativan rocks! About to take mine before my MRI on Monday. I am glad it is helping her.

Sending hugs. She is almost at the end of the tunnel and will soon see the light!!

LoveBabyJesus said:

Your Wife

I am so glad she is almost done with her treatments! I remember my last AC was bad, as time went by, side effects lasted longer. But everyone is different. Taxol was much easier for me.

As far as foods, she can have fruit, just need to wash it with soap and rinse it well. You can peel the skin off and give her the inside. She should be OK eating the fruit.

Avoid grapefruit as this fruit tends to affect the effectiveness of certain drugs, including chemo!

If she is losing taste for foods, be sure to use these ingredients in her foods: lemon, olive oil, sea salt and maple syrup. This makes the flavors stronger.

Ativan rocks! About to take mine before my MRI on Monday. I am glad it is helping her.

Sending hugs. She is almost at the end of the tunnel and will soon see the light!!

Wishing your wife the best of luck! 

Just joined this site. How wonderful that you have been so active in  your wife's treatment! You ROCK!

I am also TNBC, June 2009. Altho I do not fit the mold. I was 58 when I had a lumpectomy, chemo and radiation. I understand it is usually younger women who get this type. Feb 2013 I had a recurrence, but it was a squamous cell carcinoma at a biopsy site, caused by radiation. I just don't fit the statisics anywhere! Anyway, had a mastectomy and doing well. Now I'm looking into prophylactic mastectomy and reconstruction. Wish the Dr had suggested a bilateral at the time. I was too shook up to think clearly.

Hope your wife did well with surgery. 

M