ROLL CALL - JUNE 2013

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  • ptharp
    ptharp Member Posts: 190
    #42
    Roll Call

    Hi Everyone!! Not sure if yo remember me. I have not posted in a while. I went back to work one month after achieving remission. I have been very busy with work not to mention tired at the end of the day. I feel good. I started training for a bike race and in a couple of weeks up to 10 miles. As a result of the chemo I have some light nureoapthy in my left foot and had to have caterack surgery as a result of the steriods I was on during treatment. All is good!!!

     

    Name: Pamala
    Age: 54
    Location: Bethel, ME
    Diagnosed: October 2, 2012
    Stage: 3C
    Genetics: BRCA1 and Braca 2 Negative
    Treatment: Ultama-debulking surgery Octover 2, 2012; 9 rounds of IV Carboplatin and 18 rounds of Taxol. last one March 6. 2013
    Recurrences, if any: not yet
    Current status: NED for 5 Months
    Current CA125: 3

     

     

  • seatown
    seatown Member Posts: 261 Member
    #43
    Here's my two cents.

    Thanks, Alexandra, for suggesting this.  I always enjoy reading your thoughtful posts.

    My own story:  Age, 67. Diagnosed with primary peritoneal carcinomatosis, stage IIIc (or stage IV? the doctors disagreed) on Friday, the 13th of July, 2012.  You all probably know that peritoneal cancer is treated exactly the same as ovarian cancer & is considered closely related.

    CA 125 on diagnosis, 2700+. CA 125 today, 15.  Treated with taxol/carboplatin July - Dec 2012. Saw gynecologic oncology surgeon in Jan 2013, who suggested surgery to remove what was thought to be the remains of a "dead" tumor.  (Had previously had total hysterectomy, including ovaries, 2008.)

    Had surgery on 2/19/13. Grossly, no sign of cancer, but 3 of 6 biopsies came back positive.  Back on chemo, with Avastin added, in March.  Now on Avastin only; my docs say I'm doing well.  But they don't say NED -- which I'm longing to hear.

    I blog about my course of treatment, results, etc., at http://www.CaringBridge.org/visit/CaroleSeaton

    And I just want to add: I get such a lift from reading the experience of others, especially you long-time survivors.  Thanks & congrats!

     

  • mamajc
    mamajc Member Posts: 22
    #44
    Alexandra said:

    Here!


    Name: Alexandra
    Age: 45
    Location: Toronto, Canada
    Diagnosed: May 3rd, 2012
    Stage: 3C
    Genetics: BRCA1+
    Treatment: debulking surgery Sep. 2012; 7 rounds of IV Taxol/Carboplatin, last one Nov. 2012; abdominoplasty Jan. 2013
    Recurrences, if any: not yet
    Current status: NED for 6 months
    Current CA125: 4


    Roll Call

    Name: Joan

    Age:  55

    Location: WA

    Diagnosed: November 5, 2012

    Stage: 3

    Genetics: BRCA1 BRCA2 negative

    Treatment: Exploratory lap with biopsy November 9 2012 removal of 4 liters of fluid (carcinamatosis of bowel and peritoneal cavity) (inoperable). Inital Ca 125 1846  Three cycles dose dense Taxol (taxol weekly, taxol and carboplatin every 3 weeks). Ca 125 decreased to 34 before surgery in February. February 22 2013 Total abdomenal hysterectomy, removal of bilateral ovaries and fallopian tubes, removal of omentum, tumor debulking, argon beam ablation, peritoneal resection. March 31, 2013 resumed Dose dense taxol regimen. Last taxol was done last Saturday. Last Ca 125 was 8. Multiple blood transfusions, missed a few chemo treatments due to low platelets. Neupogen injections for low neutrophils. Last cat scan in May showed NED. Pulmonary nodule evaluated Early Lung Cancer Detection Unit... not a metastasis (Thank Goodness!). 

    Initially they thought I had papillary serous carcinoma of the ovary.  After my second surgery, they determined that I had Fallopian Tube Cancer.

    Current status: NED

    CA 125: 8

    Next follow up: August

     

  • calafia
    calafia Member Posts: 8
    #45
    Mostly lurking so far

    Name: Calafia

    Age: 65

    Location: Mexico

    Diagnosed: February 2013 after removal of 15x12x10 cm cyst and ovary

    Stage: 1A serous papillary adenocarcinoma with areas of endometrial carcinoma

    Genetics: Not tested but no known family history

    Treatment: Staging surgery (March), dehiscence repair (April), Chemo (May-August) six cycles Carboplatin/Gemzar

    Recurrences, if any: Still in initial phase

    Current status: Five chemo cycles down, one to go! Doing well so far, no major side effects.

    Current CA125: 9.8

    Hugs and many thanks to all!

  • Doodlelady
    Doodlelady Member Posts: 3
    #46
    Roll Call

    Age: 65

    Location: Florida

    Diagnosed: Dec 2003

    Stage: 3A

    Treatment:  Debulking surgery Dec 19, 2003 6 rounds of IV Taxol/Carb

    Current status:  NED

    Current CA125:  6

  • kikz
    kikz Member Posts: 1,345 Member
    #47
    Doodlelady said:

    Roll Call

    Age: 65

    Location: Florida

    Diagnosed: Dec 2003

    Stage: 3A

    Treatment:  Debulking surgery Dec 19, 2003 6 rounds of IV Taxol/Carb

    Current status:  NED

    Current CA125:  6

    This is

    an old roll call.  We've actually lost some of these dear ladies.

    Karen

  • bigjohnaz
    bigjohnaz Member Posts: 9
    edited May 2016 #48
    JoanC said:

    Checking In

    Name: Joan

    Age: 70..on 7/21 can't believe I am that old!

    Location: Salem, Oregon

    Diagnosed: April 2, 2008

    Stage: 3C

    Genetics: Not tested...no family history of disease

    Recurrences: None.... NED since end of treatment 10/6/2008

    Current CA125: 6

     

    JoanC you are a total inspiration and proves there is hope

    My wife is newly diagnosed with stage 3C, possible 4. She just had her first chemo in which she's calling her "Cleansing Treatments", she doesn't like calling it chemo. She's 46 and she doesn't seem a bit scared and she's up for the fight. My problem is I like reading everyone's stories, but they scare me to death. Tonight I was reading all those who have posted lately and I cannot find anyone with OC that joined this page prior to 2009. I am sure there is someone, but that means that maybe a few just stopped posting, but I have a feeling nearly 100% have passed on. I get down and sad when I think of how much pain and suffering women have to go through. But reading your clean bill of health for 8 years really has me smiling. You are simply an inspiration that proves that with each case their is hope and because of you I will take a much elevated attitude as I help my Michele in her fight....big john

  • debrajo
    debrajo Member Posts: 1,095 Member
    #49
    bigjohnaz said:

    JoanC you are a total inspiration and proves there is hope

    My wife is newly diagnosed with stage 3C, possible 4. She just had her first chemo in which she's calling her "Cleansing Treatments", she doesn't like calling it chemo. She's 46 and she doesn't seem a bit scared and she's up for the fight. My problem is I like reading everyone's stories, but they scare me to death. Tonight I was reading all those who have posted lately and I cannot find anyone with OC that joined this page prior to 2009. I am sure there is someone, but that means that maybe a few just stopped posting, but I have a feeling nearly 100% have passed on. I get down and sad when I think of how much pain and suffering women have to go through. But reading your clean bill of health for 8 years really has me smiling. You are simply an inspiration that proves that with each case their is hope and because of you I will take a much elevated attitude as I help my Michele in her fight....big john

    Sad

    Try not to let the numbers get you down!  If you click on the name of the person you are reading about it will take you to their space and you can see when they were on line last.  A lot don't post but do read and check in.  While I don't have OC( I have uterine cancer)my type of cancer, UPSC is called which is a "C" or "3" agression is called a "misplaced" OC and is treated exatly the same.  I was diagnosed in July of 09 and am still here!  Joan, Kate, Marie, and many others are long timers also...we just don't post as often.  The treatments and drugs are changing all the time.  We have lost a lot of people,true, but more just get to live with NED for a life time.  Don't let the non posters make you think we all are gone!  We are still here!  The best of luck to you and Mitchele.  Visit us over on the Uterine board, we have a gentleman, Red Corvete, who post for his wife.  Best, Debrajo, Uterine Board

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