MRI results

tanstaafl said:

extra bullets

Jeff are you using the LEF or Moss type list of alternative adjuncts ?  When we experience sustained suspicion of activity, we incrementally add stuff, another molecular target, anticancer extract/drug off-label, or two, or maybe a higher dose.  We also ramp up blood testing, more frequently and more markers.

At sometime you may strike out with oncs in general, we did.  We use the surgeon(s), a dedicated radiologist, an internal medicine altmed MD who handles many cancer cases, and outside groups like LEF or Riordan Clinic and labs.  

 

Yeah. I am done with this oncologist which is my second one. I will just see my surgeon for surveilance and follow up care. No more oncologist unless the day comes where i need treatment avain.

BTW  if i end up having surgery. No chemo afterwards. Done the mop chemo 3X  and I am over it now.

danker said:

oncologisi

All my initial doctors, other than my internist, were just given to me.  When the results of the colonoscopy was a tumor, The hospital just scheduled me to see a surgeon on Monday. They also selected my oncologist, who was the biggest jerk i've ever met.  Upon realizing this, I went to my surgeon, the most caring doctor I have ever met, with a list of three oncologists at the hospital.  The surgeon gave me a consult with my new oncologist.  Over three years later I still see this onc.  When I told my wife I was going to fire the first one, she said:"youj cannot do that!" I said just watch me. Ultimately we are paying these people and I don;t want to pay him any longer.  

So if you think you need a change, go for it!!!!

It was the same way with me in the beginning. The jospital just made appointments for surgeons and oncologist. This oncologist is my second one after i fired the one the hospital sent me to. I am ready to change again if i need one. For now i am just going to let my surgeon handle everything. If it turns out to be cancer and i have another resection with clear margains and no other evidence of disease i will NOT be doing mop up chemo.

Deena11 said:

Thinking about you

You sure have gone on a wild rollercoaster ride. I'd go the some route as you have decided to go...get another (3rd) Onc.  You have always been a top contributor on this board.  We are all pulling for you!!

Deena

I know you all are but thank you for saying so. Its good to hear.

lp1964 said:

I apologize,

I didn't intend to make you feel that way.

Again, I'm sorry and wish you the best outcome.

Laz

Thank you Laz. As you can see we are all a little sensitive around which I am sure you are as well. Afterall it is a sensitive subject that is all personal to each of us in our own way. I try to keep that in mind and choose my words carefully when I am posting. I wish you the beas as well. I care for everyone here as if they were family.

lp1964 said:

Thank you for accepting...

...my apology. It was a big relief. The last thing I want is to offend anyone here, but your emotions just got a hold of me too. I haven't gone through a fraction of what you have, but I want you to know that I deeply care about each and every one of us here.

I have my surgery coming up in like 6 weeks. I saw 4 surgeons already and I was treated on a very superficial level. If they promised to look at the CR and call me back, they didn't. One was checking his text while I was talking, so I had to stop to get his attention. Needless to say I'm getting nervous about it.

Take care till next time.

Laz

Yeah dealjng with some of these doctors can be so frustrating. I feel your pain. You will be fine though. You ar doing the right thing by not rushing into it like so many of us do including me when first diagnosed. That is why it is no big deal for me to wait 3 months and rescan. Years of experience are paying off. 

Its normal to be nervous. I was scared to death before my fourth surgery and I really dont want another surgery. However i would take surgery of chemo in a second.