Qustion about Human growth hormone treatment

rnayriv said:

I will definitely benefit

I will definitely benefit from treatment as I live in bed most days of my life now. I suffer from extreme fatigue and muscle weakness, bad memory and many more problems. So yes I would be having better quality of life from treatment. I told the doctor that by chance if any cells where left behind that I'm being scanned regularly and it would be picked up as soon as it showed up. My height has nothing to do with it my health does. The doc just got me second guessing my decision to go forward with treatment.

 

Understood - it could be a rsik as RCC is not typical and coupled with the fact it can lurk and show up yrs later -  doesn't always show up in an area that a surg. can remove it. Over the yrs we have known people  who have had it in odd places - it can go anywhere. There are common places - but there are many uncommon places as well. There is no known cure other than surg. for RCC and HDIL2 - but the new drugs are showing promise. This si your personl decision and  we support you in anything you decide. Your endo is looking at the risks carefully as they should. Won't bore you with diet or meditation but wonder if you have tried anyhting to help in another way?

First of all, I'm sorry to hear that you aren't feeling well.  I'm also impressed with your quest to improve the quality of your life.  I do hope that my comments don't upset you, but you did ask for opinions. 

I don't understand taking a hormone replacement when the endocrinologist has advised against it.  The endocrinologist is the specialist dealing with hormone replacement.   My suggestion to you would be to get a second opinion from another endocrinologist. 

Regarding seeing the urological surgeon:  We only had one post-op visit.  We followed up with our regular family practice doc and of course the RCC oncologist.

I think you are so "right-on" regarding questioning if it is safe, considering you had kidney cancer.  I do know that growth hormone promotes cell growth.  If you had any lingering cancer cells they would also be affected, along with normal cells, by this medication.  I think that is what your endocrinologist is saying to you.  I tend to agree.  And I wonder if your cancer would have been worse than it was if your growth hormone levels had been normal. 

I would see a second endocrinologist.  I would also discuss the situation with an oncologist and get their opinion.  After that I would make my decision regarding the risk I was willing to take in order to "perhaps" feel better. 

I was also wondering if you could go to a "symptom management" team to work with you on these other symptoms that you are experiencing.  I do wish you the best and hope that you feel better soon.  Everyone here cares about others and I'm really sorry if I have said anything that upsets you.  I'm trying to be helpful.

rnayriv said:

second opinions

My medical group only has one Endocrinologist. I don't have a RCC oncologist since I was only stage 1 grade 1 they consider me cured. The only follow up doctor they have me seeing is the urologist. I see a hematologist/oncologist for my anemia and got an opinion from him which was its up to me. He doesn't know anything about HGH deficiency.

I have so many different research projects running at the same time that it took me until now to investigate this issue a little further. 

I realize that you said that you had made your decision based on evalutating all the risks and rewards - which clearly was my clue to bow out of the discussion.  However, before closing the matter forever I wanted to confirm that you had been aware of the points raised by Dr. Ray Peat here:

http://raypeat.com/articles/articles/growth-hormone.shtml