New Flower / Olga -- How are you?

VickiSam
VickiSam Member Posts: 9,079 Member
in Breast Cancer #1

We are thinking and praying for you .. Please update us when possible.

 

Love and gentle hugs,

 

Vicki Sam

 

 

Comments

  • SIROD
    SIROD Member Posts: 2,194 Member
    #2
    How Is It going?

    Dear New Flower,

    I have been thinking of you too.  How is it going?

     

    Doris

  • New Flower
    New Flower Member Posts: 4,294
    #3
    SIROD said:

    How Is It going?

    Dear New Flower,

    I have been thinking of you too.  How is it going?

     

    Doris

    Thank you for asking

    It has been very hard to log in. I hope they are working on improvement 

    my news are mixed bag. I will try to post ttonight

    hugs back

  • missrenee
    missrenee Member Posts: 2,136 Member
    #4
    New Flower said:

    Thank you for asking

    It has been very hard to log in. I hope they are working on improvement 

    my news are mixed bag. I will try to post ttonight

    hugs back

    wondering, too, New Flower

    I also having been wondering how you're doing and sending prayers.  Hope to hear.

     

    Hugs, Renee

  • mom62
    mom62 Member Posts: 604 Member
    #5
    Thinking of You

    Olga,

    I was thinking of you today so I thought I would post here as well.  I know you are struggling and want to send hugs and prayers your way.  Keep your chin up, you are one stong woman!

    Love, Terry

  • New Flower
    New Flower Member Posts: 4,294
    #6
    mom62 said:

    Thinking of You

    Olga,

    I was thinking of you today so I thought I would post here as well.  I know you are struggling and want to send hugs and prayers your way.  Keep your chin up, you are one stong woman!

    Love, Terry

    Update 7-21

    Dear Friends

    Thank you for thinking about me.  News about Linda and Claudia moving to the hospice care havemade me very sad and heartbroken. I hope and pray there are feeling comfortable and free of pain

    Physically I am feeling better. I returned to my full-time  job and can drive again.!!! If you remember I have been participating in clinical trails and was getting a combination of Faslodex and experimental drug BKM 120. Initially I got shingles, then everything was going ok, however I felt that the combo was very hard to handle. After 3 months on the trial I was temporary took off the drug BKM 120 due to multiple side effects, including liver function and other blood parameters below acceptable range. My AST was 146, ALT 301. Plus I got Chemo brain.  It was awful, took several infusions of fluids , zofran, pepsin, ect. My recovery was slow, and by the time I was going to resume the drug at lower dose  the study sponsor (pharmaceutical company) decided to take me  off BKM120/placebo indefinitely because I have been off so long due to toxicity. Honestly, I am having a nixed feelings about sponsor's decision. while it was toxic at high dose, we belived it was in part efficaciuos against cancer. Here I am, continuing Faslodex treatment and hopping for the best. My CT scan is scheduled for tomorrow 7/22 at 10:40, my visit to oncologist is on 7/25.

    I will let you know what is next for me.

    Hugs 

    Olga

  • Christmas Girl
    Christmas Girl Member Posts: 3,682 Member
    #7
    New Flower said:

    Update 7-21

    Dear Friends

    Thank you for thinking about me.  News about Linda and Claudia moving to the hospice care havemade me very sad and heartbroken. I hope and pray there are feeling comfortable and free of pain

    Physically I am feeling better. I returned to my full-time  job and can drive again.!!! If you remember I have been participating in clinical trails and was getting a combination of Faslodex and experimental drug BKM 120. Initially I got shingles, then everything was going ok, however I felt that the combo was very hard to handle. After 3 months on the trial I was temporary took off the drug BKM 120 due to multiple side effects, including liver function and other blood parameters below acceptable range. My AST was 146, ALT 301. Plus I got Chemo brain.  It was awful, took several infusions of fluids , zofran, pepsin, ect. My recovery was slow, and by the time I was going to resume the drug at lower dose  the study sponsor (pharmaceutical company) decided to take me  off BKM120/placebo indefinitely because I have been off so long due to toxicity. Honestly, I am having a nixed feelings about sponsor's decision. while it was toxic at high dose, we belived it was in part efficaciuos against cancer. Here I am, continuing Faslodex treatment and hopping for the best. My CT scan is scheduled for tomorrow 7/22 at 10:40, my visit to oncologist is on 7/25.

    I will let you know what is next for me.

    Hugs 

    Olga

    Dear Olga...

    Sending my most hopeful best wishes for good results from your scan tomorrow. Please do keep us posted.

    Kind regards, Susan

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