PET scan results

tachilders
tachilders Member Posts: 313
edited July 2013 in Colorectal Cancer #1

Well, the news was as expected, which is that pretty much every tumor they saw on the CT scan lit up on the PET scan. The SUV values were from 3.6 to around 10.5 which the oncologist said was moderate for uptake. He said he has seen values up to 80 or more so my tumors aren't hyperactive. Unfortunately, this is more evidence that the hallwang treatments did not really help much if at all. I  started folfiri plus avastin today so hopefully that will slow or stop my progression. There was more ascites noted on the scan so I will likely get that removed next week as it can take up the chemo drugs and lead to bone marrow suppression by slowly releasing drug into my system. Looks like I am really relying on irinotecan at this time so I hope it works for me or I may be in trouble. I've always worried about this and it looks like the time to worry is here. Oddly enough I feel pretty good even with the cancer progressing. My liver enzymes are good as are my blood counts so I have a lot of fight left in me. Just have to get the tumor growth back under control or stopped/shrinking. Wish me luck. 

Forgot to mention that I also had a spot light up on a rib but onc doesn't think it is bone metastasis as the CT didn't confirm a tumor there. Either way I'm doing folfiri plus avastin. Waiting on the interpretation from my onc at Northwestern. I'm 13 months into this and have done FOLFOX plus avastin for 6 months then 5 fu plus avastin then Xeloda plus avastin and now folfiri plus avastin. I did have about a 6 week break in Germany where I had TACE (mitomicin C, irinotecan, avastin) and removab. 

Comments

  • Chelsea71
    Chelsea71 Member Posts: 1,169 Member
    Hey Tedd. Good luck with the
    Hey Tedd. Good luck with the Folfiri. It helped Steve a lot. Good QOL while on it. Thanks for the update. Great that your feeling so well. That's what's important.
  • tachilders
    tachilders Member Posts: 313
    Chelsea71 said:

    Hey Tedd. Good luck with the
    Hey Tedd. Good luck with the Folfiri. It helped Steve a lot. Good QOL while on it. Thanks for the update. Great that your feeling so well. That's what's important.

    Had some cramping and nausea

    Had some cramping and nausea last night (no vomiting) after the first folfiri infusion, but managed to get some sleep finally.  Now just waiting to see if today brings the diarrhea that is very common.  Yesterday I actually had firmer than normal output due to the pre-meds they give me before the infusions.  Here's hoping the irinotecan works well for me....   

  • jen2012
    jen2012 Member Posts: 1,607 Member
    Hi Tedd,  I'm sorry things

    Hi Tedd,  I'm sorry things aren't improving but glad you are feeling well.   You aren't catching a break - I hope the folfiri gives you a well deserved break.  I hope you are able to enjoy summer with your family.

  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    jen2012 said:

    Hi Tedd,  I'm sorry things

    Hi Tedd,  I'm sorry things aren't improving but glad you are feeling well.   You aren't catching a break - I hope the folfiri gives you a well deserved break.  I hope you are able to enjoy summer with your family.

    Good Luck, Ted...

    Hoping for a positive response to treatment...

  • lp1964
    lp1964 Member Posts: 1,239 Member

    Had some cramping and nausea

    Had some cramping and nausea last night (no vomiting) after the first folfiri infusion, but managed to get some sleep finally.  Now just waiting to see if today brings the diarrhea that is very common.  Yesterday I actually had firmer than normal output due to the pre-meds they give me before the infusions.  Here's hoping the irinotecan works well for me....   

    Hi Ted,

    I just wanted to wish you good luck with your treatment.

    Laz

  • geotina
    geotina Member Posts: 2,111 Member
    Ted:

    I'm sorry the news was not better.  Just keep puting one foot in front of the other.  The new drug can be tough in a different way than Folfox. 

    Wishing you the best.

    Tina

  • joemetz
    joemetz Member Posts: 493
    thanks for sharing

    Ted

    thanks a bunch for sharing.

    Many of us are in this with you.  Keep up your fight!!!

    Don't begin to worry about the cancer... try like heck to set your sites on something or some event or some family occation that you want to see or be at NEXT year!

    I have my mind focused on June 1, 2014

    my son will graduate from high school, my other son will graduate from College.

    After that happens, and I'm still here... I will focus on another family event, that is six months to a year out.

    keep up the fight man.

    positive attitude. reduced stress. and enjoy the wonder of the wonderful people around you.

    thinking of you and pulling for you.

    let's do our best to beat this sh#t!

    Joe

     

  • lp1964
    lp1964 Member Posts: 1,239 Member
    joemetz said:

    thanks for sharing

    Ted

    thanks a bunch for sharing.

    Many of us are in this with you.  Keep up your fight!!!

    Don't begin to worry about the cancer... try like heck to set your sites on something or some event or some family occation that you want to see or be at NEXT year!

    I have my mind focused on June 1, 2014

    my son will graduate from high school, my other son will graduate from College.

    After that happens, and I'm still here... I will focus on another family event, that is six months to a year out.

    keep up the fight man.

    positive attitude. reduced stress. and enjoy the wonder of the wonderful people around you.

    thinking of you and pulling for you.

    let's do our best to beat this sh#t!

    Joe

     

    What a wonderful idea Joe...

    Focusing on a pleasent event further out in the future. What an inspireing thought, even though it's so obvious. This will stay with me for ever.

    Thank you Joe.

    Laz