Waiting

GSRon
GSRon Member Posts: 1,303 Member
in Kidney Cancer #1

Ok so here I am at Stanford. Waiting for my oncologist with the news. This is my first scan results on the Votrient. Thinking about the Tom Petty song.. The waiting is the hardest part..

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Comments

  • alice124
    alice124 Member Posts: 896 Member
    #2
    Know we're there with you

    Know we're there with you Ron. Positive thoughts coming your way.

  • Eims
    Eims Member Posts: 423
    #3
    positive vibes are coming

    positive vibes are coming your way from waaaaaaay across the pond....thinking of you...

    eims x

  • GSRon
    GSRon Member Posts: 1,303 Member
    #4
    Eims said:

    positive vibes are coming

    positive vibes are coming your way from waaaaaaay across the pond....thinking of you...

    eims x

    Houston

    Houston we have shrinkage. Love you all. Ron

     

  • dhs1963
    dhs1963 Member Posts: 513
    #5
    GSRon said:

    Houston

    Houston we have shrinkage. Love you all. Ron

     

    And in this case, shrinkage is good

    Congrats!

  • foxhd
    foxhd Member Posts: 3,181 Member
    #6
    GSRon said:

    Houston

    Houston we have shrinkage. Love you all. Ron

     

    Still a sick bunch

    Here is the issue of cancer and responses are in the form of jokes. NICE work Ron!!!!!!!!!!!..................I just can't come up with anything funny.  :(

  • GSRon
    GSRon Member Posts: 1,303 Member
    #7
    foxhd said:

    Still a sick bunch

    Here is the issue of cancer and responses are in the form of jokes. NICE work Ron!!!!!!!!!!!..................I just can't come up with anything funny.  :(

    more info

    So the rest of the story. I am off of the Votrient again. My liver Biliruben is high. So off of the drugs and get blood tests weekly. As my oncologist said it is good to kill my liver. Time for a drink. Ron

  • GSRon
    GSRon Member Posts: 1,303 Member
    #8
    foxhd said:

    Still a sick bunch

    Here is the issue of cancer and responses are in the form of jokes. NICE work Ron!!!!!!!!!!!..................I just can't come up with anything funny.  :(

    more info

    So the rest of the story. I am off of the Votrient again. My liver Biliruben is high. So off of the drugs and get blood tests weekly. As my oncologist said it is good to kill my liver. Time for a drink. Ron

  • angec
    angec Member Posts: 924 Member
    #9
    GSRon said:

    more info

    So the rest of the story. I am off of the Votrient again. My liver Biliruben is high. So off of the drugs and get blood tests weekly. As my oncologist said it is good to kill my liver. Time for a drink. Ron

    Well, good news is that there

    Well, good news is that there is shrinkage (in this case), boo hoo on high billiruben but that is ok. You will take a little break and be back on schedule, at perhaps a lesser dose?  We are glad to hear it!  May this trend continue... all the best to you.. Lay off the beer!  Have the shot of whiskey instead! ;)

  • mrs_blkjak
    mrs_blkjak Member Posts: 103
    #10
    I'm so happy to hear your

    I'm so happy to hear your scan results. Sorry about the bilirubin though. Hopefully a short break and you'll be back on track! My husband has his first ct scan since Votrient on the 29th - hoping he joins you in the shrinkage (that word makes me want to giggle!) club. 

  • GSRon
    GSRon Member Posts: 1,303 Member
    #11
    mrs_blkjak said:

    I'm so happy to hear your

    I'm so happy to hear your scan results. Sorry about the bilirubin though. Hopefully a short break and you'll be back on track! My husband has his first ct scan since Votrient on the 29th - hoping he joins you in the shrinkage (that word makes me want to giggle!) club. 

    Giggle away..!

    Thanks for the kind words and the laughter..!!  I was so happy to hear the shrinkage.. I was just hoping for stability.. but I read the report and all the bad stuff shruk.. and no new stuff showed up...  I was pumped...  Then I got the other news and I felt a bit dejected, but NOT down...  My Onc did not want to talk about what if today... instead she said, hey most likely go back on the Votrient at 200 mg and see how it goes..  I may ask to try the 400 mg though...   The other good part is the break will allow the other side effects to go away... In the end.. much better results than I hoped for.. and it sure could easily of been worse.!

    No beer for me until the IOM... Oh yes my next Onc appointment is the day before I jump on the airplane.. gotta love the irony in that...!!

    OK, so my next search will be to see if there is a better diet to help my Liver...

    Oh my I almost forgot..  I did this Parody on the Paul Simon song...  There must be.. 50 ways to love your liver...  :)

    Be Well All..!!!!!!!!

    Ron :)

  • garym
    garym Member Posts: 1,647
    #12
    GSRon said:

    Giggle away..!

    Thanks for the kind words and the laughter..!!  I was so happy to hear the shrinkage.. I was just hoping for stability.. but I read the report and all the bad stuff shruk.. and no new stuff showed up...  I was pumped...  Then I got the other news and I felt a bit dejected, but NOT down...  My Onc did not want to talk about what if today... instead she said, hey most likely go back on the Votrient at 200 mg and see how it goes..  I may ask to try the 400 mg though...   The other good part is the break will allow the other side effects to go away... In the end.. much better results than I hoped for.. and it sure could easily of been worse.!

    No beer for me until the IOM... Oh yes my next Onc appointment is the day before I jump on the airplane.. gotta love the irony in that...!!

    OK, so my next search will be to see if there is a better diet to help my Liver...

    Oh my I almost forgot..  I did this Parody on the Paul Simon song...  There must be.. 50 ways to love your liver...  :)

    Be Well All..!!!!!!!!

    Ron :)

    Three dogs, liver, and cheese...

    There's these three dogs sitting at a bar, a chihuahua golden retriever, and a shepherd.

    A girl dog walks in, and said "The one who can use liver and cheese in a sentence and make me laugh I will marry."

    The golden retriever goes first. "I don't like liver and cheese."

    "Not clever enough."

    Then the shepherd goes next. "I like liver and cheese."

    "Not clever enough."

    Now the Chihuahua, "Oh liver her alone cheese mine!"

     

    WAY TO GO RON!!!

     

     

  • GSRon
    GSRon Member Posts: 1,303 Member
    #13
    garym said:

    Three dogs, liver, and cheese...

    There's these three dogs sitting at a bar, a chihuahua golden retriever, and a shepherd.

    A girl dog walks in, and said "The one who can use liver and cheese in a sentence and make me laugh I will marry."

    The golden retriever goes first. "I don't like liver and cheese."

    "Not clever enough."

    Then the shepherd goes next. "I like liver and cheese."

    "Not clever enough."

    Now the Chihuahua, "Oh liver her alone cheese mine!"

     

    WAY TO GO RON!!!

     

     

    Oh My.

    Gary, now that was really Cheeeezy..!!

    Thanks for the smile..!

    Ron :)

  • GSRon
    GSRon Member Posts: 1,303 Member
    #14
    foxhd said:

    Still a sick bunch

    Here is the issue of cancer and responses are in the form of jokes. NICE work Ron!!!!!!!!!!!..................I just can't come up with anything funny.  :(

    more info

    So the rest of the story. I am off of the Votrient again. My liver Biliruben is high. So off of the drugs and get blood tests weekly. As my oncologist said it is not good to kill my liver in the process of managing the Mets. Time for a drink. Ron

  • GSRon
    GSRon Member Posts: 1,303 Member
    #15
    foxhd said:

    Still a sick bunch

    Here is the issue of cancer and responses are in the form of jokes. NICE work Ron!!!!!!!!!!!..................I just can't come up with anything funny.  :(

    more info

    dupe.??

  • GSRon
    GSRon Member Posts: 1,303 Member
    #16
    GSRon said:

    Oh My.

    Gary, now that was really Cheeeezy..!!

    Thanks for the smile..!

    Ron :)

    Sorry

    Sorry, nut my one reply was done on my cell phone and left out a few important words.. when I sent to edit it.. it created an extra reply X2.. ooops..!

    Oh Lord. won't you buy me a Mercedes Benz...  I wanted the car but got a big scar instead....

    Be Well All..!

    Ron

  • vtvickil
    vtvickil Member Posts: 18
    #17
    GSRon said:

    Sorry

    Sorry, nut my one reply was done on my cell phone and left out a few important words.. when I sent to edit it.. it created an extra reply X2.. ooops..!

    Oh Lord. won't you buy me a Mercedes Benz...  I wanted the car but got a big scar instead....

    Be Well All..!

    Ron

    You guys are a riot!

    Thanks for the laughs!  Of course the over acheiver in me is feeling inferior cuz I can't tell a joke worth a hoot.  Love that you guys can though - keep 'em coming!  Keep the good news coming too - shrinkage is a favorite thing in our house - at least some kinds of shrinkage ...

  • Texas_wedge
    Texas_wedge Member Posts: 2,798
    #18
    vtvickil said:

    You guys are a riot!

    Thanks for the laughs!  Of course the over acheiver in me is feeling inferior cuz I can't tell a joke worth a hoot.  Love that you guys can though - keep 'em coming!  Keep the good news coming too - shrinkage is a favorite thing in our house - at least some kinds of shrinkage ...

    Shrinkage

    The timing, of course, is critical!  (Not referring to comic timing.)

  • Baaa-bs
    Baaa-bs Member Posts: 50
    #19
    GSRon said:

    Houston

    Houston we have shrinkage. Love you all. Ron

     

    Yay You!

    Congratulations on the good news!

  • Gordon Charles
    Gordon Charles Member Posts: 91
    #20
    George Castanza says....

    Hey!!!! You're stealing my line........

  • MDCinSC
    MDCinSC Member Posts: 574
    #21
    garym said:

    Three dogs, liver, and cheese...

    There's these three dogs sitting at a bar, a chihuahua golden retriever, and a shepherd.

    A girl dog walks in, and said "The one who can use liver and cheese in a sentence and make me laugh I will marry."

    The golden retriever goes first. "I don't like liver and cheese."

    "Not clever enough."

    Then the shepherd goes next. "I like liver and cheese."

    "Not clever enough."

    Now the Chihuahua, "Oh liver her alone cheese mine!"

     

    WAY TO GO RON!!!

     

     

    Gary,

    You didn't disappoint me!

    Way to Ron!  I'm bouncing in my chair over your positive news on the shrinkage! It was worth waiting to hear.

    Best to you!

    Michael

     

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