JamieW, Are you home yet?

SIROD
SIROD Member Posts: 2,194 Member

Just want you to know I am thinking of you and hope your surgery went ok.   Post when you are able to do so.

Best,

Doris

Comments

  • VickiSam
    VickiSam Member Posts: 9,079 Member
    Yes, Jaime - we are thinking, and praying for you!

    Please update us when possible .. dear Sister in PINK.

     

    Vicki Sam

     

  • SIROD
    SIROD Member Posts: 2,194 Member
    bump up

    bump up

  • jamiegww
    jamiegww Member Posts: 384
    Doris, Thanks for your concern.

    I'm doing okay but I think I have fluid again so I don't know if that means the surgery did not work.  I hated being in the hospital.  The procedure was done on the morning of the 14th and I had a little melt-down on the 17th when I didn't get to go home. My tubes were removed and I went home at noon on the 18th.  My onc says most people stay much longer so I'm guessing I might have sabotaged my own recovery?  I went yesterday to get my stitches out but I didn't bother making a follow-up appointment.  I feel like someone nailed a piece of metal to my side.  My surgeon sends his patients to ICU after surgery. When I woke up I had two extra IV's that I didn't have before they put me under (one in my foot and one in my wrist) and I had a catheter.  I wasn't there very long before I was given a "sponge" bath.  I was rolled from side to side so much that I felt like my ribs were broken when they finished.  I was sprayed with some cold liquid and wiped down like an animal.  I was moved to a regular room the next day and every time someone offered to bathe me I said no.  For some reason I just feel so violated.  I was in so much pain that at times I opted for a morphine shot even though that shot is extremely painful itself.  My neck is badly bruised on both sides from removing the leaking port and installing the new one.  I'm not sure it was such a good idea for that surgeon to handle the port replacement.  My onc has delayed my chemo until July 11th so I can heal.  I feel like that should give the cancer plenty of time to figure out what it wants to do.  You can probably tell I'm not feeling too optimistic.  I hope you are feeling better!

    HUGS!!!

    Jamie     

  • New Flower
    New Flower Member Posts: 4,294
    jamiegww said:

    Doris, Thanks for your concern.

    I'm doing okay but I think I have fluid again so I don't know if that means the surgery did not work.  I hated being in the hospital.  The procedure was done on the morning of the 14th and I had a little melt-down on the 17th when I didn't get to go home. My tubes were removed and I went home at noon on the 18th.  My onc says most people stay much longer so I'm guessing I might have sabotaged my own recovery?  I went yesterday to get my stitches out but I didn't bother making a follow-up appointment.  I feel like someone nailed a piece of metal to my side.  My surgeon sends his patients to ICU after surgery. When I woke up I had two extra IV's that I didn't have before they put me under (one in my foot and one in my wrist) and I had a catheter.  I wasn't there very long before I was given a "sponge" bath.  I was rolled from side to side so much that I felt like my ribs were broken when they finished.  I was sprayed with some cold liquid and wiped down like an animal.  I was moved to a regular room the next day and every time someone offered to bathe me I said no.  For some reason I just feel so violated.  I was in so much pain that at times I opted for a morphine shot even though that shot is extremely painful itself.  My neck is badly bruised on both sides from removing the leaking port and installing the new one.  I'm not sure it was such a good idea for that surgeon to handle the port replacement.  My onc has delayed my chemo until July 11th so I can heal.  I feel like that should give the cancer plenty of time to figure out what it wants to do.  You can probably tell I'm not feeling too optimistic.  I hope you are feeling better!

    HUGS!!!

    Jamie     

    Jamie I am very sorry for pain and a very difficult procedures

    Jamie,

    I hope you feel better soon. You do need to heal for sure, please try to take care of yourself recovering from surgery. Sending positive thoughts for quick healing and less pain 

    Hugsa

    Olga

  • SIROD
    SIROD Member Posts: 2,194 Member
    jamiegww said:

    Doris, Thanks for your concern.

    I'm doing okay but I think I have fluid again so I don't know if that means the surgery did not work.  I hated being in the hospital.  The procedure was done on the morning of the 14th and I had a little melt-down on the 17th when I didn't get to go home. My tubes were removed and I went home at noon on the 18th.  My onc says most people stay much longer so I'm guessing I might have sabotaged my own recovery?  I went yesterday to get my stitches out but I didn't bother making a follow-up appointment.  I feel like someone nailed a piece of metal to my side.  My surgeon sends his patients to ICU after surgery. When I woke up I had two extra IV's that I didn't have before they put me under (one in my foot and one in my wrist) and I had a catheter.  I wasn't there very long before I was given a "sponge" bath.  I was rolled from side to side so much that I felt like my ribs were broken when they finished.  I was sprayed with some cold liquid and wiped down like an animal.  I was moved to a regular room the next day and every time someone offered to bathe me I said no.  For some reason I just feel so violated.  I was in so much pain that at times I opted for a morphine shot even though that shot is extremely painful itself.  My neck is badly bruised on both sides from removing the leaking port and installing the new one.  I'm not sure it was such a good idea for that surgeon to handle the port replacement.  My onc has delayed my chemo until July 11th so I can heal.  I feel like that should give the cancer plenty of time to figure out what it wants to do.  You can probably tell I'm not feeling too optimistic.  I hope you are feeling better!

    HUGS!!!

    Jamie     

    So very sorry...

    Dear Jamie,

     

    Your experience sounds awful.  I am so very sorry.  Please do make a follow-up appointment just so your doctor can ascertain if the fluid is back or not.  Are you in pain now?

     

    One has to take themselves mentally out of the hospital situation, for you are the body they are working on.  I always pretend that they can have my body.  The real me is somewhere else, walking on a beach or wherever I want to be as I remove myself mentally from the hospital situation.  It works for me, you might need something else.

     

    I hope the hospital invasion of your body has confused your cancer and they have gone to sleep.  I am so sorry that you had such a dreadful time, Jamie.  Hospitals are depressing places to stay.  I am always happy to go home.  I'm ready long before they are to release me.

     

    Best,

     

    Doris

     

  • VickiSam
    VickiSam Member Posts: 9,079 Member
    SIROD said:

    So very sorry...

    Dear Jamie,

     

    Your experience sounds awful.  I am so very sorry.  Please do make a follow-up appointment just so your doctor can ascertain if the fluid is back or not.  Are you in pain now?

     

    One has to take themselves mentally out of the hospital situation, for you are the body they are working on.  I always pretend that they can have my body.  The real me is somewhere else, walking on a beach or wherever I want to be as I remove myself mentally from the hospital situation.  It works for me, you might need something else.

     

    I hope the hospital invasion of your body has confused your cancer and they have gone to sleep.  I am so sorry that you had such a dreadful time, Jamie.  Hospitals are depressing places to stay.  I am always happy to go home.  I'm ready long before they are to release me.

     

    Best,

     

    Doris

     

    Jamie...

    I am so very sorry for your pain and suffer ... You truly are a WARRIOR, and a HERO in my book !!!

    Please KNOW that there are many of us Sisters in PINK - here that think about you, pray for you daily.

    Gentle hugs,

    Vicki Sam