HELP

Above the title in each post, written in blue, it says "Add to favorites | Manage your favorites." If you want a particular post to be a favorite, click add to favorites. If you want to see  your list of favorites, click Manage Your Favorites and it takes you to all the posts that you have selected. You can click on the name of the posting you want and it will bring you to it. This way you can keep track of any posts that you would like to keep track of. It is much easier and less time consuming than scrolling back through pages from the past.

Or you can scroll back through the discussion boards by clicking the numbers at the bottom of the page  or the arrow. 

I looked up severeal of your posts and you do have a good number of people responding to you. You have been getting between 10 and 20 some people responding. I thnk that is a very good turn out.

On breastcancer.org, there is a forum called Mixed Type Breast Cancer . It is totally devoted to women more than one type of breast cancer. Go to breastcancer.org,  In the upper right hand corner is the link to Create an Account, written in white (although you don't have to join just to browse like here, but you can not post and have private messages unless you are a member). Create your account. Then tap the Discussion Boards in white at the upper right hand side of the screen.

There are several ways to look up forums, All Topics presents the Name of the overall forum and the most recent post beneathe. Active Topics, includes the topics with the most recent post. They can be from any forum. Beneathe the blue panel of choices on the left hand side, there is a white box. Click on that box and it will give you a shortened version of the main forums. Select one and hit the arrow to the left.

I hope this helps.

cinnamonsmile said:

Above the title in each post,

Above the title in each post, written in blue, it says "Add to favorites | Manage your favorites." If you want a particular post to be a favorite, click add to favorites. If you want to see  your list of favorites, click Manage Your Favorites and it takes you to all the posts that you have selected. You can click on the name of the posting you want and it will bring you to it. This way you can keep track of any posts that you would like to keep track of. It is much easier and less time consuming than scrolling back through pages from the past.

Or you can scroll back through the discussion boards by clicking the numbers at the bottom of the page  or the arrow. 

I looked up severeal of your posts and you do have a good number of people responding to you. You have been getting between 10 and 20 some people responding. I thnk that is a very good turn out.

On breastcancer.org, there is a forum called Mixed Type Breast Cancer . It is totally devoted to women more than one type of breast cancer. Go to breastcancer.org,  In the upper right hand corner is the link to Create an Account, written in white (although you don't have to join just to browse like here, but you can not post and have private messages unless you are a member). Create your account. Then tap the Discussion Boards in white at the upper right hand side of the screen.

There are several ways to look up forums, All Topics presents the Name of the overall forum and the most recent post beneathe. Active Topics, includes the topics with the most recent post. They can be from any forum. Beneathe the blue panel of choices on the left hand side, there is a white box. Click on that box and it will give you a shortened version of the main forums. Select one and hit the arrow to the left.

 

I hope this helps.

This is not the same type of BC that I have.  Have you tried Susan Love's Breast Book?  It covers many diffent types of BC.  In fact it explains every thing from normal breast growth to different types of CA, sizes of CA, possiblle treatments and side effects, and so much more.

You can find it on Amazon and if you have a kindle you can purchase it on Kindle for a bit less than physical book form.

Hope this helps you.

Sandy

I am so very sorry that you are going through this.  You must be in shock (I would be) and what a confusing diagnosis!

You have discordant breast cancer.  Typically, the discordance is between the primary tumor and the metastatic tumor.  For example, My original tumor was estrogen +, progesterone + (her2? because they did not test for it in 1987).

Recently, I was diagnosed with liver mets that is estrogen and progesterone negative and her2neu +. 

This situation is becoming more "common" as more biopsies are done to make sure recurrences haven't changed from the primary tumor and, if they have, the best way to treat them.

Your case is unique as I believe you have a primary IDC in each breast and they are discordant?  I would ask your oncologist more questions about your situation.  There is also nothing wrong with a second opinion.  Although I have had the same onc for 26 years, I have gotten many second opinions along the way.  My onc always wants to hear what is said and listens carefully and gratefully to another opinion.

It may be that we will become more aware of situations like yours as more testing is done.

I know this is a blow but don't give up.  My Stage 3 cancer was considered a poor prognosis in 1987 (large tumor, 4 nodes), but here I am 26 years later.  I am still fighting but I am doing ok.

Big hugs and prayers.  Please let us know how you are doing!