Greetings from an old friend

'bout time!  I've often wondered how you are doing.  You were about a year ahead of me in treatment so your posts were timely and helped me know what to expect.  Glad you are living well.

PS I also found I look good with very short hair and have retired the blow dryer and hairspray.

Hi Liz!  I am a newbie to this site, just a few months. I cannot believe how much I learn from these wonderful women everyday and how inspiring they all are.  My doctors thought I was stage 1 until my surgery, I was diagnosed at stage 3.  After months of chemo and 25 rounds of radiation, I am back at work for the last 2 1/2 months.  I am having a  difficult time focusing, processing, multitasking, remembering things (darn chemobrain), etc.  I am even emotional at times (i.e. crying).  It is very frustrating.  I feel like I am going crazy sometimes.  I am use to being able to do it all (talk on a conference call, respond to emails, answer question all at the same time) without missing a beat, but now I find it so hard to even process what people are asking.  I noticed, the more stressed I am, the worse it gets.  I am already finding ways to eleviate my stress.  I am a very laid back fun person normally, but I feel so off balance.  Did you have the same issues?  How did you manage? 

I am so glad you are doing well.  We all need to hear that.  You gave some great advice about things to look forward to for the "newbies".  Continue to celebrate life.

Nancy give your body and mind time to recover to the " new normal".  It has been a year since my last chemo and I still have periods of chemo brain.  I can understand you being emotional, too.  You have been through so much.  Glad you have found ways to de- stress your life.  In peace and caring.

jazzy1 said:

Liz

Great to see you're doing well!!  Love the picture and now you undestand why we all love short hair...took loosing it to see how easy it is to take care of each day.  As Debra posted, don't be a stranger as we have some newbies here and they need some experience from the oldsters.  Sorta like our time to give back to help others.  

Nancy, Chemo brain is very real and I dealt with it for years, relying on post-its all over my home and car.  Don't know if this is helpful, but someone has mentioned a supplement called Acetyl Ch, which helps chemo brain.  I didn't try it as only found out about it 6 months ago.  Might be an option.  As well over the past year really adding lots of coconut oils in my cooking, food prep, etc, and come to find, this product is helpful with our brains.  My memory has gotten so much better and wondering if attributed to my consumption of coconut oil.  

Hugs,

Jan

 

Thanks for the advice ladies.  I truly appreciate it.  I'll try the coconut oil.  I am not sure I like my new normal though.  LOL  Maybe its my body way of telling me to slow down. 

if i do too much, I get physically ill.  Is that normal?

LizGrrr said:

Chemo brain - oh yes, it's real

Nancy, you are not going crazy!  It's easy to get frustrated, but if you work amongst a supportive group it's also easy to laugh at yourself and move on.  And it's not necessarily permanent - long lasting, for sure, but I feel sharper mentally than before I was diagnosed.  

I *will* say this:  I have lost most of my ability to do math in my head!  Calculators are my new best friends.  I even have a hard time counting objects.  I do count myself lucky that that appears to be the worst of it.  Still, I'd say it was a good six or seven months post-treatment that I felt 100%.

Give yourself time and be patient with yourself.  The human body is amazing in how it heals from great trauma.

One thing that helped me cope with the stress is getting real particular about boundaries.  At the time I went back to work, I had an awful boss who wanted me to work 10-12 hours a day.  Instead of grumbling or trying to negotiate, I asked my doctor for a restriction for 2 months of zero OT and took it to HR.  That took care of that.

I've also become more particular about just about everything.  Life is a series of choices, and while I consider myself direct in general, I've gotten even more so about what I will and will not accept.  My desk has become a serious no-BS zone - I tell people what I want and why I want it, and if necessary why what I've ben given is unacceptable and needs to be redone.  At home, if I don't want to go out I don't, or I tell people I'm turning into a pumpkin at a certain time.  If I want something done around the house I do it instead of procrastinating.  (Or maybe that's me being a bit of a control freak after a period of being out of control.  Either way, I am protecting my own best interests.)

Fortunately I had amazing colleagues and partners and vendors and friends and family and they have been kind, cooperative, understanding.  I'm horrified when I hear about others being treated as if they haven't/aren't going through a major life event.

Just as you are your own advocate in terms of dealing with cancer, you are your own advocate for everything else.

You'll get your balance back - give yourself time.  You've been through what no one who's never had cancer will understand.

You go girl!

Liz in Dallas

Hi Liz!  Sorry that it has taken me so long to respond.  I come home from work and I crash.  You sound so much like me.  I just don't have the time for the bs. It'slike I am done with it.  LOL  I work with wonderful people (my boss actually has/had a very rare form of cancer) and my family and friends have been amazing.  I am starting to get better.  It seems as though I have reached a plataeu.  You seem amazing and an inspiration to us all. 

Thank you for the advice.

Nancy

LizGrrr said:

Chemo brain - oh yes, it's real

Nancy, you are not going crazy!  It's easy to get frustrated, but if you work amongst a supportive group it's also easy to laugh at yourself and move on.  And it's not necessarily permanent - long lasting, for sure, but I feel sharper mentally than before I was diagnosed.  

I *will* say this:  I have lost most of my ability to do math in my head!  Calculators are my new best friends.  I even have a hard time counting objects.  I do count myself lucky that that appears to be the worst of it.  Still, I'd say it was a good six or seven months post-treatment that I felt 100%.

Give yourself time and be patient with yourself.  The human body is amazing in how it heals from great trauma.

One thing that helped me cope with the stress is getting real particular about boundaries.  At the time I went back to work, I had an awful boss who wanted me to work 10-12 hours a day.  Instead of grumbling or trying to negotiate, I asked my doctor for a restriction for 2 months of zero OT and took it to HR.  That took care of that.

I've also become more particular about just about everything.  Life is a series of choices, and while I consider myself direct in general, I've gotten even more so about what I will and will not accept.  My desk has become a serious no-BS zone - I tell people what I want and why I want it, and if necessary why what I've ben given is unacceptable and needs to be redone.  At home, if I don't want to go out I don't, or I tell people I'm turning into a pumpkin at a certain time.  If I want something done around the house I do it instead of procrastinating.  (Or maybe that's me being a bit of a control freak after a period of being out of control.  Either way, I am protecting my own best interests.)

Fortunately I had amazing colleagues and partners and vendors and friends and family and they have been kind, cooperative, understanding.  I'm horrified when I hear about others being treated as if they haven't/aren't going through a major life event.

Just as you are your own advocate in terms of dealing with cancer, you are your own advocate for everything else.

You'll get your balance back - give yourself time.  You've been through what no one who's never had cancer will understand.

You go girl!

Liz in Dallas

I also understand about chemo brain, I still have bouts with it.  Mine is with short term memory, I forget what I was going for or doing.  My sister sometimes gets frustrated with me when I forget something she asked me to do and if I have done something in between then I forgot what she asked me to do.  I tell her Hey you know I cannot remember crap anymore, write it down and pin a note on me.  That usually defuses the situation.

Anyway I am glad to hear that you have passed the 2 year mark too! 

Nancy, Hang in there, life does get back to a new normal.  Remember we are here to support you.

Praying for all. trish