Tomorrow is PEG day

TracyLynn72
TracyLynn72 Member Posts: 839
in Head and Neck Cancer #1

 

I ended up in the ER getting 4 more hours of IV fluids today (just had 4 hours of them Monday), I had lost 5 lbs since then and the oncologist was beyond concerned.  My oncologist (not my fave) is on vacation for 2 weeks so the one I like is seeing me.  He sent me right over to the ER and got fluids going and then asked why in the world had I not gotten a PEG yet?  I told him that was a good question as it has never been mentioned and when I mentioned it, nothing was ever said.  So, I go in tomorrow to have one put in.  I'm so relieved as my blood work and urine showed I was very dehydrated and malnourished. Wish me luck!!

Comments

  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #2
    You Go Girl...

    It's amazing how great you feel once you get fluids isn't it....

    Hoping you start feeling better long tern soon...

    John

  • Ingrid K
    Ingrid K Member Posts: 813
    #3
    YEAH....on your PEG

    FINALLY, you needed a PEG weeks ago. 

    Shame on your medical team for not insisting that you have one before now.

    You will feel so much better once you get fluids and nutrition.

    It would be a damn shame to survive the cancer and die of starvation.

  • hwt
    hwt Member Posts: 2,328 Member
    #4
    Ingrid K said:

    YEAH....on your PEG

    FINALLY, you needed a PEG weeks ago. 

    Shame on your medical team for not insisting that you have one before now.

    You will feel so much better once you get fluids and nutrition.

    It would be a damn shame to survive the cancer and die of starvation.

    Good for you

    Glad to hear you finally have someone that you have confidence in. I'm sure you will feel better with the proper hydration and nutrition.

  • CivilMatt
    CivilMatt Member Posts: 4,724 Member
    #5
    PEG you PEG me too

    TracyLynn,

    It is a piece of cake, here’s to you feeling better soon.

    Matt

  • donfoo
    donfoo Member Posts: 1,773 Member
    #6
    yeah!

    Tracy,

    So glad to see progress and you getting a PEG. It was overdue in your case and still a bit baffling in your case as nearly all others report their doctors barking out the treat of getting a PEG ordered in they lose a single pound more, indicating they all know how fundamental basic nutrition and hydration are.

    In fact, for most of us here, THE mantra of HNC forum is hydrate, nutrition, and pain management. If you watch just these three things you will survive and thrive, although the journey may still think you are riding through hell there is sunshine on the other end.

    So glad your spirits seem so much better too. It seems like it is really coming together for you and I am trilled for it! don

  • Duggie88
    Duggie88 Member Posts: 760 Member
    #7
    Tracy

    Cool........I see a turn around in the near future. Here's to hoping this gives you the edge for easier times. Fight on and wishing you luck. T's and P's..............

          Jeff

  • rachel12yrsuv
    rachel12yrsuv Member Posts: 435
    #8
    Tracylynn,
    it feels weird for

    Tracylynn,

    it feels weird for me to say Yeah finally Peg, bit that is how i feel for you, your whole outlook will be different once you start to eat!  You stay tough get nourished and hydrated and get this thing done! Just a side note, i hated my ENT Onc/Surgeon, but none the less he was a genious!

     

     

    praying for you,

    Rachel

  • CherieLW
    CherieLW Member Posts: 472
    #9
    Good luck Tracy! I'll be
    Good luck Tracy! I'll be thinking of you! Let us know how you are doing later! Prayers!
  • Eddie J
    Eddie J Member Posts: 23
    #10
    Peg Day

    After your peg get with a nutrionist to get the right amount of nutrition in regards to calories, carbs ,etc to maintain your weight . and if you have sugar diabetes  should be taken into consideration .Good Luck dont give up.

  • Eddie J
    Eddie J Member Posts: 23
    #11
    Peg Day

    After your peg get with a nutrionist to get the right amount of nutrition in regards to calories, carbs ,etc to maintain your weight . and if you have sugar diabetes  should be taken into consideration . also their is a web site dedicated to peg tube feeding its the OLNEY Foundation. Good Luck dont give up.

  • luv4lacrosse
    luv4lacrosse Member Posts: 1,410 Member
    #12
    Good decision

    Dehydration can trigger numerous other serious issues. Keeping your weight at a consistent healthy number is key also as you may need a little xtra LBS in case your treatment gets rough. 

    Best

    Mike

  • Crazymom
    Crazymom Member Posts: 339 Member
    #13
    Dehydrated

    Good Luck..I went in several times to get extra hydration.  They never seemed to want to do it, but it helped.  Glad you are getting a Peg.  should help   Ann

     

  • TracyLynn72
    TracyLynn72 Member Posts: 839
    #14
    I just had my first meal....

     

    with the PEG and I was terrified at first, but it worked great and I started feeling better very quickly.  The surgery went fine yesterday but they did have to put me completely under.  They had some worries about my airway as I'm still quite swollen from the surgeries, but everything worked out fine.  I'm still quite sore around it and I had some cramping last night, but I can tell the pain is getting less and less.  Thank you all for the support!! I'm so glad this other oncologist was the one to see me.  He could NOT believe my weight had gotten so bad and a feeding tube had never been issued.  The surgeon was baffled too as he said I was very malnourished.  On to better days!!

  • robswife87
    robswife87 Member Posts: 209
    #15
    TracyLynn72 said:

    I just had my first meal....

     

    with the PEG and I was terrified at first, but it worked great and I started feeling better very quickly.  The surgery went fine yesterday but they did have to put me completely under.  They had some worries about my airway as I'm still quite swollen from the surgeries, but everything worked out fine.  I'm still quite sore around it and I had some cramping last night, but I can tell the pain is getting less and less.  Thank you all for the support!! I'm so glad this other oncologist was the one to see me.  He could NOT believe my weight had gotten so bad and a feeding tube had never been issued.  The surgeon was baffled too as he said I was very malnourished.  On to better days!!

    Good to see

    your spirits are up. Once you get the hang of it feeding goes so quick. 

    Your mouth now gets the break it needs and your tummy gets its nutrition. Can't wait until we hear that you have put on some weight or at least stabilized.

    Once you get that nutrition you will start to feel real good.

    Sandy

  • peggylulu
    peggylulu Member Posts: 375
    #16
    TracyLynn72 said:

    I just had my first meal....

     

    with the PEG and I was terrified at first, but it worked great and I started feeling better very quickly.  The surgery went fine yesterday but they did have to put me completely under.  They had some worries about my airway as I'm still quite swollen from the surgeries, but everything worked out fine.  I'm still quite sore around it and I had some cramping last night, but I can tell the pain is getting less and less.  Thank you all for the support!! I'm so glad this other oncologist was the one to see me.  He could NOT believe my weight had gotten so bad and a feeding tube had never been issued.  The surgeon was baffled too as he said I was very malnourished.  On to better days!!

    Peg

    TracyLynn , I am so glad to hear that you got your Peg and that you are feeling better already ! I didn't have to get one as I had plenty of extra weight to lose and I did not have oral surgery so I didn't get dehydrated so I didn't say to much to you but I knew from what I have learned on here that a lot of  your symptoms sounded like you needed a peg ! You are going to feel so much better for the rest of your treatments ! Hang in there .

    Peggy

  • phrannie51
    phrannie51 Member Posts: 4,716
    #17
    Well it's in by now....

    ....and it sounds like it's already working for you.  Makes a huge difference in how you feel doesn't it?  Now the worry of not getting enough nutrition and hydration hanging over you at the same time you feel like schmidt will fade away and you can just do the one foot in front of the other till treatment is over.

    I'm SO SO glad you were able to change your mind about quitting.

    p

  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #18
    TracyLynn72 said:

    I just had my first meal....

     

    with the PEG and I was terrified at first, but it worked great and I started feeling better very quickly.  The surgery went fine yesterday but they did have to put me completely under.  They had some worries about my airway as I'm still quite swollen from the surgeries, but everything worked out fine.  I'm still quite sore around it and I had some cramping last night, but I can tell the pain is getting less and less.  Thank you all for the support!! I'm so glad this other oncologist was the one to see me.  He could NOT believe my weight had gotten so bad and a feeding tube had never been issued.  The surgeon was baffled too as he said I was very malnourished.  On to better days!!

    Awesome News...

    Hopefully when you get back on track the possibility for continuing the last little bit of treatment will be considerd.

    But if not, I hope that everything will continue to be great for you and you have nothing but great things in store for your long and happy life.

    JG

  • Ingrid K
    Ingrid K Member Posts: 813
    #19
    TracyLynn72 said:

    I just had my first meal....

     

    with the PEG and I was terrified at first, but it worked great and I started feeling better very quickly.  The surgery went fine yesterday but they did have to put me completely under.  They had some worries about my airway as I'm still quite swollen from the surgeries, but everything worked out fine.  I'm still quite sore around it and I had some cramping last night, but I can tell the pain is getting less and less.  Thank you all for the support!! I'm so glad this other oncologist was the one to see me.  He could NOT believe my weight had gotten so bad and a feeding tube had never been issued.  The surgeon was baffled too as he said I was very malnourished.  On to better days!!

    Good going

    So glad you got the PEG in now.   You will be feeling better in no time.

    And you will get through the rest of your treatment and be on the road to recovery.

    Wishing you the best.

     

     

  • hwt
    hwt Member Posts: 2,328 Member
    #20
    phrannie51 said:

    Well it's in by now....

    ....and it sounds like it's already working for you.  Makes a huge difference in how you feel doesn't it?  Now the worry of not getting enough nutrition and hydration hanging over you at the same time you feel like schmidt will fade away and you can just do the one foot in front of the other till treatment is over.

    I'm SO SO glad you were able to change your mind about quitting.

    p

    Another giant step!

    Good to hear that you've turned the corner. You really did have a rough go of it. It won't be long now until it's all behind you.

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