Ok, Ok, I give...

TracyLynn72 said:

Oh my gosh...

 

ok, so now the oncologist is being ridiculous.  He is calling me every 30 minutes starting at 8am to "see if you are taking your meds I told you to".  Seriously?  I can not speak. My mouth is burned totally up.  I use a dry erase board to communicate.  He is aware of this.  He called 6 times yesterday before I had my son answer.  I told him if I could lay flat without gagging, I'd start back Thursday (tomorrow). He said that was good because I needed to "toughen up and get it done".  He doesn't think I'm as sick as I am.  He all but told my husband that.  My husband (Trey) wanted to wring his neck. He told us this big thing about how my cancer has a 30-40% chance of returning if I don't do my rads...well,  my surgeon and Levine team talked to Trey yesterday and said I should finish my treatment if I could because you can't have rads twice in the same place.  My surgeon then said "She shouldn't worry too much about that, her chances are less than 10%".  Trey told him what the oncologist said and he said that was very, very outdated numbers and would fax us new ones.  He did.  Trey wants me to be done.  He thinks 6 more treatments will put me back in the hospital.  He is very concerned about me, and I am too.  I look like an 80 year old, malnurished woman.  I'm 40.  I'm truly trying to do all that the doc says to get this crap thinned out.  I am trying.  I'm just so sick of this and my oncologist's attitude.  He's is NOT my favorite! 

 

I am not having any chemo, there was none suggested for me and this type of cancer.  Honestly, rads are used mostly as preventative in the type I had. 

Hi,

I still have sore body parts from getting mugged last week for talking about P.. It was thought to personal and indivdual, so is bantering around prognosis numbers. If anything should be left alone, that would be prognosis. It serves absolutely no good purpose to help patients self assess their own morbity, hpv+ or not. There are too many variables, lot more than P when discussing the impact a set of circumstances has on outcomes.

Plus statistics are just that and still don't have any truer predictive power beyond what you already can surmise.

You will surely drive yourself crazy if you throw life expectency and QOL concerns into the mix of any other discussion or decision. Plenty of other things to worry about.

TracyLynn72 said:

Oh my gosh...

 

ok, so now the oncologist is being ridiculous.  He is calling me every 30 minutes starting at 8am to "see if you are taking your meds I told you to".  Seriously?  I can not speak. My mouth is burned totally up.  I use a dry erase board to communicate.  He is aware of this.  He called 6 times yesterday before I had my son answer.  I told him if I could lay flat without gagging, I'd start back Thursday (tomorrow). He said that was good because I needed to "toughen up and get it done".  He doesn't think I'm as sick as I am.  He all but told my husband that.  My husband (Trey) wanted to wring his neck. He told us this big thing about how my cancer has a 30-40% chance of returning if I don't do my rads...well,  my surgeon and Levine team talked to Trey yesterday and said I should finish my treatment if I could because you can't have rads twice in the same place.  My surgeon then said "She shouldn't worry too much about that, her chances are less than 10%".  Trey told him what the oncologist said and he said that was very, very outdated numbers and would fax us new ones.  He did.  Trey wants me to be done.  He thinks 6 more treatments will put me back in the hospital.  He is very concerned about me, and I am too.  I look like an 80 year old, malnurished woman.  I'm 40.  I'm truly trying to do all that the doc says to get this crap thinned out.  I am trying.  I'm just so sick of this and my oncologist's attitude.  He's is NOT my favorite! 

 

I am not having any chemo, there was none suggested for me and this type of cancer.  Honestly, rads are used mostly as preventative in the type I had. 

would you rather he not be so involved? so many say i don't heard from my doctor. 

i wanted to stop mine at about 32-34 out of 38 treatments. i did not ask the doctor about it as i too could not talk. i used the magnadoodle instead of dry board. i thought so much about it and then finally realized if they felt the best success of survivorship was with less treatments they would have scheduled less treatments. 

that was 17 years ago, and hind site is easy to use. but I sure am happy I did what they told me to do. 

it was somewhat different then, i did not have pain meds like they do now. i did not have nausea meds like they do now. i did not have the option of using a peg tube as it was not an option. 

all that being said, the doctor is not the ultimate decider on what to do is you and your hubby. 

good luck with your choice. 

john