Need some help please!

Hi Tracylynn,

First off, congrats on the single digits! You're almost there! Sorry you're feeling under the weather. Certainly it could be a bug. Regardless, your doctor is right. You need to keep hydrated and nourished. Do you have anti nausea drugs? With nausea and pain, the best thing to do is stay ahead of them. Don't wait until the symptoms are there. If you have the meds, I would be taking them. Hopefully they'll stay down and help alleviate the nausea and vomiting.

The saliva/mucous thing is rough. I started getting that ropey stuff around week 4-5 and it stuck around until 2 weeks post Tx but I had stuff from my sinuses to my throat as well. The baking soda/salt/glutamine rinse helped me. A seen a few folks recommend Mucinex and Robitussin. 

Positive thoughts and prayers

"T"

Take all meds that say anti nausea and anti vomit. Look around you should have plenty of those prescriptions already prescribed based on where you are in the treatment cycles. In any case, note the ones mentioned, they are the main ones, You can always get back to infusion where they can give you some that go via IV, like Emend which I don't think comes orally.

donfoo said:

take the meds

Take all meds that say anti nausea and anti vomit. Look around you should have plenty of those prescriptions already prescribed based on where you are in the treatment cycles. In any case, note the ones mentioned, they are the main ones, You can always get back to infusion where they can give you some that go via IV, like Emend which I don't think comes orally.

Actually it does..., great stuff, expensive but does an awesome job...

It comes in a three day pack similar to a Z-Pak.. That's how I had it, each cycle of three.

First capsule is a little stronger for day one I believe, taken about an hour before first chemo... Next two days, one Emend each morning, both labeld day two and day three...

JG

Laralyn said:

I had some other stuff going

I had some other stuff going on that contributed to my nausea, but part of it was triggered by the mucus. Have you asked about a suction machine? Your insurance will cover it and when you feel the mucus in your throat, you can suck it out before it chokes you. It helped me--hopefully it helps you too!

And yes, get some better meds. Ask about benedryl too. It comes in a liquid form, and can help make you drowsy so you can sleep through the sick spells.

Know that this, too, will pass and soon enough you'll be recovering. :-)

I was given 3 different anti-nausea meds to start and did not experience what you are going through. I can only imagine how miserable that is. You're almost at the end of tx. Hoping the new meds help you.

Laralyn said:

I had some other stuff going

I had some other stuff going on that contributed to my nausea, but part of it was triggered by the mucus. Have you asked about a suction machine? Your insurance will cover it and when you feel the mucus in your throat, you can suck it out before it chokes you. It helped me--hopefully it helps you too!

And yes, get some better meds. Ask about benedryl too. It comes in a liquid form, and can help make you drowsy so you can sleep through the sick spells.

Know that this, too, will pass and soon enough you'll be recovering. :-)

My MM formula has Q-dryl, benydryl and antacid etc so it is partly designed for anti-nausea i think. does not have lidocaine so not so much for pain relief.

They should be able to compound you some swish and swallow that might work better for stopping the nausea, not sure if swish and swallow is the right way to take it though.

robswife87 said:

Vomiting from gag of mucous

Rob vomited several times over the holdiay weekend. He was 6 weeks in and the saliva was so thick, he was gagging and throwing up.

Got him L-Glutamine and put it in his water. He started drinking it right away and it thinned out the mucous. He has not vomited since. He says it works great to thin it out and makes it easier to spit.

Sandy

Glad this is working out. It seemed from your description that Rob could not take any fluilds orally. If he can, then what I find is adding some baking soda to things makes them go down easier. If I were to drink grape jiuce plain, it may sting, If I add a bit of baking soda, it can lower the sting effect. There are lots of things to try to make fluids go down easier.

Of course, a good deep rinse with soda/salt solution always wonders in my camp. That always clears out all sorts of gunk that builds up.

One thing going for me is I do not have nausea or vomit symptoms, so d some other things that probably don't work for you. For example, I use a water pik with the spoon blade thingie. Since gagging is not a big deal for me, I will direct that thing all around sensitive parts of the back of my throat and work out any junk which causes me to gag but the gagging is a sign for me to say, yes, i am shooting the solution on the nasty parts and getting tht crap out of there as well as applying the solution to those senstivve areas. yes, some pain but for me lots of gain.

as to the glutamine, - amino acids in general. these are part of a family of BCCA (branc chain amino acids) some are critical and others not. In fact, L-lucene is the one better shown to work better with protein uptake so it makes a better acid to work while rebuilding torn tissue and muscle.

All the supplemental BCCA including L-glutamine are delivered mixed with other stuff that makes it easier to consume. Here is a link to one of them aminox

Which one of the ingredients adjusts the PH or whatever to the solution but I believe some of these additives makes it easier to swallow.

good luck don

HobbsDoggy said:

Musinex

I had the same issues, maybe not quite as bad.  Musinex helped my lossen the stuff in my mouth and neck.  Did not think it would work, but it did after a day or two.

I know the throwing up deal and it was really difficult for a at least a week, off and on. It did pass and it worked out OK, bur sure did not think it would at the time..

Hope it gets better very fast. 

THERE ARE SO MANY MUCINEX ON THE MARKET, WHICH ONE SHOULD i GET FOR HUBBY GETTNG READY TO START HIS JOURNEY TOMORROW AND HE IS VERY CONCERNED

ABOUT CHOKING.

HE HAD A VERY HARD TIME WITH THE GAGGING POST TONSILECTOMY.

THANKYOU ,

JANET