Nivolumab-Sutent Scan results

Darron
Darron Member Posts: 310 Member
edited June 2013 in Kidney Cancer #1

Great news today from the world of Nivolumab/Sutent. scan summaries for my remaining left adrenal gland tumor:

6 weeks scan-up 10%

12 week scan- down 30%

18 week scan today -down 50%

Doctor feels like the delayed response is more consistent with an immunity response vs. the Sutent.

i just found he site last week and readever about everyone helped keep me calm for scan day.

hate that I am here, but thankful for the company!

 

Comments

  • cjm11
    cjm11 Member Posts: 11
    #2
    I'm very new to all of this

    I'm very new to all of this and don't really understand what you are going through yet, but if it is great news, then congrats!  Cool

  • garym
    garym Member Posts: 1,647
    #3
    Fantastic...

    WAY TO GO DARRON!!!

  • Raine22
    Raine22 Member Posts: 33
    #4

    Congratulations Darron!   That is fantastic news!

    You give me great hope.  I go back 8/23 to see if mine is growing...

    Where are you being treated?

    Have a great weekend!

    Lorraine

  • Darron
    Darron Member Posts: 310 Member
    #5
    Raine22 said:

    Congratulations Darron!   That is fantastic news!

    You give me great hope.  I go back 8/23 to see if mine is growing...

    Where are you being treated?

    Have a great weekend!

    Lorraine

    Charlotte, NC

    Lorraine

    I am being treated at the Levine Cancer Institue in Charlotte.

    Where are you located?

     

  • Darron
    Darron Member Posts: 310 Member
    #6
    Raine22 said:

    Congratulations Darron!   That is fantastic news!

    You give me great hope.  I go back 8/23 to see if mine is growing...

    Where are you being treated?

    Have a great weekend!

    Lorraine

    I waited also

    It is worth mentioning that after surgery, they waited to see if my tumoer was growing as well. There was thought that I may fight it on my own. When that didn't happen, the trial or IL-2 was offered.

  • MDCinSC
    MDCinSC Member Posts: 574
    #7
    Darron said:

    Charlotte, NC

    Lorraine

    I am being treated at the Levine Cancer Institue in Charlotte.

    Where are you located?

     

    Hi Neighbor!

    I'm just down the road, just south of Greenville SC!

    Salud!

    Michael

  • Darron
    Darron Member Posts: 310 Member
    #8
    Darron said:

    I waited also

    It is worth mentioning that after surgery, they waited to see if my tumoer was growing as well. There was thought that I may fight it on my own. When that didn't happen, the trial or IL-2 was offered.

    Neighbor

    I have been there for work and hear that the downtown is excellent.

    I am a big Red Sox and and want to go to a G'ville Drive Game one day this summer.

     

  • alice124
    alice124 Member Posts: 896 Member
    #9
    Darron said:

    Neighbor

    I have been there for work and hear that the downtown is excellent.

    I am a big Red Sox and and want to go to a G'ville Drive Game one day this summer.

     

    Yes!!!

    I'm thrilled Darron. Couldn't be happier. As I mentioned to you in the email, magic bullet!?!?!?

     

    John's next scan is Thursday, June 13. Let's keep this going. . .

     

    Wanna see shrinkage everywhere!

  • GSRon
    GSRon Member Posts: 1,303 Member
    #10
    alice124 said:

    Yes!!!

    I'm thrilled Darron. Couldn't be happier. As I mentioned to you in the email, magic bullet!?!?!?

     

    John's next scan is Thursday, June 13. Let's keep this going. . .

     

    Wanna see shrinkage everywhere!

    shrinkage

    Ah er Alice.. do we have to have shrinkage "EVERYWHERE"..??   I mean sure the tumors.. but... heh.. heh.. heh..   OK, my next scans are on July 5th.. may save a few firecrackers for afterwards...

    Be Well All..

    Roj

  • AprilandChuck
    AprilandChuck Member Posts: 110
    #11
    Darron said:

    Charlotte, NC

    Lorraine

    I am being treated at the Levine Cancer Institue in Charlotte.

    Where are you located?

     

    levine :D

    Hello...my husband is also at Levine in Charlotte...glad you found the site..it is a calming place..have you checked out Smart Patient yet? There is a bunch of useful info there also..sending well wishes 

  • Raine22
    Raine22 Member Posts: 33
    #12
    Darron said:

    Charlotte, NC

    Lorraine

    I am being treated at the Levine Cancer Institue in Charlotte.

    Where are you located?

     

    Treatment

    Luckily enough, I'm in Houston, so I'm being treated at MD Anderson!

     

    keep in touch!

  • alice124
    alice124 Member Posts: 896 Member
    #13
    GSRon said:

    shrinkage

    Ah er Alice.. do we have to have shrinkage "EVERYWHERE"..??   I mean sure the tumors.. but... heh.. heh.. heh..   OK, my next scans are on July 5th.. may save a few firecrackers for afterwards...

    Be Well All..

    Roj

    Ooops. . .

    Excellent point Ron. Guess I should have stipulated "tumor shrinkage."  Good catch!

     

     

  • foxhd
    foxhd Member Posts: 3,181 Member
    #14
    alice124 said:

    Ooops. . .

    Excellent point Ron. Guess I should have stipulated "tumor shrinkage."  Good catch!

     

     

    Yay Shrinkage!!!

    Pretty soon you'll be like me. Everything in soft tissue has shrunk and gone away! Can you say something like 20 of them? I get my latest scan results in the morning. Now we'll see how the bone buggers are doing. But I'll tell you what. I'm jumping on my bike for another thousand miles over a few days regardless of the result. Keep up the GREAT progress!

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