Gallbladder Cancer Stage 4

hi 

my mother of 52 years old has also gall bladder cancer of stage 4.

plz tell me how you cure your cancer?

doctors tell me that her surgery and chemotherapy are  not beneficial.

Lily50 said:

Mom's Gallbladder Cancer

Hi,

Welcome to our boards.  I'm so sorry that this has happened to your mother and you.  She is young and my first suggestion to you is for her to find another doctor that has had experience will GBC.  Get second, third and even fourth opinions.  It is so rare and most doctors have never seen a case of it.  Most doctors’ suggest palliative care and go for quality of life instead of quantity.  It is an aggressive cancer that needs to be treated aggressively.  It is your mother's choice whether she wants to fight like hell to live or just give up. 

There are newer discussions on the Gallbladder Cancer - 2013 thread that you might want to read.  Post any questions that you might have there and we will try to help to the best of our abilities.  Many of us where told the same thing but yet we are still here and discussing our disease.

Hope and Faith will carry you through.

Take Care

Lily

 

 

My mother has been diagnosed with gallbladder cancer tumour stage 4 .I came to know about the cow urine therapy and ayurvedic medicines , and another treatment called as dendritic cell therapy may cure the disease , i want to know whether these therapy will be helpful in curing the cancer ? 
plz tell about the tretment details for curing my mother.

My email id : francisclinton93@gmail.com

Lily50 said:

Gallbladder Cancer Stage 4
Hi,
I too was diagnosed with gallbladder cancer stage 4 in the fall of 2005. My husband later told me that I was given a short time frame also. Well they were wrong!

I had aggressive chemotherpy for almost a year to shink my turmor so that they could operate on my gallbladder, liver, stomach and removal of lymph nodes. I have a great oncologist in Las Vegas, Nevada and had my surgery at UCLA in California. I completed my chemo in March 2007.

I never lost my HOPE or FAITH and no doctor should ever be allowed to take away your HOPE.

If I can help answer any questions just let me know. It is a hard road but it is worth it. Every day becomes a blessing.

Hi dear Lily
my name in mohammad from Iran. sorry my english not good, sorry
You are my source of hope and life,
 my father have gall bladder cancer stage 4, we know almost 1 month
ago, surgery not good because his dr told me the cancer metastas to
lymph node (N2) but organs ( Liver and pancras) is clear and no
metastas to there, they told me prognosis is so bad nearly 6 month and
Im in shock and upset.
however we want start chemotheaphy but the dr told us this treatment
dont better survival and I hesitate that start chemotheraphy or not.
please help me for this subject
also My brother lives in Germany and We try to go to this country for
treatment, in my country drug that use for this deasease is GEMZAR,
and i know you too use this drug
I very happy and glad to see your comment in forum and hope you feel
good always in your life and reach to all dreams
dear lily my people in imy country say 120 years you live and see
wedding your children
I wish this for you
with the best wishes
Mohammad, Esfahan, IRAN

Tanty said:

Husband with Stage 4

Hi

I feel like I've found a good place to share, send love and ask for help

My husband was diagnosed seven weeks ago with Stage 4, which has moved from his gallbladder to his liver, and has grown 50% again in size since the last CT a month ago.  The tumor is pressing down on a large group of blood vessels in the liver, causing difficulty with digestion and circulation.  He has lost around 16 kilos in seven weeks.  HIs jaundice was disappearing but in the last week his bilirubin level has started to climb again.  It's a frightening and upsetting time.  Surgery has been ruled out, and we go for a meeting later this week to find out if they will still offer chemo (entirely dependent, I think, on how his bilirubin is doing), or just give us a time limit on his life.  I wanted to ask if anyone else had a similar diagnosis and if so, what drugs or treatment combination proved effective.  I know that everyone responds differently to treatments, but I at least want to go into this meeting with questions to ask!

I know how much energy and empathy it takes to invest in soneone else's situation when your own is so overwhelming but any input will be very gratefully received!

Thanks

Hi,

I'm Lily and I'm a GBC Stage 4 Seven Year Survivor.   Yes, you have come to a good place to share your journey with us.  This is the original discussion thread that was started over 5 years ago.  Every year I create a new thread, because the bigger the thread gets the more difficult it is to respond and takes too long to load.  If you don't mind if you could post to the Gallbladder Cancer - 2013 - (Any Stage) just cut and paste and we will be happy to share everything to the best of our abilities.  This disease has gotten more attention these last couple of years and there are people who are going through what your husband is or have already completed treatment. 

This is a very aggressive disease and needs to be treated aggressively.  You are both in shock right now and everything that you read is outdated at best.  I too was told no to surgery in the beginning and eventually after 11 months of chemo I was able to have surgery.  No just means not now.  I couldn't have radiation as my liver was compromised.  I was given 2 weeks, 2 months and on the outside 2 years.  Boy, lots of doctor's were wrong with that prognosis.  Yes, we have all had the similar diagnosis and different people have responded differently to the chemo cocktails.  Gemzar seems to be a common thread, along with Cisplatin, Carboplatin, Oxiplatin, and/or 5 FU's. 

I know for most of us that post on these boards need to feel connected with others that are facing this disease.  The medical community tends to view the situation as hopeless but it doesn't have to be.  Talk to us and we will try to help you and your husband. 

Hope & Faith will carry you through.

Take Care

Lily

Lily50 said:

Gallbladder Cancer Stage 4
Hi,
I too was diagnosed with gallbladder cancer stage 4 in the fall of 2005. My husband later told me that I was given a short time frame also. Well they were wrong!

I had aggressive chemotherpy for almost a year to shink my turmor so that they could operate on my gallbladder, liver, stomach and removal of lymph nodes. I have a great oncologist in Las Vegas, Nevada and had my surgery at UCLA in California. I completed my chemo in March 2007.

I never lost my HOPE or FAITH and no doctor should ever be allowed to take away your HOPE.

If I can help answer any questions just let me know. It is a hard road but it is worth it. Every day becomes a blessing.

pls send your mailid

Hi I am stepin my mother is diagnosed gull bladder cancer stage IV two days back and doctor is telling surgery is not possible and there is no treatment for this.pl help me out the CT scan report is like this CHOLELITHIASIS WITH MASS IN GB FUNDUS REGION. 

IRREGULAR MODERATELY ENHANCING HYPODENSE SOL IN RIGHT LOBE OF LIVER CLOSE TO GB FUNDUS ( ?ADJACENT INFILTERATION OF GB FUNDUS MASS/?SATELLITE METASTASIS) pl share ur experience with this report I am waiting for ur suggestions for my mothers further treatment plan

aleale said:

I AM LOOKING FOR A DOCTORS CONTACT FOR MY MUM

Hi,

 

I am from Italy and my mum was been diagnosed with a gallbladder cancer stage 4 with a carcinoma in the peritoneum. Here in Italy I wrote to the best Doctors, but all of them told me that it is impossible to save my mum, impossible to do surgery. I don't know if wherever in the world there is at least one possibility of saving her, that's why I am asking for your help. My mother did palliative chemio until now, with Gemzar, but now her liver is suffering and doctors don't think she will be able to continue with chemio.

I read here that it was possible to survive for you and I hope my mum will survive too.

Please, give me Doctors contact, at least I will try to contact them and ask for help.

 

Thank you everybody

Hey i just signed up here, and im wondering about the same as you did. Did you get any information? How is your mom doing? 

Best Mona

Hi Everyone

Greetings from India

Just like all on this forum I am also affected by this dreadful disease as my mother was diagnosed with metastatic GBC in sep 2012 . initially we were in denial and doubted the diagnosis as she was not having any trouble of any sort physically. It all started in May 2013 when she suffered from obstructive jaundice and lost hell lot of weight we then ran to the oncologist and it was confirmed that it has been caused by this disease only. We then submitted ourselves to the oncologist and followed whatever he adviced. Her ERCP and metal stenting was done in July 13 and soon she recovered from jaundice. Later in Oct we started off with First line of Chemo Gemcitabine+ Cisplatin ( 1st day then 7th day and 15 days gap after that). She underwend 6 cycles ( 12 seatings) over next 3 months. Results were beyond everyone's expectations as the oncologist had told me earlier that my mother had 3-4 months to live even after chemotherapy. The CT scan after chemo showed that the primary and metastatic lesion shrank as less as to 4cmx4cm from a massive 13cmx12cm and the best part was that she did not suffer from a single side effect whatsoever and had a good appetite and healthy and active routine. But as the fate must have it we again did a CT scan in Oct 14 to check the state and to our surprise the disease had bounced back and the lesion again increased up to their original size of 12x13 cm in 3 months. The symptoms started coming back as she lost weight again, the gastric problems and pain in stomach. We again resorted to the advice of the oncologist and opted for Second line of chemo ( Capcitabine( oral (2500 mg everyday ))+ Oxaliplatin( I V 1st day  and 7th day then a gap of 15 days) . We have undergone 4 seatings and the CT scan has again shown some good signs as the primary and metastatic lesions have again come down to 4cmx5cm but this time she suffered from Diarrhea as the side effect of the drugs which has further weakened her. She is still recovering from the same and preparing herself to undergo the next chemo cycle. She is a warrior at heart with no worries or regrets whatsoever which probably has helped her the most to fight the biggest battle of all ours life.

Now comes the part where I will request you people to provide your advice as the tumor has now come down to a level where probably it can be removed surgically but the oncologist has told us that the metastatic lesions can not be removed surgically hence the disease is inoperable. We are stuck

In a dead end where after 2 cycles I'll have no options left but to watch my mother suffer through the disease . I am also looking for any effective and proven Alternative treatments which I can opt for .

Will appreciate inputs from all

Thanks and regards..

vic_prash said:

My mother diagnosed with Metastatic GBC in Sep 2012

Hi Everyone

Greetings from India

Just like all on this forum I am also affected by this dreadful disease as my mother was diagnosed with metastatic GBC in sep 2012 . initially we were in denial and doubted the diagnosis as she was not having any trouble of any sort physically. It all started in May 2013 when she suffered from obstructive jaundice and lost hell lot of weight we then ran to the oncologist and it was confirmed that it has been caused by this disease only. We then submitted ourselves to the oncologist and followed whatever he adviced. Her ERCP and metal stenting was done in July 13 and soon she recovered from jaundice. Later in Oct we started off with First line of Chemo Gemcitabine+ Cisplatin ( 1st day then 7th day and 15 days gap after that). She underwend 6 cycles ( 12 seatings) over next 3 months. Results were beyond everyone's expectations as the oncologist had told me earlier that my mother had 3-4 months to live even after chemotherapy. The CT scan after chemo showed that the primary and metastatic lesion shrank as less as to 4cmx4cm from a massive 13cmx12cm and the best part was that she did not suffer from a single side effect whatsoever and had a good appetite and healthy and active routine. But as the fate must have it we again did a CT scan in Oct 14 to check the state and to our surprise the disease had bounced back and the lesion again increased up to their original size of 12x13 cm in 3 months. The symptoms started coming back as she lost weight again, the gastric problems and pain in stomach. We again resorted to the advice of the oncologist and opted for Second line of chemo ( Capcitabine( oral (2500 mg everyday ))+ Oxaliplatin( I V 1st day  and 7th day then a gap of 15 days) . We have undergone 4 seatings and the CT scan has again shown some good signs as the primary and metastatic lesions have again come down to 4cmx5cm but this time she suffered from Diarrhea as the side effect of the drugs which has further weakened her. She is still recovering from the same and preparing herself to undergo the next chemo cycle. She is a warrior at heart with no worries or regrets whatsoever which probably has helped her the most to fight the biggest battle of all ours life.

Now comes the part where I will request you people to provide your advice as the tumor has now come down to a level where probably it can be removed surgically but the oncologist has told us that the metastatic lesions can not be removed surgically hence the disease is inoperable. We are stuck

In a dead end where after 2 cycles I'll have no options left but to watch my mother suffer through the disease . I am also looking for any effective and proven Alternative treatments which I can opt for .

Will appreciate inputs from all

Thanks and regards..

 

Hi All

can someone guide me for my mom-in law. SHe has got gallblader stage IV matastatic cancer. Problem is that she is getting unbreabale pain. is there some way she gets less pain?