Sister has stg 4 adenocarsinoma which has spread to her bones and liver

katewatts
katewatts Member Posts: 21
in Lung Cancer #1

 My sister is just 53 and was diagnosed Jan 30th.  She is in England and is  3/4  way through her chemo treatments. She had radiotherapy on her shoulder  and hip to help manage the pain from the cancer in her bones.  She has a permanent drain in her lung which her husband drains three times per week. The fluid is much less than it was to start.  There are cancer cells in the fluid.  She pushes on every day.  She is a shop owner and goes to work every day (just half days) and is doing as much as she can which is how she is coping with this.  They have told her she is just looking at months......not years and she can't have anymore chemo after this is finished and basically they are just doing things to keep her comfortable. They have, however, offered her the option of a 2nd opinion which I hope she jumps on. It will be at the Royal Marsden In London. Apparently one of the best cancer institutions in Europe.  This has devistated our family and I am heart broken.  She has 4 children who are all in college.  She has so much to look forward to.  Are there any long time survivors on this site with her diagnosis????  I need hope here......lots of hope and something possitive to tell her.  She and her husband are going to France and Italy to celebrate their 30th anniversay and when they come back home, they plan to tell their children her prognosis and go from there.

Comments

  • dennycee
    dennycee Member Posts: 857 Member
    #2
    Most of the really long term

    Most of the really long term survivors just check in here on anniversaries or special dates.  There are those that have lived 10, 15 & 20 yeArs.  Please do encourage that second opinion.  Also do you know what kind of non small lung cancer it is?   Would she consider a clinical trial?

    Thirty two months ago I was given 10/15 months.  I am doing quite well and enjoying a good quality of life.  

  • katewatts
    katewatts Member Posts: 21
    #3
    dennycee said:

    Most of the really long term

    Most of the really long term survivors just check in here on anniversaries or special dates.  There are those that have lived 10, 15 & 20 yeArs.  Please do encourage that second opinion.  Also do you know what kind of non small lung cancer it is?   Would she consider a clinical trial?

    Thirty two months ago I was given 10/15 months.  I am doing quite well and enjoying a good quality of life.  

    She has non-small cell

    She has non-small cell adenocarsinoma.  That is so great that you are doing so well!!!!  This is such a shocking diagnosis for anyone.  Yes, I'm sure she would consider anything at this point.  We all went to England in stages in the past few months to stay with her.  She is a very strong girl and pushing sooooo hard.  My mother came back saying that her oncologist told her she could not do any trials.  Now, my mother is 83 and frantic over this (of course) and I'm just wondering if she has her story straight as I can't imagine why she would not qualify for a trial.  They have the national health over there and it's all paid by government and besides which.....she is married into extreme wealth so money would not be an issue.  My mother also said the oncologist told her she could not do chemo again (that I can understand).  Thank you for your response.....

  • katewatts
    katewatts Member Posts: 21
    #4
    dennycee said:

    Most of the really long term

    Most of the really long term survivors just check in here on anniversaries or special dates.  There are those that have lived 10, 15 & 20 yeArs.  Please do encourage that second opinion.  Also do you know what kind of non small lung cancer it is?   Would she consider a clinical trial?

    Thirty two months ago I was given 10/15 months.  I am doing quite well and enjoying a good quality of life.  

    She has non-small cell

    She has non-small cell adenocarsinoma.  That is so great that you are doing so well!!!!  This is such a shocking diagnosis for anyone.  Yes, I'm sure she would consider anything at this point.  We all went to England in stages in the past few months to stay with her.  She is a very strong girl and pushing sooooo hard.  My mother came back saying that her oncologist told her she could not do any trials.  Now, my mother is 83 and frantic over this (of course) and I'm just wondering if she has her story straight as I can't imagine why she would not qualify for a trial.  They have the national health over there and it's all paid by government and besides which.....she is married into extreme wealth so money would not be an issue.  My mother also said the oncologist told her she could not do chemo again (that I can understand).  Thank you for your response.....

  • katewatts
    katewatts Member Posts: 21
    #5
    dennycee said:

    Most of the really long term

    Most of the really long term survivors just check in here on anniversaries or special dates.  There are those that have lived 10, 15 & 20 yeArs.  Please do encourage that second opinion.  Also do you know what kind of non small lung cancer it is?   Would she consider a clinical trial?

    Thirty two months ago I was given 10/15 months.  I am doing quite well and enjoying a good quality of life.  

    Thanks for Response

    She has non-small cell adenocarsinoma.  That is so great that you are doing so well!!!!  This is such a shocking diagnosis for anyone.  Yes, I'm sure she would consider anything at this point.  We all went to England in stages in the past few months to stay with her.  She is a very strong girl and pushing sooooo hard.  My mother came back saying that her oncologist told her she could not do any trials.  Now, my mother is 83 and frantic over this (of course) and I'm just wondering if she has her story straight as I can't imagine why she would not qualify for a trial.  They have the national health over there and it's all paid by government and besides which.....she is married into extreme wealth so money would not be an issue.  My mother also said the oncologist told her she could not do chemo again (that I can understand).  Thank you for your response.....

  • katewatts
    katewatts Member Posts: 21
    #6
    katewatts said:

    Thanks for Response

    She has non-small cell adenocarsinoma.  That is so great that you are doing so well!!!!  This is such a shocking diagnosis for anyone.  Yes, I'm sure she would consider anything at this point.  We all went to England in stages in the past few months to stay with her.  She is a very strong girl and pushing sooooo hard.  My mother came back saying that her oncologist told her she could not do any trials.  Now, my mother is 83 and frantic over this (of course) and I'm just wondering if she has her story straight as I can't imagine why she would not qualify for a trial.  They have the national health over there and it's all paid by government and besides which.....she is married into extreme wealth so money would not be an issue.  My mother also said the oncologist told her she could not do chemo again (that I can understand).  Thank you for your response.....

    whoops must have hit the submit button too many times

    Sorry about the three posts which are all the same.  Must have hit submit too many times.  There was such a delay, I thought it wasn't working properly

  • dennycee
    dennycee Member Posts: 857 Member
    #7
    Visit the cancer.gov Site.

    Visit the cancer.gov Site.  They have a list of clinical trials going on worldwide and they list what would qualify or disqualify her for each trial.  My cancer is adenocarcinoma as well and it seems there are several she can qualify for.  Ask her for more info.  I read of people having up to five different lines of chemo.  Was she tested for mutations?

     

     

     

  • katewatts
    katewatts Member Posts: 21
    #8
    dennycee said:

    Visit the cancer.gov Site.

    Visit the cancer.gov Site.  They have a list of clinical trials going on worldwide and they list what would qualify or disqualify her for each trial.  My cancer is adenocarcinoma as well and it seems there are several she can qualify for.  Ask her for more info.  I read of people having up to five different lines of chemo.  Was she tested for mutations?

     

     

     

    Thank you

    Thank you......I will visit the site and see what's what.  I think she was tested for mutations.  I may have it all wrong, but if that is where they determine if she can do the pill form chemo.......she was told she is not a candidate for it after waiting on results of a test.  I plan to tell her your story.  She is very determined, but I just don't think her oncologist is the greatest......terrible bedside mannor.  Thanks again!

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